Privacy Policy

Our Commitment to Protecting Your Privacy

Cure Sanfilippo Syndrome respects the privacy of every visitor to our website. Your privacy is of the utmost importance and we go to great lengths to protect it.

This Privacy Policy describes how we collect and use information about online visitors.

This Policy applies to all “Cure Sanfilippo Foundation sites” – that is, all sites within the domain name. You should note that through this site, you may reach or be directed to other sites that related to UNICEF, such as or the sites of other related organizations; all these sites have their own privacy statements.

This Policy may be changed or updated from time to time. By visiting our website, utilizing our online donation and fundraising system, making a purchase from the online store, and/or registering for an event, you accept the practices described in this Policy.

The Data We Collect

Providing personal information on the Cure Sanfilippo Foundation website is optional. If you choose not to provide personal information, you can still browse and use the website. However, you will not be able to carry out certain transactions, such as making a donation, fundraising, registering for an event, purchasing items, or submitting an online form.

We collect information from you in various ways, such as:

  • When you supply personal information when using our website;
  • When you supply personal details in the course of making a donation;
  • When you order any merchandise; and/or
  • When you contact us with a question or issue.

The type of personal information we collect includes your name, e-mail address, physical address (home or work), phone number, and other personal details which you may choose to provide.

Such personal information is referred to in this Policy as “Personal Data.”

We also collect non-personal information about our online visitors using “cookies” and other technologies that operate automatically when you visit our website. We collect information about about your use of our website (for example, what pages you visited, what browser you used, the URL you came from). We use this information to give our website visitors a more relevant online experience and to help us make website improvements. The information helps us understand which parts of our websites are the most popular, where our online visitors are going, and how long they spend there. We do not store any personally identifiable information in the cookies.

How We Secure Your Personal Data

Any credit or debit card data you provide when making a donation and/or registering for an event is handled securely by Classy and its third-party payment processor. Any credit or debit card data you provide when making a purchase from the online store is handled securely by WooCommerce and its third-party payment processor. Cure Sanfilippo Foundation never stores your credit or debit card details.

We employ appropriate technical and organizational security measures to protect Personal Data from being accessed by unauthorized persons and against unlawful processing, accidental loss, destruction, and damage. We also take all reasonable steps to protect Personal Data from external threats. However, there are always inherent risks in sending information by public networks or using public computers and we cannot 100% guarantee the security of all data disclosed or transmitted to us.

How We Use Your Personal Data

We may use your Personal Data for the following purposes:

  • To provide you access to our website, as well as administering or developing website features or content;
  • For fundraising and/or direct marketing purposes. If you do not wish to receive these, you can contact us at to opt-out of mass e-mail communications.
  • To administer ongoing donations or purchases or to provide you support;
  • To provide you news about Cure Sanfilippo Foundation and its work, projects, campaigns, and/or events;
  • To respond to your inquiries;
  • To express appreciation for your support;
  • To “remember” your online profile and preferences;
  • For other forms of general contact; and/or
  • For statistical analysis.

Cure Sanfilippo Foundation does not sell, trade, or share your Personal Data with any other entity, except for the vendors that handle and process donation and online store transactions. These vendors are bound by strict confidentiality rules and are permitted to use the information only to support Cure Sanfilippo Foundation operations.

We also disclose information as required by law.

Data Retention

We will retain certain Personal Data in respect to financial transaction for at least as long as the law requires us for tax and accounting purposes. In respect to the holding of Personal Data for fundraising and direct marketing purposes, we will retain this data for an unlimited period of time.

We Believe In Doing The Right Thing

Your information belongs to you. At any time, you can cancel or modify your information by reaching out to or reaching out through the online “Contact Us” form.

For questions about this privacy policy, please contact us at