We Are Working To Cure Sanfilippo Syndrome.
Our mission is simple:
To advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo Syndrome.
About the Foundation
Explore how the Foundation began, who leads it, the families that partner with it, and the impact it has had since it was founded.
Cure Sanfilippo conducts and funds promising research, projects, and clinical trials. Learn more about our research efforts.
Together, a cure comes sooner. We collaborate with families, researchers, academic institutions, regulators, and bio-technology companies.
The more people who know about Sanfilippo, the more progress that happens to find a cure. So we help elevate awareness of Sanfilippo.
We set ambitious annual fundraising goals in order to fund research for every kind of Sanfilippo and to dictate and accelerate the pace of research.
Cure Sanfilippo connects families globally with the latest information on current research, as well as provides support for fundraising and caring for their children.
Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization
All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.
This is led by proactive families of children with Sanfilippo Syndrome and their supporters, who work tirelessly to change the fate and future for these children.
Donations may be tax-deductible.
Latest Foundation News
The American College of Medical Genetics and Genomics strongly recommends exome and genome sequencing as a first or second-tier test for children with developmental delay or intellectual disability that occurs by age 18, as well as those with congenital anomalies that...
Families seizing new opportunity to educate people about Sanfilippo TikTok has become a booming social media platform for people sharing all sorts of content, including families of children with Sanfilippo. Many families have grown significant followings as people...
The Sept. 7, 2021, episode of the Foundation's "A Close Look at Sanfilippo" podcast spends 10 minutes (and a little more in this episode) diving into five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no...
Get to know the Howard family – Chris, Amanda, Abby, Grace, and Blake!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Howard family's honest and insightful...
Inclusion is Awesome! Inclusion is powerful. Inclusion is beautiful. Inclusion is important. And the importance of inclusion extends beyond the children and families with Sanfilippo. It matters for everyone. Help tell the world about the importance of inclusion with...
Enjoy a day of golf that also does good at the 4th annual "Drive to Cure Carson" Charity Golf Tournament benefiting Cure Sanfilippo Foundation on Sept. 17, 2021. All proceeds will go to the Foundation to help find a cure for Carson and all the children affected by...
Don't miss a special and unique event on Monday, Sept. 20, 2021 at Estrella Tacos y Mas: Drag bingo to Save Connor!The event will be hosted by the great Andie Summers (of 92.5 XTU) and world-renowned drag queen OPHELIABAWDY. The night's fun is sure to knock your socks...
Each year, Spencer's Sprinters raise tens of thousands to help children with Sanfilippo Syndrome and Cure Sanfilippo Foundation! Even during a pandemic, the run team raised more than $15,000 last year.Team Spencer's Sprinters will take on the 2021 Genesis Battlegreen...
The NHL's Columbus Blue Jackets are dedicating their Friday, April 22, against the Ottawa Senators to Oliver Kelly and the fight to cure Sanfilippo Syndrome. By buying tickets through this special link, a portion of every game ticket benefits Cure Sanfilippo...