Press Release

Nov. 16 officially recognized as Sanfilippo Awareness Day in Ohio

On Jan. 6, 2020, Ohio Governor Mike DeWine signed a bill that designates November 16 as Sanfilippo Awareness Day in the state. "It's amazing to know that Sanfilippo Syndrome is officially recognized by the state in its revised code and a day dedicated to awareness of...

Thankful for you; Looking back at 2020 and ahead into 2021

Our goal at the beginning of the year was to raise $2 million in 2020, to help further research and clinical trials for children with Sanfilippo Syndrome. But when the world shut down in March, it seemed so far away ... and honestly nearly impossible.  But time and...

4 ways to make memories this holiday season

It's deep into the holiday season. And while this holiday season is unlike any others in our lifetime, it can still be a magical time of creating memories you'll cherish for years to come. Here four ways you can make memories this holiday season. 1. Make a recording...

Families are the foundation of the Foundation

Every inch of progress towards finding a treatment and/or cure for Sanfilippo Syndrome happens because of the individual families of children with this disease. Families fighting to change fate for their child and all the others. Cure Sanfilippo Foundation is honored...