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About The Foundation

We are working to cure Sanfilippo Syndrome

Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization

All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.

This is led by proactive families of children with Sanfilippo Syndrome, and their supporters, who work tirelessly to change the fate and future for these children.

Donations may be tax-deductible.

Learn more about the Foundation

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How We Began

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Our Culture Statement

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What We Do

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Board, Staff, Advisors & Partner-Families

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The Impact

Tax Information

The Foundation is a U.S.-registered, 501(c)3 non-profit organization. Our Tax ID Number is 46-4322131.