You Can Fundraise

By raising funds, you are accelerating research so a cure is found sooner.

Every dollar makes a difference in the fight to cure Sanfilippo Syndrome. No matter how you do it, your fundraising is massively appreciated.

There is no right or wrong way to fundraise. People have done some pretty amazing and creative things to raise money to cure Sanfilippo Syndrome.

Big or small. In person or online. Every effort makes a difference.

Fundraising is easy at 1-2-3

Make the decision to help
You’ve made the big decision. Now decide what kind of fundraiser suits your talents, interests, and ambition. Is that online or in person?
Create your fundraiser
Getting started for an online campaign only takes a few clicks. Creating in-person fundraiser takes some organization and planning.
Tell your friends & family
You are doing something amazing, and your friends and family will want to help you succeed. Make sure to ask them for support.

You can do anything to raise money

For your inspiration, these are some campaigns that have helped make a difference. Each and every one is important and gives the parents of children with Sanfilippo Syndrome hope.


Nationwide Lemonade Stands

Families around the world hosted lemonade stands and yard sales with proceeds benefiting research for a cure.

Raised $15,000

Declan’s Dino Dash 5K

A creative and child-friendly twist of the traditional 5K fundraiser. And what better way to honor a young man who loves dinosaurs?

Raised $20,000

“Cure Oliver” T-Shirt Sales

Friends of Oliver’s family covered the expense of “Cure Oliver” shirts so every dollar of the sales benefited research for a cure.

Raised $1,200

Rome, NY, Gala for Spencer Smith

Annually, the community of Rome, NY, rallies around the family of Spencer and hosts an amazing gala.

Raised $74,000

How Would You Like to Fundraise?

Host An Event

Lemonade stand, bowling tournament, fundraising night at a local restaurant, and 5K. Sky’s the limit.

Start An Online Fundraiser

Options about for how you can fundraise through online channels. The most-popular method is a peer-to-peer campaign via a Facebook fundraiser or a crowdfunding campaign through the Foundation’s platform.

Join An Existing Online Fundraiser

Be a part of fundraisers that are already underway and lend your support.

Pledge Your Birthday

Make it your most memorable and meaningful birthday yet. Instead of gifts, ask for donations on your birthday. And we make it easy.