Every parent dreams about their kid’s future and watching it unfold.
Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.
Be a part of changing fate.
A donation is all it takes.
We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure. Every project we architect or fund gets families closer to a cure in this lifetime.
$8.5 million raised since 2013
15,000 children globally 20+ research projects funded
80+ partner families 2 medical trials funded Medical & scientific expertise
WHAT IS
SANFILIPPO
MEET THE
FAMILIES
DONATE
CHANGES
EVERYTHING
SAVE CHILDREN’S LIVES.
HELP CURE SANFILIPPO.
Every parent dreams about their child’s future and watching it unfold.
Sanfilippo Syndrome
takes that all away.
Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease that causes children lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die. All before their parents eyes.
Your donation helps funds research to accelerate discovery of a cure, so parents can dream of their children’s futures again.
Be a part of changing fate.
Your donation makes it happen.
VIDEO: One family’s story.
Every Sanfilippo family’s reality.
With your support, we are writing the next chapter on Sanfilippo Syndrome.
The chapter of the cure.
Every project we architect or fund gets families closer to a cure in this lifetime.
$8.5 million raised since 2013
Medical & scientific expertise
20+ research projects funded
Multiple clinical trials fundedHOW YOU CAN HELP
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
YOUR SUPPORT HELPS FIND A CURE
HOW YOU CAN HELP
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
MEET THE
FAMILIES
OUR MISSION
The name says it all:
To cure Sanfilippo.
By advocating for and funding research directed towards a cure and treatment options.
FUNDRAISING GOAL
Pursuing every angle to cure Sanfilippo Syndrome in this lifetime takes significant financial fuel.
Our goal is to raise $2,000,000 in 2020. But we need your help to get there, especially in these turbulent times.
LATEST NEWS
‘Watch and wait’ approach to developmental delays is not acceptable anymore, says Dr. Cara O’Neill
Dr. Cara O'Neill, Chief Science Officer for Cure Sanfilippo Foundation, is also mother to a 10-year-old daughter with Sanfilippo Syndrome. She urged that the traditional "watch and wait" approach by physicians when a child first exhibits developmental delays is not...
“I’ll do anything for my child” is pushed to the limits by Sanfilippo parents
Like every parent, Carrie and Caleb will do anything for their children. Which has led them to facing their fear of heights in order to raise funding for research to cure Sanfilippo Syndrome, which affects their youngest daughter Haidyn. Carrie and Caleb decided to...
Support from fellow siblings of children with Sanfilippo and other disorders
Grey Chapin has carried a heavy load in her young life. Her older sister Blair died of Sanfilippo Syndrome, a terminal neurodegenerative genetic disorder, at 15-years-old in 2017 when Grey was in middle school. Grey chooses to honors her sister by helping other...
RAISE AWARENESS: WEAR OUR GEAR
