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Press Release

Stories that give us hope: Ryan Dant and MPS I

The above story appeared earlier this week on The Today Show, which has helped raise awareness of many families battling rare diseases including Sanfilippo. Foundation President Glenn O'Neill shared the clip on Facebook with the following message:...

Help Simon update: New video sharing two miracles; one more needed

When Alina and Jeremy started sharing Simon’s story and his fight with Sanfilippo Syndrome, they hoped people would fall in love with Simon and want to help him have a chance at life. They never dreamed people would open their hearts to their entire family. When their...