Every parent dreams about their kid’s future and watching it unfold.
Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.
Be a part of changing fate.
A donation is all it takes.

We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure. Every project we architect or fund gets families closer to a cure in this lifetime.
$8.5 million raised since 2013

20+ research projects funded



Every parent dreams about their child’s future and watching it unfold.
Sanfilippo Syndrome
takes that all away.
Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease that causes children lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die. All before their parents eyes.
Your donation helps funds research to accelerate discovery of a cure, so parents can dream of their children’s futures again.
Be a part of changing fate.
Your donation makes it happen.
VIDEO: One family’s story.
Every Sanfilippo family’s reality.

With your support, we are writing the next chapter on Sanfilippo Syndrome.
The chapter of the cure.
Every project we architect or fund gets families closer to a cure in this lifetime.




HOW YOU CAN HELP
YOUR SUPPORT HELPS FIND A CURE
HOW YOU CAN HELP
MEET THE
FAMILIES
OUR MISSION
The name says it all:
To cure Sanfilippo.
By advocating for and funding research directed towards a cure and treatment options.
FUNDRAISING GOAL
Pursuing every angle to cure Sanfilippo Syndrome in this lifetime takes significant financial fuel.
Our goal is to raise $2,000,000 in 2020. But we need your help to get there, especially in these turbulent times.
LATEST NEWS
WORLDSymposium 2021 is free for patients and families to attend; Cure Sanfilippo presenting
Jan 15, 2021
What is WORLDSymposium 2021 The WORLDSymposium 2021 conference, being held virtually Feb. 8-12, for lysosomal storage diseases is free for patients and patients families to attend. "This is the conference where most of the scientists and researchers in the field of...
Nov. 16 officially recognized as Sanfilippo Awareness Day in Ohio
Jan 7, 2021
On Jan. 6, 2020, Ohio Governor Mike DeWine signed a bill that designates November 16 as Sanfilippo Awareness Day in the state. "It's amazing to know that Sanfilippo Syndrome is officially recognized by the state in its revised code and a day dedicated to awareness of...
Thankful for you; Looking back at 2020 and ahead into 2021
Jan 1, 2021
Our goal at the beginning of the year was to raise $2 million in 2020, to help further research and clinical trials for children with Sanfilippo Syndrome. But when the world shut down in March, it seemed so far away ... and honestly nearly impossible. But time and...
RAISE AWARENESS: WEAR OUR GEAR