Science & Research News

What is Happening In Sanfilippo Research?

Stay up to date on the latest information regarding scientific aspects of Sanfilippo Syndrome and progress to find a treatment or cure.

Recent News

Foundation now accepting LOIs for Sanfilippo research funding

Cure Sanfilippo Foundation is now accepting Letters of Intent (LOI) for innovative research into Sanfilippo Syndrome (MPS III). Cure Sanfilippo Foundation seeks to support research that fills critical gaps in current knowledge across basic science, clinical care, and...

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Foundation crosses $1 million mark in 2020 fundraising

Cure Sanfilippo Foundation supporters have raised more than $1 million in 2020 so far, to fund research into Sanfilippo Syndrome! "When the World shut down in March, we knew we couldn't stop the time-sensitive mission to help children. But we didn't know what the...

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Other Sources of News

ClinicalTrials.gov

Immediately see when clinical trials for Sanfilippo Syndrome are listed and detailed information.

Sanfilippo News

A site that aggregates news about Sanfilippo Syndrome into a single location.

RARE Cast – Global Genes’ Podcast

Hosted by award-winning journalist Daniel Levine, RARE Cast focuses on the intersection of rare disease with business, science, and policy in a weekly podcast.