Parent News

Families & friends fighting to ensure Sanfilippo research continues

We are so thankful for the many families who continue hosting events and fundraisers to support critical research -- especially early, novel and translational research -- that the Foundation funds, in addition to clinical trials. Here are several fundraisers that have...

Family Friday 2023: The Hooks Family

Hear directly from the Hooks family – Parents Cory and Jamie, Trenton (age 17, Type A), and siblings Treyven and Tyson!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for...

Family Friday 2023: The Nevins Family

Hear directly from the Nevins family – Parents Shannon and Jerad, Nathan (age 7, Type A), and sister Kennedy!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...

Family Friday 2023: The Funderburk Family

Hear directly from the Funderburk family – Parents Josh and Jess, Jolene (age 5, Type A), and brother Wyatt!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...

Family Friday 2023: The Jamison Family

Hear directly from the Jamison family – Parents John and Courtney, Harper (age 4, Type A), and sister Kianna!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...

Family Friday 2023: The Nash Family

Hear directly from the Nash family – Parents Brandon and Ashley, Kinley (age 7, Type A), and sister Presley!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...

Family Friday 2023: The Wallis Family

Hear directly from the Wallis family – Parents Jeff and Kelly, Abby (age 27, Type A), and sister Emily!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that...