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Shamaly family lemonade fundraiser | Sept. 17, 2022 – Connecticut

September 17, 2022 @ 1:00 pm - 3:00 pm

Join the Shamaly family in honoring their daughter Ellie at their lemonade stand fundraiser on Saturday, Sept. 17. Come enjoy refreshments, each just $1, from 1:00-3:00 p.m. and benefiting research to discover a treatment for Sanfilippo Syndrome. All proceeds benefit Cure Sanfilippo Foundation.

Sanfilippo Syndrome (estimated at 15,000-20,000 children) is a rare, terminal, neurodegenerative disease like dementia, but in children. Sanfilippo Syndrome affects children of every gender, race, socio-economic level, nationality, and geographic area. 

Time is the one thing children with Sanfilippo Syndrome don’t have. Sanfilippo Syndrome is damaging their brains and bodies every minute of every day, stealing their abilities and taking away their futures. A cure can’t wait.

Your support of the Shamaly lemonade fundraiser 2022 helps fund promising research that could lead to a cure for children like Ellie.


September 17, 2022
1:00 pm - 3:00 pm
Event Category:


Dear Ellie: Our Fight Against Sanfilippo Syndrome
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