Latest News & Information for Parents

News and information on issues relevant to you as a parent, caregiver, and advocate of a child with Sanfilippo Syndrome.

News From the Foundation

AmazonSmile now available in Amazon App

Shopping on Amazon = Saving Kids Today's reality of social distancing likely has you shopping online more than ever. Imagine if every time an Amazon box arrived on your doorstep, it also helped fund research and clinical trials to cure Sanfilippo Syndrome. That would...

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A Cure Can’t Wait – GivingTuesdayNow

Life looks quite unfamiliar for all of us. But we take heart because one thing hasn’t changed: people are still thinking of others, finding ways to make a difference. Which is why families with Sanfilippo Syndrome are asking for help. Right now.  Like everything else,...

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