- Current Age:
- Home State:
- Diagnosis Date:
- November 20, 2017
- MPS/Sanfilippo Type:
- MPS III-A
- Ashton and Matt
- Dalton, half siblings: Trevyn, Madden, Talyn
What it felt like when we learned our child has Sanfilippo Syndrome…
Hearing the diagnosis felt like a knife to my heart.
What our child loves this most is…
His favorite things are Mickey Mouse, books, swinging, and dancing to music. Gabriel also loves his brother. They are best friends.
How has Sanifilippo affected our child?
He isn’t able to do all the same things as others in school. He has speech problems and has to wear hearing aids. It is very difficult for him to sleep.
How has Sanfilippo affected our entire family?
I, as the mom, stay home full-time to care for Gabe, plus his younger brother. We go to tons of appointments and have to manage sleepless nights with energy filled days.
The hardest part of being a Sanfilippo parent is …
Knowing that my child will never be “OK”, and that my youngest son will lose his best friend :(.
The biggest misconception people have about being a Sanfilippo parent is…
People tend to think we can just go get some pills and that will cure our child, but that isn’t even an option.
If we could ask just one thing from the world/people, it would be…
Smile more, laugh often, live for today.
Why are we asking you to donate to Cure Sanfilippo Foundation?
We need a cure, not just for Gabriel, but for every child before and after him.