Loading Events

Upcoming Events

Events Search and Views Navigation

Event Views Navigation

May 2021

7th Annual Cure Sanfilippo Golf Outing | Rescheduled May 14, 2021 – Wilmington, DE

May 14 @ 8:00 am - 3:00 pm
Rock Manor Golf Club, 1319 Carruthers Ln
Wilmington, DE 19803 United States
+ Google Map

Folks in Wilmington, DE, will take to the greens for the rescheduled 7th Annual Cure Sanfilippo Golf Outing on Friday, May 14, 2021. The event at Rock Manor Golf Course benefits research to stop Sanfilippo Syndrome, a horrific and fatal disease in children. Despite the turbulent times, Sanfilippo Syndrome isn't stopping, so neither do we. Learn more about how the Foundation is accelerating research to find a treatment or cure. The outing will observe appropriate safety measures to keep all…

Find out more »

June 2021

WILLPower Lemonade Stand 2021 | June 12, 2021 – Houston, TX

June 12 @ 9:00 am - 1:00 pm
Market Street, 9595 Six Pines Dr
The Woodlands, TX 77380 United States
+ Google Map

The family of Will Byers is hosting its annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 12, 2021. The lemonade fundraiser will be at Market Street in The Woodlands, TX.The event will be observing personal safety measures for everyone's protection.The lemonade stand annually raise money and awareness to fund treatment or a cure for Sanfilippo Syndrome. The Woodlands/Houston community has supported the Byers family's efforts over the years through donations and volunteer efforts. Sanfilippo Syndrome…

Find out more »

TFW to Save Connor | June 12, 2021 – Downingtown, PA

June 12 @ 10:00 am - 12:00 pm
Academy Sports Complex, 3527 Lincoln Hwy E,
Thorndale, PA 19372 United States
+ Google Map

Training For Warriors Downingtown is headed Into The Roar to help Save Connor. Eric Mitchell of TFW Downingtown will be hosting a workout fundraiser to help fund the first-ever gene therapy clinical trial for Sanfilippo Syndrome Type C. Don't miss the "TFW to Save Connor" at The Academy Sport Complex on June 12, from 10:00 a.m. to 12:00 p.m.The event is in honor of Connor Dobbyn, who lives in the area.

Find out more »

Sale2Save 2021 | June 19, 2021 – Nationwide

June 19
Nationwide United States

Every year, families, friends, and supporters of Sanfilippo children host Sale2Save garage, lawn, lemonade, and bake sales around the country to support research to cure Sanfilippo Syndrome, a rare terminal children’s illness. Join us for the Sale2Save 2021 on Saturday, June 19.Nationwide events like these are powerful because of their scale. Think of it like this: if 20 people hold their own Sale2Save in their front yard and generate $500 each, that amounts to $10,000! Image if it’s 50 people…

Find out more »
+ Export Events