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May 2022

Help Simon Chipotle Fundraiser | May 18, 2022 – Austin, TX

May 18 @ 4:00 pm - 8:00 pm

Make dinner a selfless act by joining us for a fundraiser to support Cure Sanfilippo Foundation and Help Simon. Come in to the "Help Simon" Chipotle fundraiser at 1920 East Riverside Drive location in Austin, Texas, on May 18th between 4:00 pm and 8:00 pm. Bring in the flyer below, show it on your smartphone, or tell the cashier you’re supporting the cause to make sure that 33% of the proceeds will be donated to Cure Sanfilippo Foundation.

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Believe in G Golf Tournament | May 20, 2022 – Eureka, MO

May 20 @ 8:00 am - 5:00 pm
Pevely Farm Golf Club, 400 Lewis Rd
Eureka, MO 63025 United States
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Gianna, was diagnosed with Sanfilippo Syndrome in June 2021. Her family is heartbroken, but is "fighting the big fight."The family's 2022 "Believe in G" Golf Tournament, the inaugural one, will be held on Friday, May 20, 2022, at Pevely Farms Golf Club in Eureka, MO. In a message her family posted to Facebook: one of the 𝑤𝑜𝑟𝑠𝑡 childhood diseases out there, and currently there is no cure. Gianna is one of 70,000 children diagnosed with this devastating disease. We need funding.…

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Believe in G Golf Tournament | May 20, 2022 – Eureka, MO

May 20 @ 11:30 am - 8:00 pm
Pevely Farms Golf Club, 400 Lewis Rd
Eureka, MO 63025 United States
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Come enjoy a four-person scramble at the 2022 Believe In G Golf Tournament on May 20 at the Pevely Farms Golf Club and Crescent Farms Golf Club in Eureka, MO. Yes, this event is so large it needs TWO courses! What amazing support for Gianna, her family, and the fight to cure Sanfilippo Syndrome.Registration begins at 11:30 a.m., followed by lunch at 12:15 p.m. Golfers will begin with a shotgun start at 1:00 p.m. After the round, golfers will enjoy…

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June 2022

WILLPower Lemonade Stand 2022 | June 11, 2022 – Houston, TX

June 11 @ 9:00 am - 2:00 pm
Market Street, 9595 Six Pines Dr
The Woodlands, TX 77380 United States
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The family of Will Byers is hosting its annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 11, 2022. The lemonade fundraiser will be at Market Street in The Woodlands, TX. Come and enjoy cool drinks and sweet treats to help cure Sanfilippo.The lemonade stand annually raises money and awareness to fund treatment or a cure for Sanfilippo Syndrome. The Woodlands/Houston community has supported the Byers family's efforts over the years through donations and volunteer…

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November 2022

Giving Tuesday 2022 | Nov. 29, 2022 – Global

November 29

Everyone is vying to be the organization you might support on #GivingTuesday2020, thisglobal “day of giving.” We’ll be honest; we aren’t any different. And because we're rare, every donor and dollar matters. We’re hoping you’ll donate to Cure Sanfilippo Foundation tomorrow on Giving Tuesday.Why should you choose curing Sanfilippo Syndrome among all the great causes?Because your donation will help keep Connor playing basketball and soccer.Keep Oliver giving hugs to everyone he meets.Keep Eliza playing in the backyard.Keep Will eating the pie he loves.Same for the thousands of other children…

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