The following letter was released by Sobi on June 24, 2019, regarding its enzyme-replacement therapy clinical trial for Type A.
Family Friday 2023: The Stoop Family
Hear directly from the Stoop family – Tyler, Erin, Olivia, and Liam!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo...