Nola, her parents Shiloh and Derek, and sister Caden.
“BE PART OF A MIRACLE! SUPPORT EFFORTS TO CURE SANFILIPPO SYNDROME!”
– The Carter Family
NOLA CARTER
Current Age: 6 Home State: Texas Diagnosis Date: January 14, 2014 Sanfilippo Type: MPS IIIA Parents: Derek and Shiloh Sibling: CadenWhat it felt like when we learned our child has Sanfilippo Syndrome…
We were devastated… Overwhelming fear, pain, and grief.
How has Sanfilippo affected our child?
Nola has developmental delays that impact every area of her life. Due to apraxia, she is nonverbal and has difficulty communicating with others.
Why are we asking you to donate to Cure Sanfilippo Foundation?
We hope to see Nola have the opportunity to become the woman she was meant to be. We are desperately hoping that we will not lose her to this devastating disorder.
Cure Sanfilippo Foundation is working diligently to make our hope & the hope of so many other parents of children with Sanfilippo Syndrome a reality.
Please consider supporting our efforts & the efforts of so many other parents in the fight to save the lives of our children. Your support gets us one step closer to making our hope a reality! We hope to see Nola have the opportunity to become the woman she was created to be. We are desperately hoping that we will not lose her to this devastating disorder.
Parent/Patient Advocacy Groups & Foundations across the world are diligently working together to make our hope & the hope of so many other parents of children with Sanfilippo Syndrome a reality. We are so grateful for the work that has been accomplished so far & want to do whatever we can to fund the medical research & clinical trials that could possibly treat or cure Sanfilippo Syndrome.
Please consider supporting our efforts & the efforts of so many other parents in the fight to save the lives of our children. Your support gets us one step closer to making our hope a reality!
