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Press Release

Stories that give us hope: Ryan Dant and MPS I

The above story appeared earlier this week on The Today Show, which has helped raise awareness of many families battling rare diseases including Sanfilippo. Foundation President Glenn O'Neill shared the clip on Facebook with the following message:...

Help Simon update: New video sharing two miracles; one more needed

When Alina and Jeremy started sharing Simon’s story and his fight with Sanfilippo Syndrome, they hoped people would fall in love with Simon and want to help him have a chance at life. They never dreamed people would open their hearts to their entire family. When their...

Sanfilippo research funding available from Foundation

Cure Sanfilippo Foundation now have three funding opportunities available for innovative research into Sanfilippo syndrome (MPS III). Cure Sanfilippo Foundation seeks to support research that fills critical gaps in current knowledge across basic science, clinical...

Replay of ADVANCE 2022, Sanfilippo conference, available on-demand

The virtual ADVANCE 2022, Sanfilippo Community Conference, July 7-8, 2022, brought together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children...