Our goal at the beginning of the year was to raise $2 million in 2020, to help further research and clinical trials for children with Sanfilippo Syndrome. But when the world shut down in March, it seemed so far away … and honestly nearly impossible.
But time and again this year, you and others showed up for the children, and the goal was reached! Because of you, we’ve been able to commit funding to two additional major research programs.
It is heartwarming and awe-inspiring to know people like you.
As as a fellow Sanfilippo parent said, “You make us stronger. You help us carry the weight of this disease. You keep our hope alive.”
Below are some “Mission Moment” videos we shared during our Merry & Bright Trivia Gala Night just a couple of weeks ago. Watch these brief clips for details about the progress you’ve made possible and the impact it has on families of children with Sanfilippo Syndrome.
Thank you for helping raise $2 million in 2020 for research for a treatment or cure!
Our humble and sincere thanks,
Glenn & Cara O’Neill
on behalf of the staff, board, and partner families of Cure Sanfilippo Foundation
MISSION MOMENT 1
A review of the basics about Sanfilippo Syndrome and the Foundation, plus a family’s personal story of life with Sanfilippo.
MISSION MOMENT 2
Foundation Board members and Partners Families talking about the power and value they find in Cure Sanfilippo Foundation, which exists because of people like you.
MISSION MOMENT 3
The first Partner Family joined our Foundation in late 2014. It’s amazing to think that we now have more than 95 partner families around the country and the world.
MISSION MOMENT 4
Partner Families and Board members sharing their stories and messages of appreciation and thanks to YOU, our amazing supporters.