Every parent dreams about their kid’s future and watching it unfold.
Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.
Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.
And the reality for every family living with Sanfilippo Syndrome.
$20 million raised since 2013
15,000 children globally 50+ research projects funded
120+ partner families globally
3 clinical trials funded Medical & scientific expertise
SANFILIPPO
MEET THE
FAMILIES
DONATE
Accelerating research to find a cure for children with Sanfilippo Syndrome
Every parent dreams about their child’s future and watching it unfold.
Sanfilippo Syndrome
takes that all away.
Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome, so parents can dream of their children’s futures again.
Help save children
Every Sanfilippo family’s reality.
We are here to help.
With your support, we are writing the next chapter on Sanfilippo Syndrome.
The chapter of the cure for this childhood dementia.
Every project we architect or fund gets families closer to a cure in this lifetime.
-> $20 million raised since 2013
-> Medical & scientific expertise
-> 50+ research projects funded
-> Multiple clinical trials funded
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
FAMILIES
To cure Sanfilippo.
By advocating for and funding research directed towards a cure and treatment options.
The Foundation’s focus in 2023: funding the most-promising research and elevating the voices of caregivers in pursuit of a cure for Sanfilippo Syndrome.
Fundraising is critical fuel for these goals. Our goal is to raise $2,500,000 in 2023. We need your help to get there. Every single donation makes a difference.
With more work, research, and clinical trials, we know [a therapy] is coming
Opening ADVANCE 2023, Glenn O'Neill, President & Co-Founder of Cure Sanfilippo Foundation, shared the following remarks with the audience of more than 370 parents, researchers, clinicians, therapists, educators, and more, reviewing the 10-years of the Foundation...
ADVANCE 2023 recordings; watch at your convenience
Recorded Sessions Available for On-Demand Replay The virtual ADVANCE 2023, a Sanfilippo Community Conference, held August 29-30, 2023, is a forum for education, scientific presentations, networking, and community building that brought together families and caregivers,...
Family Friday 2023: The Hooks Family
Hear directly from the Hooks family – Parents Cory and Jamie, Trenton (age 17, Type A), and siblings Treyven and Tyson!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for...
