Upcoming Events
WILLPower Lemonade Stand 2023 | June 10, 2023 – Houston, TX
The family of Will Byers is hosting its 8th annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 10, 2023. The WILLPower Lemonade Stand 2023 lemonade fundraiser will be at Market Street in The Woodlands, TX. Come and enjoy cool drinks and sweet treats to help cure Sanfilippo. The lemonade […]
2023 Porcaro Family Charities Golf Outing | Aug. 27, 2023 – Racine, WI
The 2023 Porcaro Family Charities golf outing at lovely Meadowbrook Country Club in Racine, WI, will benefit Olivia "Liv" Stoop and Cure Sanfilippo Foundation's mission to cure Sanfilippo Syndrome. This sixth annual event will again welcome 104 golfers for this 18-hole scramble and has sold out in past years. Not a golfer? There are so […]
World Sanfilippo Awareness Day – Nov. 16, 2023 | Worldwide
World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The […]
