The first “World Sanfilippo Awareness Day” is November 16, 2019
World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.
The logo, showing the parent and child holding hands, pays tribute to the special love and bond of parent and child. Any parent can relate to the precious years you are able to hold your little ones hand, and it has special meaning for a parent of a child with Sanfilippo Syndrome.
HOW YOU CAN PARTICIPATE
MATERIALS FOR USE
Here’s a quick-read handout about the global awareness day and how to be involved. Share it with others and help spread greater awareness of this childhood Alzheimer’s. ,/p>
And here’s an easy link to all the logo and image files.
ORDER YOUR WORLD SANFILIPPO AWARENESS DAY SHIRT
Your family can show their support for World Sanfilippo Awareness Day with these soft jersey t-shirts emblazoned with the official logo. Even after the day, these will be a favorite comfy shirt. Durable and high quality, it will survive many adventures.
About Sanfilippo Syndrome
Sanfilippo Syndrome is a rapidly degenerative and fatal disease in children causing severe dementia, currently with no cure and no treatment options. Learn more about Sanfilippo Syndrome, its causes, its symptoms, current research, and how families and foundations are helping fund research for a cure. Read More.