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Family Directory

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The value of finding other people navigating life with Sanfilippo Syndrome can not be understated or underestimated.

This is a digital directory of families around the world with Sanfilippo. It is a way for you to find others to connect with and share this journey.

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  • Type of Sanfilippo: Type A
  • Birthday: August 1995
  • Parents/Caregivers: Jeff & Kelly
  • Sibling(s): Emily

 Texas

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  • Type of Sanfilippo: Type A
  • Birthday: December 2010
  • Parents/Caregivers: Mike & Jen
  • Sibling(s): Sadie

 Kentucky

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  • Type of Sanfilippo: Type B
  • Birthday: March 2003
  • Parents/Caregivers: Matt & Julie
  • Sibling(s): Jaxson

 Tennessee

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  • Type of Sanfilippo: Type A
  • Birthday: November 2009
  • Parents/Caregivers: Glenn & Cara
  • Sibling(s): Beckham

 South Carolina