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Every parent dreams about their kid’s future and watching it unfold.

Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.

Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.

Help save children.

VIDEO: One Family’s Sanfilippo Story
And the reality for every family living with Sanfilippo Syndrome.

Cure Sanfilippo Foundation logo

We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure. Every project we architect or fund gets families closer to a cure in this lifetime.

Green arrow bullet $10 million raised since 2013

Green arrow bullet 15,000 children globally

Green arrow bullet 30+ research projects funded

Green arrow bullet 90+ partner families
Green arrow bullet 3 clinical trials funded
Green arrow bullet Medical & scientific expertise
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WHAT IS
SANFILIPPO

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MEET THE
FAMILIES

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DONATE

Accelerating research to cure Sanfilippo Syndrome and save children
Give children with Sanfilippo a chance at life. Let parents watch their children grow up.

A cure can’t wait.

Every parent dreams about their child’s future and watching it unfold.

Sanfilippo Syndrome
takes that all away.

Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease that causes children lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die. All before their parents eyes.

Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.

Help save children

VIDEO: One family’s story.
Every Sanfilippo family’s reality.

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With your support, we are writing the next chapter on Sanfilippo Syndrome.

The chapter of the cure.

Every project we architect or fund gets families closer to a cure in this lifetime.

GreenArrowDivider $10 million raised since 2013

GreenArrowDivider Medical & scientific expertise

GreenArrowDivider 30+ research projects funded

GreenArrowDivider Multiple clinical trials funded

HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

YOUR SUPPORT HELPS FIND A CURE

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HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

MEET THE
FAMILIES

    OUR MISSION

    The name says it all:
    To cure Sanfilippo.

    By advocating for and funding research directed towards a cure and treatment options.

    FUNDRAISING GOAL

    The Foundation’s focus in 2021 is funding the most-promising research and elevating the voices of caregivers in pursuit of a cure for Sanfilippo syndrome.

    Fundraising is critical fuel for those goals. Our goal is to raise $2,000,000 in 2021. We need your help to get there, especially in these turbulent times.

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    LATEST NEWS

    Family Friday Blog: The Sink Family

    Get to know the Sink family – John, Katharine, Declan, and Zane!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Sink family's honest and insightful perspective. The...

    read more