Every parent dreams about their kid’s future and watching it unfold.
Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.
Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.
And the reality for every family living with Sanfilippo Syndrome.
$20 million raised since 2013
15,000 children globally 35+ research projects funded 110+ partner families globally
3 clinical trials funded Medical & scientific expertise
SANFILIPPO
MEET THE
FAMILIES
DONATE
Every parent dreams about their child’s future and watching it unfold.
Sanfilippo Syndrome
takes that all away.
Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome, so parents can dream of their children’s futures again.
Help save children
Every Sanfilippo family’s reality.
We are here to help.
With your support, we are writing the next chapter on Sanfilippo Syndrome.
The chapter of the cure for this childhood dementia.
Every project we architect or fund gets families closer to a cure in this lifetime.
-> $20 million raised since 2013
-> Medical & scientific expertise
-> 35+ research projects funded
-> Multiple clinical trials funded
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
DONATE
Find the
donation option
that fits you
FUNDRAISE
Easily create
and host your own
online fundraiser
TELL OTHERS
Make a difference
by telling others
about Sanfilippo
FAMILIES
To cure Sanfilippo.
By advocating for and funding research directed towards a cure and treatment options.
The Foundation’s focus in 2023: funding the most-promising research and elevating the voices of caregivers in pursuit of a cure for Sanfilippo Syndrome.
Fundraising is critical fuel for these goals. Our goal is to raise $2,500,000 in 2023. We need your help to get there. Every single donation makes a difference.
Denali announces plans to submit IND for ERT therapy DNL126 for Sanfilippo based on preclinical data
In a Feb. 22 press statement, Denali Therapeutics, based in San Francisco, California, announced it plans to seek Investigational New Drug (IND) approval from the U.S. Food and Drug Administration (FDA) for its enzyme-replacement therapy (ERT) DNL126 designed for...
Packed days for Foundation leaders attending WORLDSymposium 2023, including presenting
Page reviewed by: Dr. Cara O'Neill, FAAPPage last updated: March 14, 2023For web accessibility options: Click/tap the floating blue icon on the right. Leaders of Cure Sanfilippo Foundation were once again busy during WORLDSymposium 2023. The six-day international...
WILLPower team raises nearly $50,000 in 2023 The Woodlands Marathon Charity Challenge
It's been 8 years since Valerie and Tim Byers learned that their young son had Sanfilippo Syndrome. Since then, they have ... Among their amazing annual fundraising efforts is leading the WILLPower marathon and fundraising team during the annual The Woodlands...
@curesanfilippo I believe. In honor of my daughter Eliza & all children with Sanfilippo ❤ #tiktokforacure #workyourmagic #curesanfilippo ♬ original sound - curesanfilippo
