Accelerating support for children with Sanfilippo
ADVANCE, a Sanfilippo Community Conference, is an annual virtual that brings together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo Syndrome.
Hosted by Cure Sanfilippo Foundation, ADVANCE features high-level collaboration, information sharing, and Sanfilippo-specific learning sessions each year.
The conference is virtual so that the hardships of travel don’t impact the ability of people from around the world being able to participate.
Recordings from 2023 & 2022 conference
Hundreds of people globally — families, scientists, clinicians, therapists, educators, pharmaceutical industry, and more — have attended ADVANCE each year to hear the dozens of presentations from experts speakers/panelists during the Sanfilippo conference.
ADVANCE 2023
Session topics of ADVANCE 2023 included cell therapy, biomarkers for Sanfilippo, and new treatment approaches. Additionally, ADVANCE 2023 included expert insights into navigating various aspects of living with Sanfilippo, such as considerations about feeding tubes, client-centered approaches to behavioral therapy, and strategies to support longer-term communication through the use of assistive devices and tools.
ADVANCE 2023 recordings of the two days of sessions are available. Access the archives.
ADVANCE 2022
Session topics of ADVANCE 2022 included the role of inflammation and the immune system in Sanfilippo, new treatment approaches, Sanfilippo subtype-specific sessions, ABA and Sanfilippo, and much more. Additionally, ADVANCE 2022 included open dialogues between parents, scientist, and cliniciana to explore the realities of living with Sanfilippo and how it can help improve and advance the science.
ADVANCE 2022 recordings of the two days of sessions are available. Access the archives.
Help shape ADVANCE 2024!
What sessions, topics, people, etc. would you like to see in the ADVANCE 2024 agenda? What suggestions do you have to make the event as useful and productive as possible? Let us know via the form below. All ideas and suggestions will be considered and used to build this year’s event.
