Accelerating support for children with Sanfilippo
ADVANCE is the virtual Sanfilippo community conference hosted by Cure Sanfilippo Foundation, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo Syndrome.
Made available at no cost to all attendees, ADVANCE features high-level collaboration, information sharing, and Sanfilippo-specific learning sessions each year.
The conference is virtual so that the hardships of travel don’t impact the ability of people from around the world being able to participate.
Recordings from past ADVANCE conferences
Hundreds of people globally — families, scientists, clinicians, therapists, educators, pharmaceutical industry, and more — have attended ADVANCE each year to hear the dozens of presentations from experts speakers/panelists during the Sanfilippo conference.
ADVANCE 2026
What’s happening with the treatments being developed for Sanfilippo? What new delivery vehicles and therapies are researchers exploring that could be the next clinical trials? What do you do when your child has an episode of unexplained distress, develops a concerning movement, or you’re simply trying to figure out how to make everyday life a little easier?
Register today for ADVANCE 2026, Sept. 22-23, to hear virtually from the experts to answer all of these questions and much more! You’ll hear directly from the scientists leading the emerging research and the biotechs developing therapies, experts with practical insights into movement disorders, unexplained distress, newborn screening, and fellow families about how they navigate various aspects of daily life with Sanfilippo.
ADVANCE 2024
A record-number of people registered for ADVANCE 2024, to attend sessions on gene therapy considerations, supporting health through nutrition, impact of Sanfilippo on the retina, updates on clinical trials for Sanfilippo Syndrome, and much more. Additionally, ADVANCE 2024 included the unique and eye-opening opportunity for attendees to get a look at daily life inside the households of families affected by Sanfilippo Syndrome.
ADVANCE 2024 recordings of the two days of sessions are available. Access the archives.
ADVANCE 2023
Session topics of ADVANCE 2023 included cell therapy, biomarkers for Sanfilippo, and new treatment approaches. Additionally, ADVANCE 2023 included expert insights into navigating various aspects of living with Sanfilippo, such as considerations about feeding tubes, client-centered approaches to behavioral therapy, and strategies to support longer-term communication through the use of assistive devices and tools.
ADVANCE 2023 recordings of the two days of sessions are available. Access the archives.
ADVANCE 2022
Session topics of ADVANCE 2022 included the role of inflammation and the immune system in Sanfilippo, new treatment approaches, Sanfilippo subtype-specific sessions, ABA and Sanfilippo, and much more. Additionally, ADVANCE 2022 included open dialogues between parents, scientist, and cliniciana to explore the realities of living with Sanfilippo and how it can help improve and advance the science.
ADVANCE 2022 recordings of the two days of sessions are available. Access the archives.
Help shape future ADVANCE conferences!
What sessions, topics, people, etc. would you like to see in future ADVANCE agendas? What suggestions do you have to make the event as useful and productive as possible? Let us know via the form below. All ideas and suggestions will be considered and used to build this year’s event.
