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January 2020

CycleBar Ride benefiting Connor Beats Sanfilippo, Jan 11, 2020

January 11, 2020 @ 10:00 am - 11:00 am
CycleBar Exton, 124 Woodcutter Street
Exton, PA 19341 United States
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Get your sweat on and help Connor Beat Sanfilippo by participating in a  private charity ride at CycleBar Exton on Saturday, Jan. 11.All funds raised will benefit Cure Sanfilippo Foundation and research and clinical trials to cure Sanfilippo Syndrome.Spots are limited. Get yourself registered today. Can't wait to see you there.

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March 2020

Levi’s 1st Annual Strike For a Cure Bowling Fundraiser

March 7, 2020 @ 11:00 am - 2:00 pm
New Berlin Ale House, 16000 W Cleveland Ave.
New Berlin, WI United States
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$20 – $25

You are invited to an afternoon of fun and bowling, plus raffles, 50/50, and silent auction, on Saturday, March 7, at the first annual Levi's Life, Love & Laughter's "Strike For a Cure" fundraiser, benefiting Cure Sanfilippo Foundation in honor of Levi Ormeroid. Levi was diagnosed with the rare disease Sanfilippo Syndrome (MPS III) in 2009, at the age of 10. Sanfilippo Syndrome currently has no cure or treatment, and most children die in their teens. At the age of 21,…

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April 2020

Connor Beats Sanfilippo 5K, Chester Springs, PA – April 19, 2020

April 19, 2020 @ 8:00 am - 11:00 am

Join supporters of Connor Beats Sanfilippo for a fun 5K race on Sunday, April 19, 2020, in Chester Springs, PA.Check back for additional information in the coming weeks and months. Learn more about Connor and his quest to beat Sanfilippo Syndrome.

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Cure Sanfilippo Foundation

501c3 non-profit
(Tax ID: 46-4322131)


P.O. Box 6901
Columbia, SC 29260