News and information on issues relevant to you as a parent, caregiver, and advocate of a child with Sanfilippo Syndrome.
News From the Foundation
Family Friday 2023: The Hooks Family
Hear directly from the Hooks family – Parents Cory and Jamie, Trenton (age 17, Type A), and siblings Treyven and Tyson!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for...
Recent scientific articles relevant to Sanfilippo Syndrome: June – July 2023, digest
Every week thousands of scientific articles on various topics are published. Here are some recent articles and abstracts that are relevant to understanding, managing, and/or treating Sanfilippo Syndrome (mucopolysaccharidosis III or MPS III) from June 2023 to July...
Family Friday 2023: The Nevins Family
Hear directly from the Nevins family – Parents Shannon and Jerad, Nathan (age 7, Type A), and sister Kennedy!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Funderburk Family
Hear directly from the Funderburk family – Parents Josh and Jess, Jolene (age 5, Type A), and brother Wyatt!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Jamison Family
Hear directly from the Jamison family – Parents John and Courtney, Harper (age 4, Type A), and sister Kianna!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Nash Family
Hear directly from the Nash family – Parents Brandon and Ashley, Kinley (age 7, Type A), and sister Presley!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Wallis Family
Hear directly from the Wallis family – Parents Jeff and Kelly, Abby (age 27, Type A), and sister Emily!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that...
Recent scientific articles relevant to Sanfilippo Syndrome: April – May 2023, digest
Every week thousands of scientific articles on various topics are published. Here are some recent articles and abstracts that are relevant to understanding, managing, and/or treating Sanfilippo Syndrome (mucopolysaccharidosis III or MPS III) from April 2023 to May...
Family Friday 2023: The Kelly Family
Hear directly from the Kelly family – Parents Brian and Jen, Oliver (age 8, Type A), and sister Reagan!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that...
Family Friday 2023: The Haywood Family
Hear directly from the Haywood family – Parents Ashley and Jason and Sadie (age 7, Type A)!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give...
Recent scientific articles relevant to Sanfilippo Syndrome: January – March 2023, digest
Every week thousands of scientific articles on various topics are published. Here are some recent articles and abstracts that are relevant to understanding, managing, and/or treating Sanfilippo Syndrome (mucopolysaccharidosis III or MPS III) from January 2023 to March...
Family Friday 2023: The Burroughs Family
Hear directly from the Burroughs family – Parents Sara and Craig, Carson (age 12, Type A), and his sisters Hannah and Addy!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations...
Jessica Haywood joins Cure Sanfilippo Foundation board
Jessica Haywood has joined the board for Cure Sanfilippo Foundation, bringing additional data analytics and social media expertise, strategic thinking, and the patient voice and lived experience of life with Sanfilippo Syndrome from a close relative’s perspective. “We...
Family Friday 2023: The Amos Family
Hear directly from the Amos family – Parents Kim and Ben, Liam (age 13, Type A) and Oliver (age 5, Type A), and brothers Tobey (Oliver’s twin) and Tucker!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can...
Family Friday 2023: The Sink Family
Hear directly from the Sink family – Parents Katharine and John, Declan, and his brother Zane!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give...
Family Friday 2023: The Barber Family
Hear directly from the Barber family – Parents Lauren and Sean, Autumn, and her brother Jack and sister Maya!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Chiara Family
Hear directly from the Chiara family – Parents Cecilia and Carlos, Maria, and her brothers Felipe and Enzo!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Baxter/Muma Family
Hear directly from the Baxter/Muma family – Blaine, Brittany, Ashton, and Paislee!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with...
Family Friday 2023: The Stoop Family
Hear directly from the Stoop family – Tyler, Erin, Olivia, and Liam!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo...
Family Friday 2023: The Esposito Family
Hear directly from the Esposito family – Dave, Elise, Keira, and Keaton!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo...
Other Sources of News
SanflippoNews.com