Latest News & Information for Parents

News and information on issues relevant to you as a parent, caregiver, and advocate of a child with Sanfilippo Syndrome.

News From the Foundation

A Cure Can’t Wait – GivingTuesdayNow

Life looks quite unfamiliar for all of us. But we take heart because one thing hasn’t changed: people are still thinking of others, finding ways to make a difference. Which is why families with Sanfilippo Syndrome are asking for help. Right now.  Like everything else,...

read more

Other Sources of News