Sobi Update regarding Sanfilippo Type A clinical trial

The following letter was released by Sobi on June 24, 2019, regarding its enzyme-replacement therapy clinical trial for Type A.
We continue to communicate and collaborate with the company about the future of the trial, in an effort to continue to help children with Sanfilippo. 

Cure Sanfilippo Foundation

501c3 non-profit
(Tax ID: 46-4322131)

P.O. Box 6901
Columbia, SC 29260