Upcoming Events

Believe in G Golf Tournament | May 20, 2022 – Eureka, MO

Pevely Farm Golf Club 400 Lewis Rd, Eureka, MO, United States

Gianna, was diagnosed with Sanfilippo Syndrome in June 2021. Her family is heartbroken, but is "fighting the big fight."The family's 2022 "Believe in G" Golf Tournament, the inaugural one, will […]

Believe in G Golf Tournament | May 20, 2022 – Eureka, MO

Pevely Farms Golf Club 400 Lewis Rd, Eureka, MO, United States

Come enjoy a four-person scramble at the 2022 Believe In G Golf Tournament on May 20 at the Pevely Farms Golf Club and Crescent Farms Golf Club in Eureka, MO. […]

WILLPower Lemonade Stand 2022 | June 11, 2022 – Houston, TX

Market Street 9595 Six Pines Dr, The Woodlands, TX, United States

The family of Will Byers is hosting its annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 11, 2022. The lemonade fundraiser will be at […]

Sale2Save 2022 | June 18, 2022 – Nationwide

Nationwide , United States

Every year, families, friends, and supporters of Sanfilippo children host Sale2Save garage, lawn, lemonade, and bake sales around the country to support research to cure Sanfilippo Syndrome, a rare terminal […]

ADVANCE 2022 | Sanfilippo Community Conference | July 7-8, 2022 – Virtual

UPDATE: Replays of ADVANCE 2022's two days of sessions are available. Access the conference replays.-------------------------------------------------------------Set your calendar for ADVANCE 2022: Sanfilippo Community Conference! A virtual conference on July 7-8, bringing together […]

Free

2022 Saving Rylan Golf Tournament | Aug. 21, 2022 – Crossville, TN

The Bear Trace at Cumberland Mountain 407 Wild Plum Lane, Crossville, TN, United States

Support research to cure Sanfilippo Syndrome by joining the 7th annual Saving Rylan Golf Tournament on Sunday, Aug. 21, 2022, at Bear Trace Golf Course. The 2022 Saving Rylan Golf […]

$65 – $260

2022 Bay City Masonic Car Show | Aug. 27, 2022 – Bay City, MI

The Bay City Scottish Rite Masonic Center 614 Center Avenue, Bay City, MI, United States

Check out fantastic cars while also helping fund research for children with Sanfilippo Syndrome at the 2022 Bay City Masonic Car Show on Aug. 27.The 2022 Bay City Masonic Car […]

MickeyFest 2022! | Sept. 17, 2022 – Delaware City, DE

Fort DuPont State Park Wilmington Ave, Delaware City, DE, United States

Join the Delaware City community for another FREE, family-friendly, musical spectacular MickeyFest 2022! All to help Mickey and other children with Sanfilippo Syndrome.MickeyFest 2022! will be celebrated at the Fort […]

2022 HOGA Golf Tournament | Oct. 17, 2022 – The Woodlands, TX

The Club at Carlton Woods One Carlton Woods Drive, The Woodlands, TX, United States

A Day on the Greens that Gives BackEnjoy a day of golf that also does good at the 2022 Houston Oilfield Golf Association (HOGA) Golf Tournament benefiting Cure Sanfilippo Foundation.  […]

Purple Week 2022 | Nov. 2-16 – The Woodlands, TX

Save the dates for the annual WILLPower Purple Week 2022 to celebrate World Sanfilippo Awareness Day! This year's events take place over an extended period, for maximum fun and impact.  […]

Giving Tuesday 2022 | Nov. 29, 2022 – Global

Everyone is vying to be the organization you might support on #GivingTuesday2020, thisglobal “day of giving.” We’ll be honest; we aren’t any different. And because we're rare, every donor and dollar […]

2022 Drag Bingo to Save Connor | Dec. 5, 2022 – Downingtown, PA

Estrella Tacos y Mas 202 E. Lancaster Ave, Downingtown, PA, United States

Don't miss a special and unique event on Monday, Dec. 5, 2022 at Estrella Tacos y Mas: Drag bingo to Save Connor! The second annual edition of this much-loved and […]

Do it for Declan 5K and Fun Run | Dec. 10, 2022 – Wylie, TX

Founders Park 851 Hensley Lane, Wylie, TX, United States

Come join the inaugural "Do it For Declan 5K and 1-mile Fun Run," benefiting Cure Sanfilippo Foundation, on Dec. 10, 2022. The 2022 Do it For Declan 5K and 1-mile […]

2023 Super Eliza 5K | April 1, 2023 – Columbia, SC

Blatt Center 1300 Wheat St., Columbia, SC, United States

The South Carolina College of Pharmacy PPAG group is hosting the 9th annual Super Eliza 5K Walk/Run to benefit Cure Sanfilippo Foundation and in honor of Eliza O'Neill on April […]

2023 Believe in G Golf Tournament | May 13, 2023 – Eureka, MO

Aberdeen Golf Club 4111 Crescent Rd., Eureka, MO, United States

Last year, the inaugural Believe in G Golf Tournament raised just over $𝟖𝟎,𝟎𝟎𝟎, benefiting the family and Cure Sanfilippo Foundation.Generous sponsors, donors, friends, family, volunteers, and our community made that […]

WILLPower Lemonade Stand 2023 | June 10, 2023 – Houston, TX

Market Street 9595 Six Pines Dr, The Woodlands, TX, United States

The family of Will Byers is hosting its 8th annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 10, 2023. The WILLPower Lemonade Stand 2023 […]

2023 “Saving Liv” Sand Volleyball Tournament | June 24, 2023 – Council Bluffs, IA

The Mile Away 20270 Old Lincoln Highway, Council Bluffs, IA, United States

Bring your six-person team for the 2023 "Saving Liv" Sand Volleyball Tournament at The Mile Away in Council Bluffs, Iowa, on June 24. This event is in honor of Olivia "Liv" Stoop, an adorable 3-year-old who was diagnosed a year ago with Sanfilippo Syndrome. She and her parents, Tyler and Erin, starred in a viral […]

2023 Save Connor Shred Workout | July 29, 2023 – Exton, PA

ImpactFit 35 E Uwchlan Ave #324, Exton, PA, United States

What are you doing on July 29 at 10:00 a.m.? Join us for the 3rd annual "Save Connor Shred" at ImpactFit in Exton, PA, and get your sweat on. The 2023 Save Connor Shred will include a HIIT workout, games for kids, 50/50 raffle, and baskets. In 2020, the folks at ImpactFit heard about the […]

2023 Save Connor ‘Dine & Donate’ Night | July 13, 2023 – Lionville, PA

MAGERKS Pub & Grill 174 Eagleview Blvd, Exton, PA, United States

Want to take a night off cooking, while also helping fund research to help children with Sanfilippo Syndrome? Stop by Magerks Pub & Grill in Lionville, PA, on Thursday, July 13, for the 2023 Save Connor 'Dine & Donate' to grab lunch and/or dinner. When you stop by between 11:30 a.m. and 11:00 p.m., 15% […]

2023 Bay City Masonic Car Show | Aug. 5, 2023 – Bay City, MI

Joppa-Wenona Lodge #315 Free and Accepted Masons 200 E. John St., Bay City, MI, United States

Check out fantastic cars while also helping fund research for children with Sanfilippo Syndrome at the 2023 Bay City Masonic Car Show on Aug. 5. The 2023 Bay City Masonic Car Show will take place in Joppa-Wenona Lodge #315 Free and Accepted Masons (200 E. John St, Bay City, MI). Come enjoy food trucks and […]

2023 Porcaro Family Charities Golf Outing | Aug. 27, 2023 – Racine, WI

Meadowbrook Country Club 2149 N Green Bay Rd, Racine, WI, United States

The 2023 Porcaro Family Charities golf outing at lovely Meadowbrook Country Club in Racine, WI, will benefit Olivia "Liv" Stoop and Cure Sanfilippo Foundation's mission to cure Sanfilippo Syndrome. This sixth annual event will again welcome 104 golfers for this 18-hole scramble and has sold out in past years. Not a golfer? There are so […]

ADVANCE 2023 | Sanfilippo Community Conference | Aug. 29-30, 2023 – Virtual

Set your calendar for ADVANCE 2023: Sanfilippo Community Conference! A virtual conference on Aug. 29-30, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo Syndrome. Registration is at no-cost. REGISTER AT: https://curesanfilippofoundation.org/advance/ Parents and caregivers don’t often […]

FREE

2023 Sadiepalooza: A Dinner & Auction | Sept. 16, 2023 – Troy, NC

Help fund research to cure children with Sanfilippo Syndrome by attending the 2023 Sadiepalooza: A Dinner & Auction, in honor of Sadie Rae Haywood, on Sept. 16 in Troy, NC. More information and tickets to come! What is Sanfilippo Syndrome? Imagine Alzheimer’s and dementia, but in children. Sanfilippo Syndrome — also known as Mucopolysaccharidosis type […]