Every parent dreams about their kid’s future and watching it unfold.

Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.

Be a part of changing fate.
A donation is all it takes.

VIDEO:
One family’s story, every family’s reality

We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure. Every project we architect or fund gets families closer to a cure in this lifetime.

$8.5 million raised since 2013

15,000 children globally

20+ research projects funded

80+ partner families

2 medical trials funded
Medical & scientific expertise

WHAT IS
SANFILIPPO

MEET THE
FAMILIES

DONATE

A CURE
CHANGES
EVERYTHING

SAVE CHILDREN’S LIVES.
HELP CURE SANFILIPPO.

Every parent dreams about their child’s future and watching it unfold.

Sanfilippo Syndrome
takes that all away.

Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease that causes children lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die. All before their parents eyes.

Your donation helps funds research to accelerate discovery of a cure, so parents can dream of their children’s futures again.

Be a part of changing fate.
Your donation makes it happen.

VIDEO: One family’s story.
Every Sanfilippo family’s reality.

With your support, we are writing the next chapter on Sanfilippo Syndrome.

The chapter of the cure.

Every project we architect or fund gets families closer to a cure in this lifetime.

GreenArrowDivider $8.5 million raised since 2013
GreenArrowDivider Medical & scientific expertise
GreenArrowDivider 20+ research projects funded
GreenArrowDivider Multiple clinical trials funded

HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

YOUR SUPPORT HELPS FIND A CURE

HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

MEET THE
FAMILIES

OUR MISSION

The name says it all:
To cure Sanfilippo.

By advocating for and funding research directed towards a cure and treatment options.

FUNDRAISING GOAL

Pursuing every angle to cure Sanfilippo Syndrome in this lifetime takes significant financial fuel. Our goal is to raise $2,000,000 in 2020. But we need your help to get there.

2000000
520000

LATEST NEWS

Foundation Update | New Project & Progress – May 2020

This spring hasn’t been easy for anyone. But many generous people have made it a little less stressful for families of children with Sanfilippo Syndrome (MPS III). People's support of and generosity to Cure Sanfilippo Foundation have been the rainbow in a storm of...

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Cure Sanfilippo funds $380,000 for first MPS IIIC gene therapy

Cure Sanfilippo Foundation funds $380,000 to Phoenix Nest Inc. to support path to first-ever MPS IIIC Gene Therapy COLUMBIA, SC (May 15, 2020) — Cure Sanfilippo Foundation is thrilled to announce funding of $380,000 to the New York-based biotechnology company Phoenix...

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