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September 2021

Drag Bingo to Save Connor | Sept. 20, 2021 – Downingtown, PA

September 20 @ 5:00 pm - 9:00 pm
Estrella Tacos y Mas, 202 E. Lancaster Ave
Downingtown, PA United States
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Don't miss a special and unique event on Monday, Sept. 20, 2021 at Estrella Tacos y Mas: Drag bingo to Save Connor!The event will be hosted by the great Andie Summers (of 92.5 XTU) and world-renowned drag queen OPHELIABAWDY. The night's fun is sure to knock your socks off, all while supporting a great cause!Location: Estrella / 202 E. Lancaster Ave, Downingtown PA.Family seating: 5:00 - 6:00 PMBingo: 6:00 - 9:00 PMCall to reserve your seat(s) today at (484) 237-2423!!All…

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October 2021

Haidyn’s Hope Annual Skydiving Challenge | Oct. 2, 2021 – Cedartown, GA

October 2 @ 9:00 am - 12:00 pm
Skydive Georgia, 493 Airport Rd #5049
Cedartown, GA 30125 United States
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Haidyn Fowler's parents and supporters are facing her greatest fear - heights - to help save this wonderful little girl. On October 2, Carrie Fowler and Haidyn's dad Caleb will skydive to raise awareness of Sanfilippo Syndrome and donations for Cure Sanfilippo Foundation. Some of Carrie and Caleb's close family are joining them to skydive to help fundraise. You can help by making a donation and by sharing with your friends and family (sharing is truly a huge difference maker).…

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November 2021

Spencer’s Sprinters take on 2021 Genesis Battlegreen Run | Nov. 7, 2021 – Lexington, MA

November 7 @ 7:00 am - 11:30 am
Lexington, MA Lexington, MA United States + Google Map
$15 – $35

Each year, Spencer's Sprinters raise tens of thousands to help children with Sanfilippo Syndrome and Cure Sanfilippo Foundation!  Even during a pandemic, the run team raised more than $15,000 last year.Team Spencer's Sprinters will take on the 2021 Genesis Battlegreen Run on Nov. 7, 2021, in Lexington, MA. People can participate in-person or virtually as runners or walkers. JOIN TEAM SPENCER'S SPRINTERS!!LexFUN! and Lexington Neighbors and Newcomers' Club adore the Smith family, we’re lucky and proud to have them as members,…

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Purple Week 2021 | Nov. 14-20 – The Woodlands, TX

November 14 @ 8:00 am - November 20 @ 11:30 pm

Save the dates for the annual WILLPower Purple Week 2021 to celebrate World Sanfilippo Awareness Day! Join in with the following events: WILLPower Spirit Night at Chipotle 2021 | Nov. 16 More information: Do Good With Burritos! | Nov. 16 from 5:00-9:00 p.m. Join us for a WILLPower Spirit Night on Tuesday, November 16 from 5:00 to 9:00 p.m. at Chipotle Market Street, The Woodlands. Dine in AND pickup options are available. 33% of each purchase will benefit the…

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World Sanfilippo Awareness Day – Nov. 16, 2021 | Worldwide

November 16

World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The community of Sanfilippo families, foundations, scientists and researchers, and industry partners and collaborators around the world have dedicated November 16 as World Sanfilippo Awareness Day.You…

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