Washington University School of Medicine (St. Louis, MO) has received nearly $8 million from the National Institute of Neurological Disorders and Stroke of the National Institutes of Health (NIH) to help determine the root causes of brain cell death in fatal pediatric...
Parent News
Families & friends fighting to ensure Sanfilippo research continues
We are so thankful for the many families who continue hosting events and fundraisers to support critical research -- especially early, novel and translational research -- that the Foundation funds, in addition to clinical trials. Here are several fundraisers that have...
Family Friday 2023: The Hooks Family
Hear directly from the Hooks family – Parents Cory and Jamie, Trenton (age 17, Type A), and siblings Treyven and Tyson!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for...
Recent scientific articles relevant to Sanfilippo Syndrome: June – July 2023, digest
Every week thousands of scientific articles on various topics are published. Here are some recent articles and abstracts that are relevant to understanding, managing, and/or treating Sanfilippo Syndrome (mucopolysaccharidosis III or MPS III) from June 2023 to July...
Family Friday 2023: The Nevins Family
Hear directly from the Nevins family – Parents Shannon and Jerad, Nathan (age 7, Type A), and sister Kennedy!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Funderburk Family
Hear directly from the Funderburk family – Parents Josh and Jess, Jolene (age 5, Type A), and brother Wyatt!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Jamison Family
Hear directly from the Jamison family – Parents John and Courtney, Harper (age 4, Type A), and sister Kianna!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Nash Family
Hear directly from the Nash family – Parents Brandon and Ashley, Kinley (age 7, Type A), and sister Presley!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...
Family Friday 2023: The Wallis Family
Hear directly from the Wallis family – Parents Jeff and Kelly, Abby (age 27, Type A), and sister Emily!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that...