Parent News

2020 Dino Dash 4 Declan 5K fundraiser enjoyed virtually

Even though the second annual Dino Dash 4 Declan wasn't able to happen as it did the year before, friends and supporters laced up their shoes to participate virtually. All in support of Declan and to find research to cure Sanfilippo Syndrome. Folks participated in the...

Foundation crosses $1 million mark in 2020 fundraising

Cure Sanfilippo Foundation supporters have raised more than $1 million in 2020 so far, to fund research into Sanfilippo Syndrome! "When the World shut down in March, we knew we couldn't stop the time-sensitive mission to help children. But we didn't know what the...

Could your daily steps help save children’s lives? 👟

You take thousands of steps every day. And those daily steps can help save children from Sanfilippo Syndrome and keep them walking, running, and smiling. Just by going about your typical day. Step Up To Cure Sanfilippo is a one-day steps fundraiser where people...

Global Genes’ RARE Cast podcast interviews Cara O’Neill

Dr. Cara O'Neill, Chief Science Officer for Cure Sanfilippo Foundation, discussed her own journey with Sanfilippo Syndrome, issues causing diagnostic delay, and how the Foundation is helping advance science for a cure in an interview as the Aug. 28 guest on Global...