It Started With A Diagnosis
In 2013, Glenn and Cara O’Neill were seeking answers to why their busy, happy three-year-old who loved to run and sing was starting to fall behind with meeting some developmental milestones. After many tests, specialists, and an Autism diagnosis, they are told that Eliza has Sanfilippo Syndrome and would lose all the skills she gained, endure pain and suffering, and then die, all in a matter of years.
Like any parents, they decided to fight for a future. To turn hope into action. And they created Cure Sanfilippo Foundation, a 501(c)3 non-profit organization, focused on pursuing every avenue to find a treatment or cure. Not just for their daughter, but for every child with Sanfilippo. Because they envision a future where no parent ever has to watch their child suffer because of Sanfilippo.
Cure Sanfilippo Foundation has come to represent a collection of Sanfilippo families nationwide and globally and friends and supporters fighting under a single umbrella to save our children.