Every parent dreams about their kid’s future and watching it unfold.
Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.
Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.
$20 million raised since 2013
15,000 children globally 35+ research projects funded 110+ partner families globally
3 clinical trials funded Medical & scientific expertise
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Every parent dreams about their child’s future and watching it unfold.
Sanfilippo Syndrome takes that all away.
Help save children
$12.5 million raised since 2013
Medical & scientific expertise
35+ research projects funded
Multiple clinical trials fundedDONATE
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FUNDRAISE
TELL OTHERS
By advocating for and funding research directed towards a cure and treatment options.
The Foundation’s focus in 2022: funding the most-promising research and elevating the voices of caregivers in pursuit of a cure for Sanfilippo syndrome.
Fundraising is critical fuel for these goals. Our goal is to raise $2,000,000 in 2022. We need your help to get there. Every single donation makes a difference.
Saving Liv video raises $100,000+ in first 36 hours; gathering media attention
Liv's parents give thanks for support of "Saving Liv" Olivia Stoop's parents are on a quest: To raise $1 million for research that can lead to a clinical trial that could save their 3-year-old daughter's life. On Saturday, Olivia's third birthday, they launched a...
Saving Liv: Parents hope viral video will save their 3-year-old daughter from Sanfilippo Syndrome
[COLUMBIA, SC] - Today is Olivia “Liv” Stoop’s third birthday. Her “golden birthday.” Her parents Erin and Tyler should be spending today celebrating this precious milestone with cake and presents. Instead, they are launching a social campaign they hope will save...
Podcast Episode 12: New Sanfilippo drug repurposing clinical trial; updates on other research + more
The Foundation's "A Close Look at Sanfilippo" podcast spends 10 minutes diving into five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In podcast episode 12, president and co-founder of...
@curesanfilippo I believe. In honor of my daughter Eliza & all children with Sanfilippo ❤ #tiktokforacure #workyourmagic #curesanfilippo ♬ original sound - curesanfilippo
