Life with Sanfilippo Syndrome is really hard.
As parents, you’re exhausted, physically and emotionally. And it takes a constant toll on you. Cure Sanfilippo Foundation want to help and this is an area of most importance that is often neglected … the personal health and well being of the parents and families of children with Sanfilippo Syndrome.
A first of its kind: the Aurora Program
Cure Sanfilippo Foundation’s Aurora Program is a group support program to help you and your family with grief processing and resilience building.
All sessions are led by a licensed counselor with expertise in grief processing, traumatic stress, and wellness building, as well as personal experience with supporting families of children with Sanfilippo Syndrome.
The Aurora Program isn’t just talking about your struggles and pain. It’s about navigating your emotional ups and downs, building resilience, and finding a healthy way through.
This ongoing, counselor-led, emotional support program provided by the Foundation to its partner families at no cost to them. This includes families outside the U.S. All sessions are in English, so comfort with conversational English is needed.
If you are interested in becoming a Foundation partner family, please reach out to Contact@CureSanfilippoFoundation.org.
Current Sessions
Open Group Sessions
Open Groups are bi-weekly and ongoing 90-minute virtual sessions suited for parents who would like to participate in Aurora group sessions, but without the expectation of regular attendance. Come every session, occasionally, or only on the days you feel like you need support. You choose what works best for your life.
Available Open Group Sessions
A one-time registration is necessary to participate in each specific open group simply so the appropriate consent is collected. You can register right now, minutes before the next session, or in several weeks when you feel ready. Once registered, you will receive an immediate confirmation email with the link to join. That link will remain the same for every session. You can also register for as many of the groups that you find useful to you.
The following Open Sessions are available.
- Dads’ Group
A dedicated group for Sanfilippo Dads, providing a space shaped around their unique ways of coping, sharing, and connecting.
Frequency: Every other Thursday, 8:00-9:30 p.m. ET
Register: https://us06web.zoom.us/meeting/register/5u5Uh6SnR9yfuXKrWLyMXA
- Daytime Open Group
A group session during school hours, available to all parents of children with Sanfilippo Syndrome.
Frequency: Every other Friday, 12:30-2:00 p.m. ET
Register: https://us06web.zoom.us/meeting/register/Y2cbd_e0Sm6Nopl10WrCOA
- Evening Open Group:
A group session during evening hours, available to all parents of children with Sanfilippo Syndrome
Frequency: Every other Monday, 6:30-8:00 p.m. ET
Register: https://us06web.zoom.us/meeting/register/zZ_WAEsCQhaCvyLuVrDpTg
Closed Group Sessions
The Aurora Program also includes “closed” counseling groups of 8-10 parents who meet virtually for 90 minutes, every other week (same day and time), for six months. Each Closed Group stays the same for the entire six months, so you build connections and continuity. At the end of six months, you may have the option to do another six-month closed group session.
The first Closed Group cohort began in October 2025. The second Closed Group cohort is began in early May 2026. If you are interested in participating in a future Closed Group cohort, please complete this interest form.
Calendar of All Aurora Group Sessions
Questions about the Aurora Program?
Do you have questions about participating in the Aurora Program’s group offerings? We invite you to reach out with your questions using the form below.