On Tuesday, Chive Charities kicked of a first-of-its-kind fundraiser to help Simon and other children with Sanfilippo Syndrome.
Chive Charities, a 501(c)3 organization, traditionally supports the direct needs of underserved veterans, military families, first responders, and people with rare medical diagnoses through life-changing grants and fundraisers. It helps individuals with life-altering or life-threatening needs, such as therapy and adaptive equipment.
After being introduced to Simon Croke (“Help Simon” campaign) and Sanfilippo Syndrome, Chive Charities decided to help not only Simon, but the larger community of children with Sanfilippo Syndrome by including Cure Sanfilippo Foundation.
Chive Charities created a flash fundraising with a $15,000 goal to benefit Simon’s immediate therapeutic and wellness needs. And the Chive community, called “Chivers,” are known for going well above and beyond fundraiser goals.
“Every dollar we donate buys Simon a little more time,” stated the Chive fundraiser.
The unfortunate bottomline: What Simon needs most is a cure. So Simon’s family generously asked that any funds beyond the $15,000 to benefit Cure Sanfilippo Foundation and the promising research it is funding. Chive was happy to comply, and this represents the first time Chive Charities has directly supported another nonprofit.
“It’s not our biggest goal, but it’s perhaps one of the most important campaigns we’ve ever launched here at theCHIVE and Chive Charities. A young life is on the line,” rallied the Chive flash fundraiser story.
Within hours of the campaign launching on April 27, the $15,000 goal was reached. And it has continued going, nearly doubling within 48 hours.
Additionally, the Croke’s received a $10,000 grant from Chive’s Green Ribbon Fund Donor for equine therapy, swim lessons, and yoga therapy for Simon.
To Chive Charities and all the Chivers, Foundation President Glenn O’Neill said, “Thank you all for the support and an incredible campaign. Helping Alina and family was so kind, and helping the research push is so helpful and appreciated. Thank you for putting Sanfilippo syndrome on the map with the Chive community.”
Simon’s mom Alina shared the excitment of the Chive fundraiser on their TikTok account @Simons_Shot.