We Are Working To Cure Sanfilippo Syndrome.
Our mission is simple:
To advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo Syndrome.
About the Foundation
Explore how the Foundation began, who leads it, the families that partner with it, and the impact it has had since it was founded.
Cure Sanfilippo conducts and funds promising research, projects, and clinical trials. Learn more about our research efforts.
Together, a cure comes sooner. We collaborate with families, researchers, academic institutions, regulators, and bio-technology companies.
The more people who know about Sanfilippo, the more progress that happens to find a cure. So we help elevate awareness of Sanfilippo.
We set ambitious annual fundraising goals in order to fund research for every kind of Sanfilippo and to dictate and accelerate the pace of research.
Cure Sanfilippo connects families globally with the latest information on current research, as well as provides support for fundraising and caring for their children.
Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization
All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.
This is led by proactive families of children with Sanfilippo Syndrome and their supporters, who work tirelessly to change the fate and future for these children.
Donations may be tax-deductible.
Latest Foundation News
What is WORLDSymposium 2021 The WORLDSymposium 2021 conference, being held virtually Feb. 8-12, for lysosomal storage diseases is free for patients and patients families to attend. "This is the conference where most of the scientists and researchers in the field of...
On Jan. 6, 2020, Ohio Governor Mike DeWine signed a bill that designates November 16 as Sanfilippo Awareness Day in the state. "It's amazing to know that Sanfilippo Syndrome is officially recognized by the state in its revised code and a day dedicated to awareness of...
Our goal at the beginning of the year was to raise $2 million in 2020, to help further research and clinical trials for children with Sanfilippo Syndrome. But when the world shut down in March, it seemed so far away ... and honestly nearly impossible. But time and...
It's deep into the holiday season. And while this holiday season is unlike any others in our lifetime, it can still be a magical time of creating memories you'll cherish for years to come. Here four ways you can make memories this holiday season. 1. Make a recording...
We, at Cure Sanfilippo Foundation, are nearly speechless. $2 million in 2020 raised for research! Thank you to everyone who supported the Foundation's mission this year, especially partner families and supporters. Really incredible. And you ended the year with a...
The Maine Diner is taking its annual Blueberry Pancake Fundraiser to cure Sanfilippo Syndrome nationwide in 2021! In addition to all dine-in and takeout pancake sales on Jan. 28 (National Blueberry Pancake Day), every online shipping order of their frozen blueberry...
Friends, family, and supporters of Will Byers are again running The Woodlands Marathon 2021 on March 7 in Texas to raise awareness of and funds to cure Sanfilippo Syndrome. And the top fundraisers in the Charity Challenge earn EXTRA funds for their charities!And this...
Help raise critical funds for research and/or trials to help find a cure for Sanfilippo Syndrome by joining the 4th annual Abby's Alliance 5K 2021. It will be held March 20, 2021, in Memorial Park in Houston, TX, in honor of Abby Wallis. All money raised goes to the...