We Are Working To Cure Sanfilippo Syndrome.
Our mission is simple:
To advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo Syndrome.
About the Foundation
Explore how the Foundation began, who leads it, the families that partner with it, and the impact it has had since it was founded.
Cure Sanfilippo conducts and funds promising research, projects, and clinical trials. Learn more about our research efforts.
Together, a cure comes sooner. We collaborate with families, researchers, academic institutions, regulators, and bio-technology companies.
The more people who know about Sanfilippo, the more progress that happens to find a cure. So we help elevate awareness of Sanfilippo.
We set ambitious annual fundraising goals in order to fund research for every kind of Sanfilippo and to dictate and accelerate the pace of research.
Cure Sanfilippo connects families globally with the latest information on current research, as well as provides support for fundraising and caring for their children.
Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization
All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.
This is led by proactive families of children with Sanfilippo Syndrome and their supporters, who work tirelessly to change the fate and future for these children.
Donations may be tax-deductible.
Latest Foundation News
Dr. Cara O'Neill, Chief Science Officer for Cure Sanfilippo Foundation, is also mother to a 10-year-old daughter with Sanfilippo Syndrome. She urged that the traditional "watch and wait" approach by physicians when a child first exhibits developmental delays is not...
Like every parent, Carrie and Caleb will do anything for their children. Which has led them to facing their fear of heights in order to raise funding for research to cure Sanfilippo Syndrome, which affects their youngest daughter Haidyn. Carrie and Caleb decided to...
Grey Chapin has carried a heavy load in her young life. Her older sister Blair died of Sanfilippo Syndrome, a terminal neurodegenerative genetic disorder, at 15-years-old in 2017 when Grey was in middle school. Grey chooses to honors her sister by helping other...
https://youtu.be/dOxewsJad4w This is Craig and Sara. Their beautiful son Carson is participating in a new clinical trial that your generosity made happen. This is their message to you. Your support enabled Cure Sanfilippo Foundation to build this clinical trial...
Shopping on Amazon = Saving Kids Today's reality of social distancing likely has you shopping online more than ever. Imagine if every time an Amazon box arrived on your doorstep, it also helped fund research and clinical trials to cure Sanfilippo Syndrome. That would...
World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today,...
Support the fight to cure Sanfilippo Syndrome on #GivingTuesday 2020, a global day of giving fueled by the power of social media and collaboration. Cure Sanfilippo Foundation is grateful for its many devoted supporters who help fund the research that will lead to a...
Everyone is vying to be the organization you might support on #GivingTuesday2020, thisglobal “day of giving.” We’ll be honest; we aren’t any different. And because we're rare, every donor and dollar matters. We’re hoping you’ll donate to Cure Sanfilippo Foundation...
Help raise critical funds for research and/or trials to help find a cure for Sanfilippo Syndrome by joining the 4th annual Abby's Alliance 5K 2021. It will be held March 20, 2021, in Memorial Park in Houston, TX, in honor of Abby Wallis. All money raised goes to the...