Press Release

Giving Tuesday 2023 raises $324,753 for Sanfilippo research

Giving Tuesday 2023 fundraising total ... $324,753 raised! Families of children with Sanfilippo Syndrome engaged their communities and personal networks around the country and world, joining Cure Sanfilippo Foundation in collectively fundraising $324,753 for research...

Families & friends fighting to ensure Sanfilippo research continues

We are so thankful for the many families who continue hosting events and fundraisers to support critical research -- especially early, novel and translational research -- that the Foundation funds, in addition to clinical trials. Here are several fundraisers that have...

ADVANCE 2023 recordings; watch at your convenience

Recorded Sessions Available for On-Demand Replay The virtual ADVANCE 2023, a Sanfilippo Community Conference, held August 29-30, 2023, is a forum for education, scientific presentations, networking, and community building that brought together families and caregivers,...

Family Friday 2023: The Hooks Family

Hear directly from the Hooks family – Parents Cory and Jamie, Trenton (age 17, Type A), and siblings Treyven and Tyson!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for...

Family Friday 2023: The Nevins Family

Hear directly from the Nevins family – Parents Shannon and Jerad, Nathan (age 7, Type A), and sister Kennedy!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research...