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September 2020

Connor Beats Sanfilippo 5K | Sept. 20, 2020 – Chester Springs, PA

September 20 @ 8:00 am - 11:00 am
Chester Springs, PA Chester Springs, PA United States + Google Map

Join supporters of Connor Beats Sanfilippo for a fun 5K race on Sunday, Sept. 20, 2020, in Chester Springs, PA. This event was originally scheduled for April 19, but was been rescheduled due to the global pandemic. Check back for additional information in the coming weeks and months.  Learn more about Connor and his quest to beat Sanfilippo Syndrome.

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October 2020

Riding For Rylan Bike Rally | Oct. 3, 2020 – Silver Point, TN

October 3 @ 10:00 am - 3:00 pm
The Docks, 11555 Old Baxter Rd.
Silver Point, TN 38582 United States
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$25

Mark your calendars for the 2020 Riding For Rylan motorcycle rally on Oct. 3, 2020, at The Docks in Silver Point, TN. For several years riders in the Silver Point area have come together to support Rylan and his family through the battle with Sanfilippo Syndrome. They come out in an amazing display of support. Registration for riders begins at 10:00 a.m. and "Kick Stands Up" at 11:00 a.m. The rally will begin and end at The Docks. Lunch is included, following…

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3rd Annual “Drive to Cure Carson” Golf Tournament | Oct. 9, 2020 – O’Fallon, MO

October 9 @ 11:00 am - 7:00 pm
The Falls Golf Club, 1170 Turtle Creek Drive
O'Fallon, MO United States
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$150

Enjoy a day of golf that also does good at the 3rd annual "Drive to Cure Carson" Charity Golf Tournament benefiting Cure Sanfilippo Foundation on Oct. 9, 2020. Originally, the outing was scheduled for June 12, but was postponed until October because of COVID-19. All proceeds will go to the Foundation to help find a cure for Carson and all the children affected by Sanfilippo! $150/player gets you 18 holes of golf, lunch and banquet-style dinner, 5 drink tickets, mulligans…

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Step Up to Cure Sanfilippo Syndrome | Oct. 11, 2020 – Everywhere

October 11

You take thousands of steps every day. Chasing the kids. Walking the dog. Going up and down the stairs. Running into the store. Hustling around the kitchen making dinner. What if every step helped cure a disease that causes children to suffer and die? To save children like Connor, Eliza, Solomon, and Haidyn? They can on Sunday, Oct. 11! Put those daily steps to work with the Step Up to Cure Sanfilippo Syndrome, a one-day step challenge that raises funds…

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7th Annual Cure Sanfilippo Golf Outing | Oct. 16, 2020 – Wilmington, DE

October 16 @ 8:00 am - 3:00 pm
Rock Manor Golf Club, 1319 Carruthers Ln
Wilmington, DE 19803 United States
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Folks in Wilmington, DE, will take to the greens again for the 7th Annual Cure Sanfilippo Golf Outing on Friday, Oct. 16, 2020. The event at Rock Manor Golf Course benefits research to stop Sanfilippo Syndrome, a horrific and fatal disease in children. Despite the turbulent times, Sanfilippo Syndrome isn't stopping, so neither do we. Learn more about how the Foundation is accelerating research to find a treatment or cure. The outing will observe appropriate safety measures to keep all…

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