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Ocosta Jr/Sr High School “Support Ryler” | Sept. 29, 2023 – Westport, WA
Justin Strong, father of Ryler, who was diagnosed with Sanfilippo Syndrome in 2021, graduated from Ocasta High School in 2022. Learning of his son's diagnosis and the need for funding to support research to cure children like Ryler, the Ocasta Junior/Senior High School are supporting them during the upcoming varsity football game against North […]
World Sanfilippo Awareness Day – Nov. 16, 2023 | Worldwide
World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The […]
