Foundation Update

Video: Foundation provides scientific update, Coronavirus impact

Finding treatments and a cure for Sanfilippo Syndrome is the mission of the Foundation, it partner families, and families of children with Sanfilippo around the world. The Foundation is ardently continuing this mission on all fronts, including the science/research,...

Statement on Coronavirus

The world is grinding to a halt because of Coronavirus. Except for one thing that continues at the same pace ... time. And time is the greatest enemy to children with Sanfilippo Syndrome. Coronavirus is impacting the Sanfilippo community on a few crucial and...

Foundation Update – October 2019

“This shouldn’t happen! Especially not to children.”That’s what you thought when you first heard about Sanfilippo Syndrome. You put yourself in the shoes of these parents who were told that their children will suffer and die from Sanfilippo, and it broke your heart....

Foundation Update – July 2019

When you make a donation, you make an investment in Cure Sanfilippo Foundation. We want to share how your investment continues to pave a new future for families with Sanfilippo children. FUNDRAISING PROGRESS UPDATEThrough the end of June, the generous support of...

Foundation Update – April 2019

When you make a donation, you make an investment in Cure Sanfilippo Foundation. We want to share an update on how your investment continues to pave a new future for families with Sanfilippo children. FUNDRAISING PROGRESS UPDATEThanks to your tremendous support,...

Foundation Update – Spring 2018

Hello again,Thank you for taking the time to read our brief update below, all of which is thanks to your support.  2018 has already seen some exciting news and updates in Sanfilippo Syndrome!Clincial Trials:The Gene Therapy clinical Trial for Sanfilippo Type A and...