The world is grinding to a halt because of Coronavirus. Except for one thing that continues at the same pace ... time. And time is the greatest enemy to children with Sanfilippo Syndrome. Coronavirus is impacting the Sanfilippo community on a few crucial and...
Blog Article
Fun twist on ugly holiday sweater helps cure kids with Sanfilippo Syndrome
Does an ugly holiday sweater help you get into the seasonal spirit? How about one with unicorns! Better yet, this sweatshirt also helps find a cure for Sanfilippo Syndrome. So what are you waiting for? Grab what’s sure to be you and your kids’ favorite holiday shirts...
Dog mourning his human fights to change fate for other terminally-ill kids
Henry was just a puppy when he met the love of his life. Blair was bright eyed and dark haired, just like him, and they bonded instantly. “Constant companions” would be putting it lightly. So when things started to change for Blair because of Sanfilippo Syndrome,...
Sister Creates Online Haven for Other Siblings of Terminally-Ill Kids
A terminal diagnosis for a child upends the lives of the entire family. Often, people’s thoughts, sympathies, and prayers go to the child facing a shortened life and the parents left wrestling fate. But there’s another person(s) who is deeply impacted, one whose life...
Cure Sanfilippo Announces New VP of Marketing
Cure Sanfilippo Foundation is thrilled to announce that Katie Walton has accepted the position of Vice President of Marketing. Katie has been a key leader and volunteer for more than five years with the Foundation. Her expertise and insight has led to some of the core...
The Power In Rallying Your Community For Support
It can be a daunting task to ask for help from your community. Concerns range from how others will respond to you, to just being plain uncomfortable in saying that you need help, keeps so many people from reaching out to family, friends, and neighbors. However, we...
The Power of Rallying Your Community
It can be a daunting task to ask for help from your community. Concerns ranging from how others will respond to you to just being plain uncomfortable saying you need help keeps so many people from reaching out to family, friends, and neighbors. However, we have seen...
The Short Bus
Recently, I missed the opportunity to bring attention to someone who used a phrase that hurt me deeply. I hope to make that up here. I feel like I have a pretty thick skin, so was surprised myself at how much I was immediately affected. Let me explain:I was sitting at...