Join a Fundraiser That’s Happening

Take helping children to another level

Thank you for being interested in helping fundraise to help change fate for children with Sanfilippo syndrome. You are something special!

Check out the different fundraisers happening around the world to cure Sanfilippo and join in. Pick the fundraiser that suits your personal interests, abilities, and time. Big or small, it all makes a huge difference.

Join A Fundraiser

Find a fundraiser on behalf of the Foundation to suits your interests, abilities, and availability.

Step Up to Cure Sanfilippo Syndrome | Steps Challenge

Step Up to Cure Sanfilippo Syndrome | Steps Challenge

Oct. 16, 2021

Join people around the country dedicating their steps on Saturday, Oct. 16, to helping find a cure for Sanfilippo Syndrome.

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Spencer's Sprinters | Genesis Battlegreen Run

Spencer's Sprinters | Genesis Battlegreen Run

Nov. 7, 2021

Each year, a team of runners dedicate their Genesis Battlegreen Run to raising funds to help research to find a cure for children with Sanfilippo Syndrome.

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iStrive4Carson | Fitness Challenge

iStrive4Carson | Fitness Challenge

Jan. 1 to Dec. 31, 2021

You have wellness and fitness goals, big or small, for yourself. And it’s always easier when something special is motivating you. Let your 2021 fitness or wellness goals have more meaning than ever by committing them to help children with Sanfilippo Syndrome.

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Fight to Cure Type C

Fight to Cure Type C

Ongoing

Specifically focused on funding a first-ever gene therapy clinical trial for Sanfilippo Type C.

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A Cure Can't Wait | General Fundraising

A Cure Can't Wait | General Fundraising

Ongoing

Some things can wait for life to return to normal. But children with Sanfilippo Syndrome simply can’t. A cure can’t wait. Time is the one thing these children don’t have. Help ensure research to cure Sanfilippo continues uninterrupted

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Fundraise on Behalf a Family

You can also fundraise on behalf of a specific family. Join a family in fundraising to find a cure.

Abby Wallis

Abby Wallis

Support the Wallis family’s fight to cure Sanfilippo syndrome.

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Alex Koch

Alex Koch

Support the Koch family’s fight to cure Sanfilippo syndrome.

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Autumn Barber | All In For Autumn

Autumn Barber | All In For Autumn

Support the Barber family’s fight to cure Sanfilippo syndrome.

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Connor Dobbyn | Save Connor

Connor Dobbyn | Save Connor

Support the family of Connor Dobbyn in their fight to cure Sanfilippo syndrome and save Connor.

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Kiernan O'Neal | Kiernan KOs Sanfilippo

Kiernan O'Neal | Kiernan KOs Sanfilippo

Support the O’Neal family’s fight to knock out Sanfilippo.

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Logan McManus | Logan's Legacy

Logan McManus | Logan's Legacy

Support the McManus family’s fight to cure Sanfilippo syndrome. It’s Logan’s Leacy.

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Oliver Kelly | For Oliver's Tomorrow

Oliver Kelly | For Oliver's Tomorrow

Support the Kelly family’s fight to cure Sanfilippo syndrome for Oliver’s tomorrow.

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Reagan McKenzie | Rallying for Reagan

Reagan McKenzie | Rallying for Reagan

Support the McKenzie family’s fight to cure Sanfilippo syndrome.

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Sadie Haywood | Saving Sadie

Sadie Haywood | Saving Sadie

Support the Haywood family’s fight to cure Sanfilippo syndrome and save Sadie.

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Will Byers | WILLPower

Will Byers | WILLPower

Support the Byers family’s fight to cure Sanfilippo syndrome with WILLPower.

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If the family you are looking for isn’t listed yet, you can still fundraise in their honor.

Have Something Else In Mind?

If you don’t see what you have in mind reach out to us. We love collaborating with families and supporters on new ideas. Reach out to us.