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Every parent dreams about their kid’s future and watching it unfold.

Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.

Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.

Help save children.
VIDEO: One Family’s Sanfilippo Story And the reality for every family living with Sanfilippo Syndrome.
Cure Sanfilippo Foundation logo
We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure for this childhood dementia. Every project we architect or fund gets families closer to a cure in this lifetime.

Green arrow bullet $20 million raised since 2013

Green arrow bullet 15,000 children globally
Green arrow bullet 35+ research projects funded

Green arrow bullet 110+ partner families globally

Green arrow bullet 3 clinical trials funded
Green arrow bullet Medical & scientific expertise
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WHAT IS SANFILIPPO
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MEET THE FAMILIES

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DONATE

Accelerating research to cure Sanfilippo Syndrome and save children
Give children with Sanfilippo a chance at life. Let parents watch their children grow up.
A cure can’t wait.

Every parent dreams about their child’s future and watching it unfold.

Sanfilippo Syndrome takes that all away.

Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease. It causes children to lose all the skills they’ve gained, to suffer seizures and dementia, to experience pain and suffering, and then die. All before their parents eyes. Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome, so parents can dream of their children’s futures again.

Help save children

VIDEO: One family’s story. Every Sanfilippo family’s reality.
Has your child been diagnosed with Sanfilippo? We are here to help.
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With your support, we are writing the next chapter on Sanfilippo Syndrome. The chapter of the cure for this childhood dementia. Every project we architect or fund gets families closer to a cure in this lifetime. GreenArrowDivider $12.5 million raised since 2013 GreenArrowDivider Medical & scientific expertise GreenArrowDivider 35+ research projects funded GreenArrowDivider Multiple clinical trials funded
HOW YOU CAN HELP

DONATE

Find the donation option that fits you

FUNDRAISE

Easily create and host your own online fundraiser

TELL OTHERS

Make a difference by telling others about Sanfilippo
YOUR SUPPORT HELPS FIND A CURE
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HOW YOU CAN HELP

DONATE

Find the donation option that fits you

FUNDRAISE

Easily create and host your own online fundraiser

TELL OTHERS

Make a difference by telling others about Sanfilippo
MEET THE FAMILIES
    OUR MISSION
    The name says it all: To cure Sanfilippo.

    By advocating for and funding research directed towards a cure and treatment options.

    FUNDRAISING GOAL

    The Foundation’s focus in 2022: funding the most-promising research and elevating the voices of caregivers in pursuit of a cure for Sanfilippo syndrome.

    Fundraising is critical fuel for these goals. Our goal is to raise $2,000,000 in 2022. We need your help to get there. Every single donation makes a difference.

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    LATEST NEWS
    @curesanfilippo I believe. In honor of my daughter Eliza & all children with Sanfilippo ❤ #tiktokforacure #workyourmagic #curesanfilippo ♬ original sound - curesanfilippo

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