Every parent dreams about their kid’s future and watching it unfold.
Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.
Be a part of changing fate.
A donation is all it takes.
We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure. Every project we architect or fund gets families closer to a cure in this lifetime.
$8.5 million raised since 2013
15,000 children globally 20+ research projects funded
80+ partner families 2 medical trials funded Medical & scientific expertise
WHAT IS
SANFILIPPO
MEET THE
FAMILIES
DONATE
CHANGES
EVERYTHING
SAVE CHILDREN’S LIVES.
HELP CURE SANFILIPPO.
Every parent dreams about their child’s future and watching it unfold.
Sanfilippo Syndrome
takes that all away.
Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease that causes children lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die. All before their parents eyes.
Your donation helps funds research to accelerate discovery of a cure, so parents can dream of their children’s futures again.
Be a part of changing fate.
Your donation makes it happen.
VIDEO: One family’s story.
Every Sanfilippo family’s reality.
With your support, we are writing the next chapter on Sanfilippo Syndrome.
The chapter of the cure.
Every project we architect or fund gets families closer to a cure in this lifetime.
$8.5 million raised since 2013
Medical & scientific expertise
20+ research projects funded
Multiple clinical trials fundedHOW YOU CAN HELP
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
YOUR SUPPORT HELPS FIND A CURE
HOW YOU CAN HELP
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
MEET THE
FAMILIES
OUR MISSION
The name says it all:
To cure Sanfilippo.
By advocating for and funding research directed towards a cure and treatment options.
FUNDRAISING GOAL
Pursuing every angle to cure Sanfilippo Syndrome in this lifetime takes significant financial fuel.
Our goal is to raise $2,000,000 in 2020. But we need your help to get there, especially in these turbulent times.
LATEST NEWS
Peer-reviewed publication of first-ever Caregiver Preference Study on Sanfilippo
The first peer-reviewed publication of the Sanfilippo Caregiver Preference Study was released in December 2020 in Neurology and Therapy. This is the first-ever Caregiver Preference Study regarding Sanfilippo Syndrome, which explores what parents consider “meaningful...
Families are the foundation of the Foundation
Every inch of progress towards finding a treatment and/or cure for Sanfilippo Syndrome happens because of the individual families of children with this disease. Families fighting to change fate for their child and all the others. Cure Sanfilippo Foundation is honored...
A parent’s thoughts on a powerful day, World Sanfilippo Awareness Day
Today is a day that includes you You are more than just a donor to us. You are a cherished part of the Sanfilippo community, and today the community is celebrating World Sanfilippo Awareness Day! Today is dedicated to the power of spreading awareness and sparking...
RAISE AWARENESS: WEAR OUR GEAR
