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Science & Research News

What is Happening In Sanfilippo Research?

Stay up to date on the latest information regarding scientific aspects of Sanfilippo Syndrome and progress to find a treatment or cure.

Recent News

Free online CME course available on Sanfilippo syndrome

A free, online, continuing medical education (CME) course is available for any healthcare provider interested in learning about Sanfilippo syndrome. The 30-minute course is targeted to healthcare providers who are unfamiliar with Sanfilippo, also known as...

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Lysogene shares report on LYS-SAF302 biomarker data

Lysogene shared the following press release regarding its LYS-SAF302 Biomarker Data. The results were first shared at WORLDSymposium 2021 in February.PRESS RELEASE Lysogene Reports LYS-SAF302 Biomarker Data Presented at the WORLDSymposium™ 2021 Evidence of positive...

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Other Sources of News

ClinicalTrials.gov

Immediately see when clinical trials for Sanfilippo Syndrome are listed and detailed information.

Sanfilippo News

A site that aggregates news about Sanfilippo Syndrome into a single location.

RARE Cast – Global Genes’ Podcast

Hosted by award-winning journalist Daniel Levine, RARE Cast focuses on the intersection of rare disease with business, science, and policy in a weekly podcast.