Sanfilippo Speak: A Family Support Webinar Series

Life with Sanfilippo Syndrome can be extremely isolating for parents and siblings. Few understand the day-to-day challenges of caring for a person with Sanfilippo Syndrome. One of the most important things the Foundation can do is create opportunities that support the families in giving their children a better quality of life and also help these families navigate the myriad decisions they face daily.

Sanfilippo Speak is a family support webinar series hosted by Cure Sanfilippo Foundation to provide families, caregivers, therapists, educators, clinicians, and more with helpful insights into and discussions around pivotal topics specific to navigating life with Sanfilippo Syndrome. Planned topics include as assistive technology, durable medical equipment, ABA therapy, IEP and transition support, fundraising, advocacy, and more.

All Sanfilippo Speak webinars are free and open to the public. Families, therapists, teachers, etc. are welcome.

Durable Medical Equipment (DME)
and You

July 30, 2024

The July Sanfilippo Speak will focus on the ins and outs of durable medical equipment (DME). Explore what qualifies as DME and how to access it. See live device demonstrations and more! Experts from Pediatric Mobility Innovations (PMI), a South Carolina-based DME supplier and long-time supporter of the Foundation, will guide you through all of this, plus answer your questions.

Join the webinar on July 30 via this Zoom link: https://us06web.zoom.us/j/87386461398

What is Assistive Technology?

June 18, 2024

Rachell Johnson of the South Carolina Assistive Technology Program speaks on the highs and lows of assistive technology (AT), as well as answer questions submitted by you. Explore what all “assistive technology” includes and how it can help children with Sanfilippo Syndrome communicate now and in the future.

Watch the webinar
Read the session Q&As