The power of being together.
Life with Sanfilippo Syndrome is unique. Very few people truly understand what you are going through. So when families of children with Sanfilippo get together, there’s an overwhelming feeling of understanding, togetherness, and love.
Because these moments are so valuable, the Foundation is coordinating and hosting local family gatherings around the country this year.
It’s comforting to spend time with others who understand life with Sanfilippo and can relate. It’s like we are all family. And these hours together provide an overwhelming feeling of togetherness and love.
Upcoming Family Gatherings
Houston, Texas – Date TBD
More information to come. Email Contact@CureSanfilippoFoundation.org to stay updated.
Minneapolis, Minnesota – Date TBD
More information to come. Email Contact@CureSanfilippoFoundation.org to stay updated.
Southern California – Date TBD
More information to come. Email Contact@CureSanfilippoFoundation.org to stay updated.
Earlier Family Gatherings
Orlando – February 2023
The inaugural family gathering was help in Orlando, Florida, at Coco Key Orlando. Eleven area families attending, some driving a few hours to attend. It was a wondeful day.
Would you like to help host a family gathering in your area?
If you would like to work with the Foundation to hold a gathering of local Sanfilippo families in your area, we would love to hear from you. We work with you to find an ideal location, inviting families, and logistical details.