Every parent dreams about their kid’s future and watching it unfold.

Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.

Be a part of changing fate.
A donation is all it takes.

VIDEO: One Family’s Sanfilippo Story And the reality for every family living with Sanfilippo Syndrome.
Cure Sanfilippo Foundation logo

We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure. Every project we architect or fund gets families closer to a cure in this lifetime.

Green arrow bullet $8.5 million raised since 2013

Green arrow bullet 15,000 children globally

Green arrow bullet 20+ research projects funded

Green arrow bullet 80+ partner families

Green arrow bullet 2 medical trials funded
Green arrow bullet Medical & scientific expertise

WHAT IS
SANFILIPPO

MEET THE
FAMILIES

DONATE

A CURE
CHANGES
EVERYTHING

SAVE CHILDREN’S LIVES.
HELP CURE SANFILIPPO.

Every parent dreams about their child’s future and watching it unfold.

Sanfilippo Syndrome
takes that all away.

Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease that causes children lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die. All before their parents eyes.

Your donation helps funds research to accelerate discovery of a cure, so parents can dream of their children’s futures again.

Be a part of changing fate.
Your donation makes it happen.

VIDEO: One family’s story.
Every Sanfilippo family’s reality.

With your support, we are writing the next chapter on Sanfilippo Syndrome.

The chapter of the cure.

Every project we architect or fund gets families closer to a cure in this lifetime.

GreenArrowDivider $8.5 million raised since 2013 GreenArrowDivider Medical & scientific expertise GreenArrowDivider 20+ research projects funded GreenArrowDivider Multiple clinical trials funded

HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

YOUR SUPPORT HELPS FIND A CURE

HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

MEET THE
FAMILIES

    OUR MISSION

    The name says it all:
    To cure Sanfilippo.

    By advocating for and funding research directed towards a cure and treatment options.

    FUNDRAISING GOAL

    The Foundation’s focus in 2021 is funding the most-promising research and elevating the voices of caregivers in pursuit of a cure for Sanfilippo syndrome.

    Fundraising is critical fuel for those goals. Our goal is to raise $2,000,000 in 2021. We need your help to get there, especially in these turbulent times.

    2000000
    150000

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