Science & Research News

What is Happening In Sanfilippo Research?

Stay up to date on the latest information regarding scientific aspects of Sanfilippo Syndrome and progress to find a treatment or cure.

Recent News

VIDEO: What Craig & Sara want to say to you

https://youtu.be/dOxewsJad4w This is Craig and Sara. Their beautiful son Carson is participating in a new clinical trial that your generosity made happen. This is their message to you. Your support enabled Cure Sanfilippo Foundation to build this clinical trial...

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Foundation Update | New Project & Progress – May 2020

This spring hasn’t been easy for anyone. But many generous people have made it a little less stressful for families of children with Sanfilippo Syndrome (MPS III). People's support of and generosity to Cure Sanfilippo Foundation have been the rainbow in a storm of...

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Other Sources of News

ClinicalTrials.gov

Immediately see when clinical trials for Sanfilippo Syndrome are listed and detailed information.

Sanfilippo News

A site that aggregates news about Sanfilippo Syndrome into a single location.

RARE Cast – Global Genes’ Podcast

Hosted by award-winning journalist Daniel Levine, RARE Cast focuses on the intersection of rare disease with business, science, and policy in a weekly podcast.