Cure Sanfilippo advocates for open access to tax-funded researchCure Sanfilippo Foundation joined 72 other patient- and disease-advocacy organizations in voicing support for a strong national Open Access policy that would guarantee immediate, free access to and full reuse of the results of scientific research that our tax dollars support in a joint letter to the Trump Administration.
The U.S. government funds more than $60 billion in scientific research each year on behalf of the public. Making sure that the results of this research are readily accessible to all citizens will speed the pace of scientific discovery, spur innovation, and, most importantly, give patients and their families hope of finding cures to rare and currently untreatable diseases.
The letter urged the Administration to issue a policy that eliminates the current 12-month
delay on articles access, and to ensure that articles and supporting data resulting from
taxpayer funded research be made immediately available under terms and conditions that
allow their full reuse.
Read the full letter here.
The letter was coordinated by Genetic Alliance, a group that engages individuals, families, and communities to transform health.