What You Can Do

We can’t cure Sanfilippo alone… we need your help.

It’s not easy to cure a disease. It’s even harder to cure a disease most people haven’t even heard of. But it’s not impossible.

In the last couple of years alone, we have made made amazing progress in raising awareness of Sanfilippo Syndrome and funding research toward developing a cure. But we didn’t do it by ourselves. We did it with the help of people like you. Which is why we are asking you to join us in taking action.

What can you do to help?

You can make a donation.

It’s simple, but meaningful. We appreciate any and every contribution, and every dollar that you give helps us in our mission to fight to give our children a chance at choosing their future. Make a donation now.

You can host a fundraiser.

It doesn’t have to be grand or elaborate… We’ve had everything from middle school fund drives to driveway lemonade stands. And every single one of them has helped. If you want to hold a fundraiser, or have an idea you want to talk about, please don’t hesitate to contact us.


We’re so lucky to have amazing people everywhere – sometimes Sanfilippo families, sometimes their friends and supporters, and sometimes complete strangers – who host fundraising events around the country and online to benefit our Foundation and its mission. Check out the Events Calendar to find one that interests you. 

You can spread awareness.

This is also an easy one: just simply tell others. The entire success of our Foundation is due to compassionate people embracing our story and our hope, and taking action to tell others about it. Simply telling people you know about this website is a great place to start, but here are a couple other easy things you can do:

  • Share the “Saving Eliza” video on social media… it’s a quick and easy way to tell our story.
  • Follow us on Facebook, and share our posts with your friends.
You can contact us.

If you want to learn more about how to get involved, whether with the Foundation or a specific family in your area, just contact us… we’re always happy to talk.