We Are Working To Cure Sanfilippo Syndrome.
Our mission is simple:
To advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo Syndrome.
About the Foundation
Explore how the Foundation began, who leads it, the families that partner with it, and the impact it has had since it was founded.
Cure Sanfilippo conducts and funds promising research, projects, and clinical trials. Learn more about our research efforts.
Together, a cure comes sooner. We collaborate with families, researchers, academic institutions, regulators, and bio-technology companies.
The more people who know about Sanfilippo, the more progress that happens to find a cure. So we help elevate awareness of Sanfilippo.
We set ambitious annual fundraising goals in order to fund research for every kind of Sanfilippo and to dictate and accelerate the pace of research.
Cure Sanfilippo connects families globally with the latest information on current research, as well as provides support for fundraising and caring for their children.
Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization
All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.
This is led by proactive families of children with Sanfilippo Syndrome and their supporters, who work tirelessly to change the fate and future for these children.
Donations may be tax-deductible.
Latest Foundation News
"Music therapy can be a useful form of treatment with multiple benefits for children with conditions such as MPS III or similar conditions," according to "Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case...
"Help Simon," a viral videao aiming to raise $1 million for two promising research pathways for Sanfilippo Syndrome Type B, has raised more than $50,000 since it's launch on World Sanfilippo Awareness Day last week, Nov. 16.Media Attention for Help Simon It has also...
Ealier this month, North Carolina Governor Roy Cooper signed critical legislation that updates the state's newborn screening program. Referred to as "RUSP alignment legislation," the new state law implements a three-year timeline in which the screening must begin for...
5-year-old boy’s phenomenal basketball potential will go unrealized unless a treatment is found for Sanfilippo Syndrome
Simon's family is using a viral video to fundraise for research that could lead to the first-ever approved therapy for Sanfilippo Columbia, SC (Nov. 16, 2021) - Simon Croke from Austin, TX, has been sinking baskets on his Little Tykes hoop like a pint-sized pro since...
Podcast Episode 8: BIG WEEK! World Sanfilippo Day & viral campaign; Trivia Gala; All Stripes; + more
The Nov. 15, 2021, episode of the Foundation's "A Close Look at Sanfilippo" podcast spends 10 minutes (and a little more in this episode) diving into five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no...
Mark your calendars for the 2021 Dodgeball Tournament for Rare Diseases. Family fun that helps find a cure to save children like Carson from Sanfilippo Syndrome and Louie from PCDH19.Proceeds from the 2021 Dodgeball Tournament for Rare Diseases will benefit Cure...
The NHL's Columbus Blue Jackets are dedicating their Friday, April 22, against the Ottawa Senators to Oliver Kelly and the fight to cure Sanfilippo Syndrome. By buying tickets through this special link, a portion of every game ticket benefits Cure Sanfilippo...