Accelerating support for children with Sanfilippo
ADVANCE, a Sanfilippo Community Conference, is an annual virtual that brings together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo Syndrome.
Hosted by Cure Sanfilippo Foundation, ADVANCE featured high-level collaboration, information sharing, and Sanfilippo-specific learning sessions. Topics included the role of inflammation and the immune system in Sanfilippo, new treatment approaches, Sanfilippo subtype-specific sessions, ABA and Sanfilippo, and much more.
Mark your calendars for ADVANCE 2023 in the early summer. Official dates to come.
The conference is virtual so that the hardships of travel don’t impact the ability of people from around the world being able to participate.
Help shape ADVANCE 2023!
What sessions, topics, people, etc. would you like to see in the ADVANCE 2023 agenda? What suggestions do you have to make the event as useful and productive as possible? Let us know via the form below. All ideas and suggestions will be considered and used to build this year’s event.
Recordings from 2022 conference
More than 450 people globally — families, scientists, clinicians, therapists, educators, pharmaceutical industry, and more — registered for ADVANCE 2022 to hear the more than 30 presentations from more than 60 speakers/panelists during the Sanfilippo conference.
Session topics included the role of inflammation and the immune system in Sanfilippo, new treatment approaches, Sanfilippo subtype-specific sessions, ABA and Sanfilippo, and much more. Additionally, ADVANCE 2022 included open dialogues between parents, scientista, and cliniciana to explore the realities of living with Sanfilippo and how it can help improve and advance the science.
ADVANCE 2022 recordings of the two days of sessions are available. Access the archives.