Upcoming Events
Help Simon Chipotle Fundraiser | May 18, 2022 – Austin, TX
Make dinner a selfless act by joining us for a fundraiser to support Cure Sanfilippo Foundation and Help Simon. Come in to the "Help Simon" Chipotle fundraiser at 1920 East […]
Believe in G Golf Tournament | May 20, 2022 – Eureka, MO
Gianna, was diagnosed with Sanfilippo Syndrome in June 2021. Her family is heartbroken, but is "fighting the big fight."The family's 2022 "Believe in G" Golf Tournament, the inaugural one, will […]
Believe in G Golf Tournament | May 20, 2022 – Eureka, MO
Come enjoy a four-person scramble at the 2022 Believe In G Golf Tournament on May 20 at the Pevely Farms Golf Club and Crescent Farms Golf Club in Eureka, MO. […]
Designer Bag Bingo for #SaveConnor | June 6, 2022 – Virtual
Monday, June 6, at 7:00 p.m., play along with the GEYA Soccer's Designer Bag Bingo for #SaveConnor! This event is virtual so get in your pjs, grab a glass of […]
WILLPower Lemonade Stand 2022 | June 11, 2022 – Houston, TX
The family of Will Byers is hosting its annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 11, 2022. The lemonade fundraiser will be at […]
Sale2Save 2022 | June 18, 2022 – Nationwide
Every year, families, friends, and supporters of Sanfilippo children host Sale2Save garage, lawn, lemonade, and bake sales around the country to support research to cure Sanfilippo Syndrome, a rare terminal […]
ADVANCE 2022 | Sanfilippo Community Conference | July 7-8, 2022 – Virtual
UPDATE: Replays of ADVANCE 2022's two days of sessions are available. Access the conference replays.-------------------------------------------------------------Set your calendar for ADVANCE 2022: Sanfilippo Community Conference! A virtual conference on July 7-8, bringing together […]
Manhattan Madness Scavenger Hunt | July 9, 2022 – Manhattan, KS
Peace Lutheran Church is teaming with businesses across the Manhattan, KS, to raise money for those affected by Sanfilippo Syndrome with a citywide scavenger hunt, Manhattan Madness Scavenger Hunt 2022, […]
2022 Saving Rylan Golf Tournament | Aug. 21, 2022 – Crossville, TN
Support research to cure Sanfilippo Syndrome by joining the 7th annual Saving Rylan Golf Tournament on Sunday, Aug. 21, 2022, at Bear Trace Golf Course. The 2022 Saving Rylan Golf […]
2022 Bay City Masonic Car Show | Aug. 27, 2022 – Bay City, MI
Check out fantastic cars while also helping fund research for children with Sanfilippo Syndrome at the 2022 Bay City Masonic Car Show on Aug. 27.The 2022 Bay City Masonic Car […]
2022 Tee Off Fore A Cure | Aug. 27, 2022 – New Berlin, WI
Enjoy a day of fun at the seventh annual Levi's Life, Love & Laughter "Tee Of For A Cure" golf tournament on Aug. 27, 2022, at the New Berlin Hills […]
2022 “Drive to Cure Carson” Golf Tournament | Sept. 9, 2022 – O’Fallon, MO
Enjoy a day of golf that also does good at the 2022 "Drive to Cure Carson" Charity Golf Tournament benefiting Cure Sanfilippo Foundation on Sept. 9, 2022. All proceeds of […]
MickeyFest 2022! | Sept. 17, 2022 – Delaware City, DE
Join the Delaware City community for another FREE, family-friendly, musical spectacular MickeyFest 2022! All to help Mickey and other children with Sanfilippo Syndrome.MickeyFest 2022! will be celebrated at the Fort […]
Shamaly family lemonade fundraiser | Sept. 17, 2022 – Connecticut
Join the Shamaly family in honoring their daughter Ellie at their lemonade stand fundraiser on Saturday, Sept. 17. Come enjoy refreshments, each just $1, from 1:00-3:00 p.m. and benefiting research […]
2022 HOGA Golf Tournament | Oct. 17, 2022 – The Woodlands, TX
A Day on the Greens that Gives BackEnjoy a day of golf that also does good at the 2022 Houston Oilfield Golf Association (HOGA) Golf Tournament benefiting Cure Sanfilippo Foundation. […]
2022 Haidyn’s Hope Motorcycle Ride & Car Show | Oct. 22, 2022 – Lithos Spring, GA
Help fund research to help children with Sanfilippo Syndrome at the 2022 Haidyn's Hope Motorcycle Ride & Car Show on Oct. 22 in Cartersville, GA. The event will run from […]
Purple Week 2022 | Nov. 2-16 – The Woodlands, TX
Save the dates for the annual WILLPower Purple Week 2022 to celebrate World Sanfilippo Awareness Day! This year's events take place over an extended period, for maximum fun and impact. […]
2022 “Cure Sanfilippo For Oliver’s Tomorrow” Progressive Euchre Tournament | Nov. 5, 2022 – Columbus, OH
An evening of cards that gives back. The 2022 "Cure Sanfilippo For Oliver's Tomorrow" Progressive Euchre Tournament on Saturday, Nov. 5.Enjoy a progressive euchre tournament at the lively Germania Columbus, […]
World Sanfilippo Awareness Day – Nov. 16, 2022 | Worldwide
World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of […]
Chili’s Give Back Night honoring Victoria | Nov. 16, 2022 – Hollywood, FL
Knock out two birds with one stone: Dinner and doing good! Stop by Chili's Hollywood on November 16 for a Give Back Night that benefits Cure Sanfilippo Foundation's mission to […]
Giving Tuesday 2022 | Nov. 29, 2022 – Global
Everyone is vying to be the organization you might support on #GivingTuesday2020, thisglobal “day of giving.” We’ll be honest; we aren’t any different. And because we're rare, every donor and dollar […]
2022 Drag Bingo to Save Connor | Dec. 5, 2022 – Downingtown, PA
Don't miss a special and unique event on Monday, Dec. 5, 2022 at Estrella Tacos y Mas: Drag bingo to Save Connor! The second annual edition of this much-loved and […]
Do it for Declan 5K and Fun Run | Dec. 10, 2022 – Wylie, TX
Come join the inaugural "Do it For Declan 5K and 1-mile Fun Run," benefiting Cure Sanfilippo Foundation, on Dec. 10, 2022. The 2022 Do it For Declan 5K and 1-mile […]
Maine Diner’s 2023 Blueberry Pancake Fundraiser | Jan. 28, 2022 – Wells, ME
The Maine Diner is again hosting its annual Blueberry Pancake Fundraiser to cure Sanfilippo Syndrome! 100% of all blueberry pancake sales on Jan. 28 (National Blueberry Pancake Day) will benefit Cure […]
The Woodlands Marathon Charity Challenge | March 4, 2023 – Woodlands, TX
Friends, family, and supporters of Will Byers are again running The Woodlands Marathon 2023 on March 4 in Texas to raise awareness of and funds to cure Sanfilippo Syndrome. And […]
Krama Era Barn 2023 Dance for Life | March 19, 2023 – Karlstad, Sweden
2023 Dance for Life Take advantage of every moment. Together, we make a difference. Karlstad dansförening presents a charity performance, 2023 Dance for Life, in honor of Krama Era Barn […]
2023 Super Simon Says “Cure Sanfilippo Syndrome” Silent Auction | March 23-April 2, 2023
The family of Simon Croke is hosting the inaugural Super Simon Says "Cure Sanfilippo Syndrome" Silent Auction starting March 23, 2023, and ending with a Live Auction on April 2, […]
2023 Super Eliza 5K | April 1, 2023 – Columbia, SC
The South Carolina College of Pharmacy PPAG group is hosting the 9th annual Super Eliza 5K Walk/Run to benefit Cure Sanfilippo Foundation and in honor of Eliza O'Neill on April […]
2023 Scotch Doubles Tournament | April 15, 2023 – Appleton, WI
The Mad Apple Burger & Billiard Co. in Appleton, Wisconsin, is hosting "2023 Scotch Doubles Tournament: A Fundraiser for Olivia" on April 15, 2023. This fundraiser benefits the fight to […]
2023 “Team Cannon Can” Night | April 23, 2023 – Crown Point, IN
The Crown Point, IN, community is invited to come together in support for local boy Cannon and the fight to cure Sanfilippo Syndrome at the 2023 "Team Cannon CAN" Night […]
2023 Sweet Zen Bakery Mother’s Day Sale | May 9-14, 2023 – West Chester, PA
The owner of Sweet Zen Bakery in West Chester, PA, knows the mother of Connor Dobbyn and has decided to help fund Connor's chance at life by donating a portion […]
2023 Believe in G Golf Tournament | May 13, 2023 – Eureka, MO
Last year, the inaugural Believe in G Golf Tournament raised just over $𝟖𝟎,𝟎𝟎𝟎, benefiting the family and Cure Sanfilippo Foundation.Generous sponsors, donors, friends, family, volunteers, and our community made that […]
WILLPower Lemonade Stand 2023 | June 10, 2023 – Houston, TX
The family of Will Byers is hosting its 8th annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 10, 2023. The WILLPower Lemonade Stand 2023 […]
2023 “Saving Liv” Sand Volleyball Tournament | June 24, 2023 – Council Bluffs, IA
Bring your six-person team for the 2023 "Saving Liv" Sand Volleyball Tournament at The Mile Away in Council Bluffs, Iowa, on June 24. This event is in honor of Olivia "Liv" Stoop, an adorable 3-year-old who was diagnosed a year ago with Sanfilippo Syndrome. She and her parents, Tyler and Erin, starred in a viral […]
2023 Save Connor Shred Workout | July 29, 2023 – Exton, PA
What are you doing on July 29 at 10:00 a.m.? Join us for the 3rd annual "Save Connor Shred" at ImpactFit in Exton, PA, and get your sweat on. The 2023 Save Connor Shred will include a HIIT workout, games for kids, 50/50 raffle, and baskets. In 2020, the folks at ImpactFit heard about the […]
2023 Save Connor ‘Dine & Donate’ Night | July 13, 2023 – Lionville, PA
Want to take a night off cooking, while also helping fund research to help children with Sanfilippo Syndrome? Stop by Magerks Pub & Grill in Lionville, PA, on Thursday, July 13, for the 2023 Save Connor 'Dine & Donate' to grab lunch and/or dinner. When you stop by between 11:30 a.m. and 11:00 p.m., 15% […]
2023 Bay City Masonic Car Show | Aug. 5, 2023 – Bay City, MI
Check out fantastic cars while also helping fund research for children with Sanfilippo Syndrome at the 2023 Bay City Masonic Car Show on Aug. 5. The 2023 Bay City Masonic Car Show will take place in Joppa-Wenona Lodge #315 Free and Accepted Masons (200 E. John St, Bay City, MI). Come enjoy food trucks and […]
2023 Porcaro Family Charities Golf Outing | Aug. 27, 2023 – Racine, WI
The 2023 Porcaro Family Charities golf outing at lovely Meadowbrook Country Club in Racine, WI, will benefit Olivia "Liv" Stoop and Cure Sanfilippo Foundation's mission to cure Sanfilippo Syndrome. This sixth annual event will again welcome 104 golfers for this 18-hole scramble and has sold out in past years. Not a golfer? There are so […]
ADVANCE 2023 | Sanfilippo Community Conference | Aug. 29-30, 2023 – Virtual
Set your calendar for ADVANCE 2023: Sanfilippo Community Conference! A virtual conference on Aug. 29-30, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo Syndrome. Registration is at no-cost. REGISTER AT: https://curesanfilippofoundation.org/advance/ Parents and caregivers don’t often […]
2023 Sadiepalooza: A Dinner & Auction | Sept. 16, 2023 – Troy, NC
Help fund research to cure children with Sanfilippo Syndrome by attending the 2023 Sadiepalooza: A Dinner & Auction, in honor of Sadie Rae Haywood, on Sept. 16 in Troy, NC. More information and tickets to come! What is Sanfilippo Syndrome? Imagine Alzheimer’s and dementia, but in children. Sanfilippo Syndrome — also known as Mucopolysaccharidosis type […]