Sanfilippo Is a Rare Disease, But There Is Greater Awareness Than Ever.
The compassion of people is truly amazing. In five years, more than $8 million has been donated to the Foundation.
All of it coming from individuals who heard the stories of Sanfilippo families and made the selfless choice to help our kids have a chance at life. More than 40,000 strangers have stepped up to help find a cure for Sanfilippo Syndrome.
We work to keep elevating awareness by constantly telling the story. For one Sanfilippo family’s story is the reality for all of us.
Thought-Leadership Projects
Curing Sanfilippo is our ultimate goal, but your support also allows us to play a critical roll in influencing the road that leads there. Learn more about the Foundation’s thought-leadership projects.
Collaborations
Curing Sanfilippo is our ultimate goal, but your support also allows us to play a critical roll in influencing the road that leads there. Learn more about the Foundation’s collaborative mindset.
Sanfilippo Syndrome In The News
Family Friday Blog: The Burroughs Family
Get to know the Burroughs family – Craig, Sara, Hannah, Addison, and Carson! Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Burroughs family's honest and insightful...
World’s first zebrafish model of Sanfilippo: A game-changer in Sanfilippo research
Dr. Jan Kaslin, from the Australian Regenerative Medicine Institute (ARMI), based at Monash University, Australia, has developed the world’s first zebrafish model for Sanfilippo Syndrome with the support of a grant from Cure Sanfilippo Foundation and Sanfilippo...
Family Friday Blog: Loralei’s Family
Get to know Loralei and her family – mom Brandi, stepdad Cody, brothers Brayden and Blayne, and sister Sierra! Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through their...
Family Friday Blog: The Rixer Family
Get to know the Rixer family – Andreas, Lisa, Saga, Casper, and Maia! Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Rixer family's honest and insightful...
Free Guide: Tips to Help Kids Host a Successful Lemonade Stand
Lemonade stands are a hallmark of childhood summers Lemonade stands are a great opportunity for kids to experience entrepreneurship, hands-on experience with money, and a bit of sales and marketing. All right in their neighborhood. Maybe your kids, grandkids, or...
Family Friday Blog: The Willich Family
Get to know the Willich family – Jarrod, Megan, Beckett, and Kaisa!Find out what the past year has been like in their lives with this week’s Family Friday. Get a glimpse into living with Sanfilippo Syndrome through the Willich family's honest and insightful...