Together a cure happens sooner
Taking a 360-degree view, the Foundation funds extensive research into multiple avenues for a treatment/cure, as well as spearheads, supports, and funds initiatives that provide valuable, disease-specific and patient-preference information about Sanfilippo. This combination of approaches leads to better understanding of the disease, more effective treatments, and opportunities for earlier diagnosis.
We partner with academic institutions, bio-technology companies, and other non-profit organizations to support projects that benefit all forms of Sanfilippo (Types A, B, C, D).
Our Chief Science Officer and Scientific/Physician Advisory Board steer and thoroughly vet these initiatives.
Our Collaborations
Leveraging Data to Advance Therapeutic Development in Sanfilippo Syndrome
Cure Sanfilippo Foundation has created an initiative that brings together leaders representing academia, biopharmaceutical companies, and patient advocacy organizations in a first-of-its-kind discussion to address the challenges, needs, and goals of sharing of existing datasets to further the development of therapies for Sanfilippo syndrome.
Other Collaborations
Learn more about the Foundation’s collaborative mindset and how we drive collaboration beyond research.
Are You Interested in Collaborating?
If you are interested in a grant from or collaborating with Cure Sanfilippo Foundation for a project regarding Sanfilippo Syndrome, please contact us via the form below. We look forward to hearing from you.