Every parent dreams about their kid’s future and watching it unfold.
Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.
Be a part of changing fate.
A donation is all it takes.

We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure. Every project we architect or fund gets families closer to a cure in this lifetime.
$8.5 million raised since 2013

20+ research projects funded



Every parent dreams about their child’s future and watching it unfold.
Sanfilippo Syndrome
takes that all away.
Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease that causes children lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die. All before their parents eyes.
Your donation helps funds research to accelerate discovery of a cure, so parents can dream of their children’s futures again.
Be a part of changing fate.
Your donation makes it happen.
VIDEO: One family’s story.
Every Sanfilippo family’s reality.

With your support, we are writing the next chapter on Sanfilippo Syndrome.
The chapter of the cure.
Every project we architect or fund gets families closer to a cure in this lifetime.




HOW YOU CAN HELP
YOUR SUPPORT HELPS FIND A CURE
HOW YOU CAN HELP
MEET THE
FAMILIES
OUR MISSION
The name says it all:
To cure Sanfilippo.
By advocating for and funding research directed towards a cure and treatment options.
FUNDRAISING GOAL
Pursuing every angle to cure Sanfilippo Syndrome in this lifetime takes significant financial fuel.
Our goal is to raise $2,000,000 in 2020. But we need your help to get there, especially in these turbulent times.
LATEST NEWS
4 ways to make memories this holiday season
Dec 22, 2020
It's deep into the holiday season. And while this holiday season is unlike any others in our lifetime, it can still be a magical time of creating memories you'll cherish for years to come. Here four ways you can make memories this holiday season. 1. Make a recording...
Merry & Bright Trivia Gala Night helps Foundation raise $2 million in 2020
Dec 19, 2020
We, at Cure Sanfilippo Foundation, are nearly speechless. $2 million in 2020 raised for research! Thank you to everyone who supported the Foundation's mission this year, especially partner families and supporters. Really incredible. And you ended the year with a...
AAV immunity is a significant issue for genetic therapies for all diseases
Dec 12, 2020
Glenn and Cara O'Neill, President and Chief Science Officer, respectively, of Cure Sanfilippo Foundation, were honored to be invited by the National Institutes of Health (NIH)/National Center for Advancing Translational Sciences (NCATS) group to speak at their...
RAISE AWARENESS: WEAR OUR GEAR