RILEY McGRAW

Current Age: 8

Home State: New Brunswick, Canada

Diagnosis Date: June 16, 2017

Sanfilippo Type: MPS IIIA

Parent: Mary

Siblings: Jasmine and Dominick

What it felt like when we learned our child has Sanfilippo Syndrome…

Sad.

What our child loves this most is…

Hugs and cuddle time.

How has Sanfilippo affected our entire family?

It makes us sad, so we say one positive thing a day.

The hardest part of being a Sanfilippo parent is…

When we can’t communicate with Riley, as Riley can’t tell us things.

The biggest misconception people have about being a Sanfilippo parent is…

They don’t understand it until they are going through it.

If we could ask just one thing from the world/people, it would be…

Please help find a cure and raise awareness.

Why are we asking you to donate to Cure Sanfilippo Foundation?

To find a cure.