Raising Awareness

Sanfilippo Is a Rare Disease, But There Is Greater Awareness Than Ever.

The compassion of people is truly amazing. In five years, more than $8 million has been donated to the Foundation.

All of it coming from individuals who heard the stories of Sanfilippo families and made the selfless choice to help our kids have a chance at life. More than 40,000 strangers have stepped up to help find a cure for Sanfilippo Syndrome.

We work to keep elevating awareness by constantly telling the story. For one Sanfilippo family’s story is the reality for all of us.

Thought-Leadership Projects

Curing Sanfilippo is our ultimate goal, but your support also allows us to play a critical roll in influencing the road that leads there. Learn more about the Foundation’s thought-leadership projects.

Collaborations

Curing Sanfilippo is our ultimate goal, but your support also allows us to play a critical roll in influencing the road that leads there. Learn more about the Foundation’s collaborative mindset.

Sanfilippo Syndrome In The News

Thankful for you; Looking back at 2020 and ahead into 2021

Our goal at the beginning of the year was to raise $2 million in 2020, to help further research and clinical trials for children with Sanfilippo Syndrome. But when the world shut down in March, it seemed so far away ... and honestly nearly impossible.  But time and...

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4 ways to make memories this holiday season

It's deep into the holiday season. And while this holiday season is unlike any others in our lifetime, it can still be a magical time of creating memories you'll cherish for years to come. Here four ways you can make memories this holiday season. 1. Make a recording...

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