Hear directly from the Esposito family – Dave, Elise, Keira, and Keaton!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo...
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Family Friday 2023: The Laughlin Family
Hear directly from the Laughlin family – Shea, Erin, and Spencer!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo more...
Family Friday 2023: The Ulrich Family
Hear directly from the Ulrich family – Jericho, Christin, Elise, and Veda!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with...
Saving Liv: Parents hope viral video will save their 3-year-old daughter from Sanfilippo Syndrome
[COLUMBIA, SC] - Today is Olivia “Liv” Stoop’s third birthday. Her “golden birthday.” Her parents Erin and Tyler should be spending today celebrating this precious milestone with cake and presents. Instead, they are launching a social campaign they hope will save...
5-year-old boy’s phenomenal basketball potential will go unrealized unless a treatment is found for Sanfilippo Syndrome
Simon's family is using a viral video to fundraise for research that could lead to the first-ever approved therapy for Sanfilippo Columbia, SC (Nov. 16, 2021) - Simon Croke from Austin, TX, has been sinking baskets on his Little Tykes hoop like a pint-sized pro since...
Family Friday Blog: The Howard Family
Get to know the Howard family – Chris, Amanda, Abby, Grace, and Blake!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Howard family's honest and insightful...
Family Friday Blog: The Means Family
Get to know the Means family – Mike, Jen, Abigail and Sadie!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Means family's honest and insightful perspective. The...
Family Friday Blog: The Bergh-Hansen Family
Get to know the Bergh-Hansen family – Rasmus, Katrine, Molly, and Pelle!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Bergh-Hansen family's honest and insightful...
Family Friday Blog: The Pearson Family
Get to know the Pearson family – Bruce, Cybill, Simone, Joana, and Solomon! Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Pearson family's honest and insightful...