If Your Child Has Been Diagnosed

You are the parent of a child with Sanfilippo Syndrome. But you aren’t alone.

We and the other families of children with Sanfilippo Syndrome are with you. Here for you. Whether your child was recently diagnosed or Sanfilippo has been a part of your life for years.

As a parent, you want every scrap of information you can find. Let us help.

The following is information about the disease, where research for a cure or treatment stands, resources to support your family, and how to join the fight.

Disease Information

Now that you have a diagnosis, you are probably searching for as much information about Sanfilippo Syndrome as possible. Let’s get you answers.

Research on Sanfilippo

At the top of your mind is knowing what research is happening globally to find a cure or treatment for Sanfilippo Syndrome. And most importantly, what clinical trials are happening and is your child eligible.

How to Help Find a Cure

Is your family ready to jump into the fight to advocate for and accelerate discovery of a cure for Sanfilippo Syndrome?

Support For Your Family

Sanfilippo Syndrome is a disease very few people have ever heard of. It’s our life. We have information and resources to help your family navigate life with Sanfilippo.

More About Cure Sanfilippo Foundation

Get to know how Cure Sanfilippo started, who guides it, and what impact it’s making on its mission to cure Sanfilippo.