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May 2022

Believe in G Golf Tournament | May 20, 2022 – Eureka, MO

May 20 @ 8:00 am - 5:00 pm
Pevely Farm Golf Club, 400 Lewis Rd
Eureka, MO 63025 United States
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Gianna, was diagnosed with Sanfilippo Syndrome in June 2021. Her family is heartbroken, but is "fighting the big fight."The family's 2022 "Believe in G" Golf Tournament, the inaugural one, will be held on Friday, May 20, 2022, at Pevely Farms Golf Club in Eureka, MO. In a message her family posted to Facebook: one of the 𝑤𝑜𝑟𝑠𝑡 childhood diseases out there, and currently there is no cure. Gianna is one of 70,000 children diagnosed with this devastating disease. We need funding.…

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Believe in G Golf Tournament | May 20, 2022 – Eureka, MO

May 20 @ 11:30 am - 8:00 pm
Pevely Farms Golf Club, 400 Lewis Rd
Eureka, MO 63025 United States
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Come enjoy a four-person scramble at the 2022 Believe In G Golf Tournament on May 20 at the Pevely Farms Golf Club and Crescent Farms Golf Club in Eureka, MO. Yes, this event is so large it needs TWO courses! What amazing support for Gianna, her family, and the fight to cure Sanfilippo Syndrome.Registration begins at 11:30 a.m., followed by lunch at 12:15 p.m. Golfers will begin with a shotgun start at 1:00 p.m. After the round, golfers will enjoy…

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June 2022

Designer Bag Bingo for #SaveConnor | June 6, 2022 – Virtual

June 6 @ 7:00 pm - 9:00 pm

Monday, June 6, at 7:00 p.m., play along with the GEYA Soccer's Designer Bag Bingo for #SaveConnor! This event is virtual so get in your pjs, grab a glass of wine or a cocktail, and get your bingo on for a great cause!Proceeds from Designer Bag Bingo for #SaveConnor will honor Connor Dobbyn and benefit Cure Sanfilippo Foundation and funding the first-ever gene therapy clinical trials for Sanfilippo Type C. Register at: https://geya-high5.ticketleap.com/save-connor-bingo/details

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WILLPower Lemonade Stand 2022 | June 11, 2022 – Houston, TX

June 11 @ 9:00 am - 2:00 pm
Market Street, 9595 Six Pines Dr
The Woodlands, TX 77380 United States
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The family of Will Byers is hosting its annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 11, 2022. The lemonade fundraiser will be at Market Street in The Woodlands, TX. Come and enjoy cool drinks and sweet treats to help cure Sanfilippo.The lemonade stand annually raises money and awareness to fund treatment or a cure for Sanfilippo Syndrome. The Woodlands/Houston community has supported the Byers family's efforts over the years through donations and volunteer…

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Sale2Save 2022 | June 18, 2022 – Nationwide

June 18
Nationwide United States

Every year, families, friends, and supporters of Sanfilippo children host Sale2Save garage, lawn, lemonade, and bake sales around the country to support research to cure Sanfilippo Syndrome, a rare terminal children’s illness. Join us for the Sale2Save 2022 on Saturday, June 18.Nationwide events like these are powerful because of their scale. Think of it like this: if 20 people hold their own Sale2Save in their front yard and generate $500 each, that amounts to $10,000! Image if it’s 50 people…

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