Foundation Update

10 years ago, we never could have imagined …

This month celebrates 10 years since we established Cure Sanfilippo Foundation, after our daughter Eliza was diagnosed with Sanfilippo Syndrome. Ten years ... it’s hard to believe. At this milestone, it felt natural to celebrate the progress you’ve enabled. And to...

Thankful for you; Looking back at 2020 and ahead into 2021

Our goal at the beginning of the year was to raise $2 million in 2020, to help further research and clinical trials for children with Sanfilippo Syndrome. But when the world shut down in March, it seemed so far away ... and honestly nearly impossible.  But time and...

Foundation Update | New Project & Progress – May 2020

This spring hasn’t been easy for anyone. But many generous people have made it a little less stressful for families of children with Sanfilippo Syndrome (MPS III). People's support of and generosity to Cure Sanfilippo Foundation have been the rainbow in a storm of...

Video: Foundation provides scientific update, Coronavirus impact

Finding treatments and a cure for Sanfilippo Syndrome is the mission of the Foundation, it partner families, and families of children with Sanfilippo around the world. The Foundation is ardently continuing this mission on all fronts, including the science/research,...

Statement on Coronavirus

The world is grinding to a halt because of Coronavirus. Except for one thing that continues at the same pace ... time. And time is the greatest enemy to children with Sanfilippo Syndrome. Coronavirus is impacting the Sanfilippo community on a few crucial and...

Foundation Update – October 2019

“This shouldn’t happen! Especially not to children.”That’s what you thought when you first heard about Sanfilippo Syndrome. You put yourself in the shoes of these parents who were told that their children will suffer and die from Sanfilippo, and it broke your heart....