When parents get the diagnosis of Sanfilippo Syndrome, they immediately start searching for answers. For hope.
Cure Sanfilippo Foundation is often one of their first touch points in the journey. With us, they find themselves in the arms of fellow Sanfilippo parents who have become experts and provide real-time and up-to-date information, resources, and counsel as they consider their path forward. Every spark of hope is illuminated.
Parents consumed with caring for their Sanfilippo child often don’t have the resources to monitor disease research.
In us, they have a constantly vigilant advocate, sparking, contributing, monitoring, and reporting research and scientific developments. Additionally, the parents have a community for sharing and support, plus assistance, coordination, collaboration, and grassroots fundraising resources.
Offering such robust leadership, the Foundation has attracted a global community of Sanfilippo families.
For Parents of a Child With Sanfilippo
Together, we accomplish amazing things. We welcome all Sanfilippo families to join our Foundation’s fight to cure this disease.