We Are Working To Cure Sanfilippo Syndrome.
Our mission is simple:
To advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo Syndrome.
About the Foundation
Explore how the Foundation began, who leads it, the families that partner with it, and the impact it has had since it was founded.
Cure Sanfilippo conducts and funds promising research, projects, and clinical trials. Learn more about our research efforts.
Together, a cure comes sooner. We collaborate with families, researchers, academic institutions, regulators, and bio-technology companies.
The more people who know about Sanfilippo, the more progress that happens to find a cure. So we help elevate awareness of Sanfilippo.
We set ambitious annual fundraising goals in order to fund research for every kind of Sanfilippo and to dictate and accelerate the pace of research.
Cure Sanfilippo connects families globally with the latest information on current research, as well as provides support for fundraising and caring for their children.
Cure Sanfilippo Foundation is a 501(c)3 Not-For-Profit Organization
All net funding goes to the urgent mission to advance treatment options to treat children with Sanfilippo.
This is led by proactive families of children with Sanfilippo Syndrome and their supporters, who work tirelessly to change the fate and future for these children.
Donations may be tax-deductible.
Latest Foundation News
On May 10, Tina Holcomb shared the following words in honor of her son Aidan's 10th birthday in a Facebook post. About how Sanfilippo Syndrome has impacted every aspect of their lives for the past 10 years. But also how they find the joy in the moments they have,...
This Mother's Day, Lisa Bittner put on a shirt that bore the message, "Strong Like a Mother." As a mom of a son with Sanfilippo Syndrome, Luke, it inspired her to write the following, which she shared on her family's Facebook page dedicated to Luke, "Hope Joy Love...
Every week thousands of scientific articles on various topics are published. Here are some recent articles and abstracts that are relevant to understanding, managing, and/or treating Sanfilippo Syndrome (mucopolysaccharidosis III or MPS III)."Caregivers’ assessment of...
On Tuesday, Chive Charities kicked of a first-of-its-kind fundraiser to help Simon and other children with Sanfilippo Syndrome. Chive Charities, a 501(c)3 organization, traditionally supports the direct needs of underserved veterans, military families, first...
Sara Burroughs, mom of Carson, who is 11 and has Sanfilippo Syndrome, was invited by Brian Roberts to be the first guest on his inaugural BRob Inspired podcast, which is dedicated to sharing "ordinary people doing extraordinary things." Sara and Brian began the...
Come join the inaugural "Do it For Declan 5K and 1-mile Fun Run," benefiting Cure Sanfilippo Foundation, on Dec. 10, 2022. The 2022 Do it For Declan 5K and 1-mile Fun Run will be held in Founders Park, right near Wylie High School in Wylie, TX. The 1-mile walk/run...