You Can Spread Awareness

Never underestimate the power of simply telling others.

“I’ve never even heard of that!” That’s usually the response when people hear about Sanfilippo Syndrome for the first time. They are shocked that something so devastating for children and their families exists.

Awareness is the only way progress to find a treatment or cure happens. Awareness fuels fundraising, which fuels the future-changing research.

And you are the key.

Just the act of telling others about the fight to help children with Sanfilippo Syndrome makes a difference. It brings attention to this cause.

People often want to help when they hear about Sanfilippo Syndrome. And it all starts because someone told them about it.

How You Can Spread Awareness

Share on Social

Posting about the mission to end Sanfilippo Syndrome on your social media accounts is a great way to spread awareness.

Sharing the “Saving Eliza” video is a quick and easy way to tell the story.

Follow Us on Social (and Share Our Posts)

Wear Our Gear

An easy way to spread awareness is wearing gear from the Foundation’s online store. Find shirts and accessories that attract people’s attention. Cool stuff that spreads awareness and benefits the Foundation.

Inclusion in Special Occasions

Special occasions present an opportunity to creatively raise awareness about helping children with Sanfilippo Syndrome.


Couples have shared with guests that in lieu of wedding favors that a donation has been made to the Foundation to help find a cure for Sanfilippo Syndrome.

Halloween Reverse Trick-or-Treat

Include a small informational piece about the fight to cure Sanfilippo Syndrome with the candy you hand out for trick-or-treat.