TikTok has become a booming social media platform for people sharing all sorts of content, including families of children with Sanfilippo. Many families have grown significant followings as people learn about their lives with Sanfilippo and their wonderful children. One mom, Noelle Pacl (@Love_Logan07) has more than 1.5 million followers of her account, which she started just earlier this year. She shares daily life of her son Logan Pacl and answers people’s questions. Cure Sanfilippo Foundation also took the plunge earlier this year and created a TikTok account, @CureSanfilippo. We are slowly building our content and excited about TikTok’s ability to reach more people and spread awareness about Sanfilippo Syndrome and need for continued research to find a cure.