Raising Awareness

Sanfilippo Is a Rare Disease, But There Is Greater Awareness Than Ever.

The compassion of people is truly amazing. In five years, more than $8 million has been donated to the Foundation.

All of it coming from individuals who heard the stories of Sanfilippo families and made the selfless choice to help our kids have a chance at life. More than 40,000 strangers have stepped up to help find a cure for Sanfilippo Syndrome.

We work to keep elevating awareness by constantly telling the story. For one Sanfilippo family’s story is the reality for all of us.

Thought-Leadership Projects

Curing Sanfilippo is our ultimate goal, but your support also allows us to play a critical roll in influencing the road that leads there. Learn more about the Foundation’s thought-leadership projects.

Collaborations

Curing Sanfilippo is our ultimate goal, but your support also allows us to play a critical roll in influencing the road that leads there. Learn more about the Foundation’s collaborative mindset.

Sanfilippo Syndrome In The News

Family Friday 2023: The Stoop Family

Hear directly from the Stoop family – Tyler, Erin, Olivia, and Liam!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo...

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Recognizing MPS Awareness Day 2023

Today, May 15, is MPS (Mucopolysaccharidosis) Awareness Day. Sanfilippo Syndrome's official name is Mucopolysaccharidosis Type 3, or MPSIII. Sanfilippo is part of a group of lysosomal storage disorders known as mucopolysaccharidoses or MPS. The other related disorders...

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Family Friday 2023: The Esposito Family

Hear directly from the Esposito family – Dave, Elise, Keira, and Keaton!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo...

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Family Friday 2023: The Laughlin Family

Hear directly from the Laughlin family – Shea, Erin, and Spencer!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo more...

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