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Launch of limited edition “Inclusion is Awesome” apparel line

September 2, 2021
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Inclusion is Awesome!

Inclusion is powerful. Inclusion is beautiful. Inclusion is important.

And the importance of inclusion extends beyond the children and families with Sanfilippo. It matters for everyone.

Help tell the world about the importance of inclusion with this “Inclusion is Awesome” limited edition of shirts, hats, and more from Cure Sanfilippo Foundation.

Wear your heart on your sleeve literally and silently spread the message that inclusion is the greatest kindness someone can bestow.

In addition to adult and kids shirts, short and long sleeved, the collection includes the following accessories:

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The Foundation hopes to run limited edition series a few times a year with fun designs that inspire and raise awareness. Additionally, the proceeds of every sale supports the Foundation’s mission to accelerate discovery of a treatment or cure for Sanfilippo Syndrome. The Inclusion is Awesome apparel line is the Foundation’s first series.

Special thanks to our models, the Lagarde family, one of the Foundation’s 100+ partner families. Sawyer is 7 and has Sanfilippo Type A. She lives in Minnesota with her parents Brittany and Sam and brother Zion.

What is Sanfilippo Syndrome?

Sanfilippo Syndrome is like Alzheimer’s, but in children. Sanfilippo Syndrome is a terminal, neurodegenerative disease that causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die.

Sanfilippo Syndrome is caused by a single gene defect which leads to lack of a necessary enzyme in the body. This lack of enzyme results in the build-up of toxic storage in every cell, and is especially harmful to the brain. This build-up causes a cascade of detrimental effects and ultimately death.

Currently there is no FDA-approved treatment or cure for Sanfilippo Syndrome.

How is Cure Sanfilippo Foundation helping fund a cure?

Cure Sanfilippo Foundation, a 501(c)3 non-profit (Tax ID 46-432131), leads in driving research to accelerate discovery of a cure for Sanfilippo Syndrome.

In just seven years, generous donors have enabled Cure Sanfilippo to generate more than $10 million through grassroots and viral fundraising to support and/or architect 30+ research projects globally. Read about them here.

The Foundation’s thought-leadership enables it to chart a progressive course to attaining and FDA-approved treatment or therapy.

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