Upcoming Events

Purple Week 2022 | Nov. 2-16 – The Woodlands, TX

Save the dates for the annual WILLPower Purple Week 2022 to celebrate World Sanfilippo Awareness Day! This year's events take place over an extended period, for maximum fun and impact.  Join us at one of our events this year to celebrate our annual (extended) Purple Week, including wearing PURPLE on World Sanfilippo Awareness Day on […]

2022 “Cure Sanfilippo For Oliver’s Tomorrow” Progressive Euchre Tournament | Nov. 5, 2022 – Columbus, OH

Germania Columbus 543 S Front Street, Columbus, OH, United States

An evening of cards that gives back. The 2022 "Cure Sanfilippo For Oliver's Tomorrow" Progressive Euchre Tournament on Saturday, Nov. 5.Enjoy a progressive euchre tournament at the lively Germania Columbus, while also helping a local family and others who have children with Sanfilippo Syndrome. Doors open at 6:00 p.m. and play is from 7:00-10:00 p.m.Sanfilippo […]

$20 – $25

World Sanfilippo Awareness Day – Nov. 16, 2022 | Worldwide

World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The […]

Chili’s Give Back Night honoring Victoria | Nov. 16, 2022 – Hollywood, FL

Knock out two birds with one stone: Dinner and doing good! Stop by Chili's Hollywood on November 16 for a Give Back Night that benefits Cure Sanfilippo Foundation's mission to accelerate research to cure Sanfilippo Syndrome.Twenty percent of your meal will be donated to help children like Victoria, who lives in Hollywood, FL, with Sanfilippo […]

Giving Tuesday 2022 | Nov. 29, 2022 – Global

Everyone is vying to be the organization you might support on #GivingTuesday2020, thisglobal “day of giving.” We’ll be honest; we aren’t any different. And because we're rare, every donor and dollar matters. We’re hoping you’ll donate to Cure Sanfilippo Foundation tomorrow on Giving Tuesday.Why should you choose curing Sanfilippo Syndrome among all the great causes?Because your […]

2022 Drag Bingo to Save Connor | Dec. 5, 2022 – Downingtown, PA

Estrella Tacos y Mas 202 E. Lancaster Ave, Downingtown, PA, United States

Don't miss a special and unique event on Monday, Dec. 5, 2022 at Estrella Tacos y Mas: Drag bingo to Save Connor! The second annual edition of this much-loved and riotously-fun evening.The event will be hosted by the great Andie Summers (of 92.5 XTU) and world-renowned drag queen OPHELIABAWDY. The night's fun is sure to […]

Do it for Declan 5K and Fun Run | Dec. 10, 2022 – Wylie, TX

Founders Park 851 Hensley Lane, Wylie, TX, United States

Come join the inaugural "Do it For Declan 5K and 1-mile Fun Run," benefiting Cure Sanfilippo Foundation, on Dec. 10, 2022. The 2022 Do it For Declan 5K and 1-mile Fun Run will be held in Founders Park, right near Wylie High School in Wylie, TX. The 1-mile walk/run will precede the 5K. The 5K […]

Maine Diner’s 2023 Blueberry Pancake Fundraiser | Jan. 28, 2022 – Wells, ME

Maine Diner 2265 POST ROAD, Wells, ME, United States

The Maine Diner is again hosting its annual Blueberry Pancake Fundraiser to cure Sanfilippo Syndrome! 100% of all blueberry pancake sales on Jan. 28 (National Blueberry Pancake Day) will benefit Cure Sanfilippo Foundation.The Maine Diner has been hosting its annual Blueberry Pancake Fundraiser since 2019 to help children with Sanfilippo Syndrome, like Spencer Smith.Spencer is 8-years-old, […]

The Woodlands Marathon Charity Challenge | March 4, 2023 – Woodlands, TX

The Woodlands The Woodlands, CA, United States

Friends, family, and supporters of Will Byers are again running The Woodlands Marathon 2023 on March 4 in Texas to raise awareness of and funds to cure Sanfilippo Syndrome. And the top fundraisers in the Charity Challenge earn EXTRA funds for their charities!For the past several years, Team WILLPower has placed at the top of […]

Krama Era Barn 2023 Dance for Life | March 19, 2023 – Karlstad, Sweden

Carlstad Conference Center Tage Erlandergatan, 652 20, Karlstad, Sweden

2023 Dance for Life Take advantage of every moment. Together, we make a difference. Karlstad dansförening presents a charity performance, 2023 Dance for Life, in honor of Krama Era Barn and research to treat Sanfilippo Syndrome on March 19 at the Carlstad Conference Center in Karlstad, Sweden."Dance for Life" is a performance filled with emotion […]

2023 Super Simon Says “Cure Sanfilippo Syndrome” Silent Auction | March 23-April 2, 2023

Orange Theory Fitness | Austin 4601 N LAMAR BLVD #508, Austin, TX, United States

The family of Simon Croke is hosting the inaugural Super Simon Says "Cure Sanfilippo Syndrome" Silent Auction starting March 23, 2023, and ending with a Live Auction on April 2, 2023, benefiting Cure Sanfilippo Foundation atOrange Theory Fitness at the Triangle in Austin, TX. "Cure Sanfilippo Foundation is so important to us because our son, […]

2023 Super Eliza 5K | April 1, 2023 – Columbia, SC

Blatt Center 1300 Wheat St., Columbia, SC, United States

The South Carolina College of Pharmacy PPAG group is hosting the 9th annual Super Eliza 5K Walk/Run to benefit Cure Sanfilippo Foundation and in honor of Eliza O'Neill on April 1, 2023.Sanfilippo Syndrome is a rapidly degenerative and fatal disease in children, much like a childhood Alzheimer's. Cure Sanfilippo Foundation, a 501c3 nonprofit, funds research […]

2023 Scotch Doubles Tournament | April 15, 2023 – Appleton, WI

The Mad Apple Burger & Billiard Co. in Appleton, Wisconsin, is hosting "2023 Scotch Doubles Tournament: A Fundraiser for Olivia" on April 15, 2023. This fundraiser benefits the fight to help Olivia Stoop, who lives in the community and has Sanfilippo Syndrome. Doors open at 7:00 a.m. with breakfast available. Play starts after Calcutta at […]

2023 “Team Cannon Can” Night | April 23, 2023 – Crown Point, IN

Public Bar & Rec 210 S Main St., Crown Point, IN, United States

The Crown Point, IN, community is invited to come together in support for local boy Cannon and the fight to cure Sanfilippo Syndrome at the 2023 "Team Cannon CAN" Night at Public Bar & Rec. Cannon is a strong 5 year old and was diagnosed with Sanfilippo Syndrome, a rare disease that is without a […]

$25

2023 Sweet Zen Bakery Mother’s Day Sale | May 9-14, 2023 – West Chester, PA

Sweet Zen Bakery West Chester, PA, United States

The owner of Sweet Zen Bakery in West Chester, PA, knows the mother of Connor Dobbyn and has decided to help fund Connor's chance at life by donating a portion of proceeds of sales leading up to and including Mother's Day 2023. Posting to social media, Sweet Zen Bakery shared that Sanfilippo Syndrome, which Connor […]

2023 Believe in G Golf Tournament | May 13, 2023 – Eureka, MO

Aberdeen Golf Club 4111 Crescent Rd., Eureka, MO, United States

Last year, the inaugural Believe in G Golf Tournament raised just over $𝟖𝟎,𝟎𝟎𝟎, benefiting the family and Cure Sanfilippo Foundation.Generous sponsors, donors, friends, family, volunteers, and our community made that $80,000 possible. The Wackers were overwhelmed by the amazing support from family, friends, and the community and are hoping to do it again this year. […]

WILLPower Lemonade Stand 2023 | June 10, 2023 – Houston, TX

Market Street 9595 Six Pines Dr, The Woodlands, TX, United States

The family of Will Byers is hosting its 8th annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 10, 2023. The WILLPower Lemonade Stand 2023 lemonade fundraiser will be at Market Street in The Woodlands, TX. Come and enjoy cool drinks and sweet treats to help cure Sanfilippo. The lemonade […]

2023 “Saving Liv” Sand Volleyball Tournament | June 24, 2023 – Council Bluffs, IA

The Mile Away 20270 Old Lincoln Highway, Council Bluffs, IA, United States

Bring your six-person team for the 2023 "Saving Liv" Sand Volleyball Tournament at The Mile Away in Council Bluffs, Iowa, on June 24. This event is in honor of Olivia "Liv" Stoop, an adorable 3-year-old who was diagnosed a year ago with Sanfilippo Syndrome. She and her parents, Tyler and Erin, starred in a viral […]

2023 Save Connor Shred Workout | July 29, 2023 – Exton, PA

ImpactFit 35 E Uwchlan Ave #324, Exton, PA, United States

What are you doing on July 29 at 10:00 a.m.? Join us for the 3rd annual "Save Connor Shred" at ImpactFit in Exton, PA, and get your sweat on. The 2023 Save Connor Shred will include a HIIT workout, games for kids, 50/50 raffle, and baskets. In 2020, the folks at ImpactFit heard about the […]

2023 Save Connor ‘Dine & Donate’ Night | July 13, 2023 – Lionville, PA

MAGERKS Pub & Grill 174 Eagleview Blvd, Exton, PA, United States

Want to take a night off cooking, while also helping fund research to help children with Sanfilippo Syndrome? Stop by Magerks Pub & Grill in Lionville, PA, on Thursday, July 13, for the 2023 Save Connor 'Dine & Donate' to grab lunch and/or dinner. When you stop by between 11:30 a.m. and 11:00 p.m., 15% […]

2023 Bay City Masonic Car Show | Aug. 5, 2023 – Bay City, MI

Joppa-Wenona Lodge #315 Free and Accepted Masons 200 E. John St., Bay City, MI, United States

Check out fantastic cars while also helping fund research for children with Sanfilippo Syndrome at the 2023 Bay City Masonic Car Show on Aug. 5. The 2023 Bay City Masonic Car Show will take place in Joppa-Wenona Lodge #315 Free and Accepted Masons (200 E. John St, Bay City, MI). Come enjoy food trucks and […]

2023 Porcaro Family Charities Golf Outing | Aug. 27, 2023 – Racine, WI

Meadowbrook Country Club 2149 N Green Bay Rd, Racine, WI, United States

The 2023 Porcaro Family Charities golf outing at lovely Meadowbrook Country Club in Racine, WI, will benefit Olivia "Liv" Stoop and Cure Sanfilippo Foundation's mission to cure Sanfilippo Syndrome. This sixth annual event will again welcome 104 golfers for this 18-hole scramble and has sold out in past years. Not a golfer? There are so […]

ADVANCE 2023 | Sanfilippo Community Conference | Aug. 29-30, 2023 – Virtual

Set your calendar for ADVANCE 2023: Sanfilippo Community Conference! A virtual conference on Aug. 29-30, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo Syndrome. Registration is at no-cost. REGISTER AT: https://curesanfilippofoundation.org/advance/ Parents and caregivers don’t often […]

FREE

2023 Sadiepalooza: A Dinner & Auction | Sept. 16, 2023 – Troy, NC

Help fund research to cure children with Sanfilippo Syndrome by attending the 2023 Sadiepalooza: A Dinner & Auction, in honor of Sadie Rae Haywood, on Sept. 16 in Troy, NC. More information and tickets to come! What is Sanfilippo Syndrome? Imagine Alzheimer’s and dementia, but in children. Sanfilippo Syndrome — also known as Mucopolysaccharidosis type […]

Ocosta Jr/Sr High School “Support Ryler” | Sept. 29, 2023 – Westport, WA

  Justin Strong, father of Ryler, who was diagnosed with Sanfilippo Syndrome in 2021, graduated from Ocasta High School in 2022. Learning of his son's diagnosis and the need for funding to support research to cure children like Ryler, the Ocasta Junior/Senior High School are supporting them during the upcoming varsity football game against North […]

2023 Cure for Carson Night @ St. Dominic Volleyball | Oct. 4, 2023 – O’Fallon, MO

St. Dominic High School 31 St. Dominic Drive, O'Fallon, MO, United States

The St. Dominic Volleyball team (O'Fallon, Missouri) is once again rallying to support a local family and the fight to cure Sanfilippo Syndrome with its 2023 Cure For Carson Night on Oct. 4. The varsity and junior varsity teams from St. Dominic are taking on St. Joseph's, starting at 5:00 p.m. The local family being […]

Benefit Honoring Carter Korth | Oct. 25, 2023 – Dubuque, IA

Darkbird Taphouse 7305 Thunder Valley Drive, Peosta, IA, United States

You can help fund research to cure children with Sanfilippo Syndrome by attending the Oct. 25 "Sanfilippo Syndrome Benefit" in honor of Carter Korth. The event will take place at Darkbird Taphouse in Peosta, IA, from 5:00-9:00 p.m. The night will include a silent auction, raffle, food truck, and more. All proceeds will benefit Cure […]

2023 Bexley “Shop For a Cause” Mega Yard Sale | Oct. 28, 2023 – Bexley, OH

Come join us for 2023 Bexley "Shop For a Cause" Mega Yard Sale, a community shopping event to support Cure Sanfilippo Foundation in honor of Bexley student, Oliver Kelly. Every item $5-$15! Shop gently-worn fall and winter designer and name-brand clothing and accessories that have been graciously donated from the closets of Bexley women. Ways […]

2023 Moonball Family Fun Day | Dobbs Ferry, NY – Nov. 5, 2023

Dobbs Ferry Waterfront Park 87 Ogden Park, Dobbs Ferry, NY, United States

There's something for everyone to enjoy at the 2023 Moonball Family Fun Day, Nov. 5, 2023, in Dobbs Ferry, NY. During the 10:00 a.m. to 3:00 p.m. event, there will be a bounce house, the bubble bus, fairy hair, games and prizes, face painting, music, and more. And don't forget about the special event that […]

Purple Week 2023 | Nov. 12-16 – The Woodlands, TX

Save the dates for the annual WILLPower Purple Week 2023 to celebrate World Sanfilippo Awareness Day! This year's events take place over an extended period, for maximum fun and impact. Join us at one of our events this year to celebrate our annual (extended) Purple Week, including wearing PURPLE on World Sanfilippo Awareness Day on […]

2023 Chili’s Give Back Night honoring Victoria | Nov. 15, 2023 – Hollywood, FL

Chili's Hollywood 5363 Sheridan St., Hollywood, FL, United States

Knock out two birds with one stone: Take care of dinner and help an urgent cause! Stop by Chili's Hollywood on November 15, 2023, for a Give Back Night that benefits Cure Sanfilippo Foundation's mission to accelerate research to cure Sanfilippo Syndrome. Twenty percent of your meal will be donated to help children like Victoria, […]

2023 “Honor Eli” Night at Beef O’Brady’s | Nov. 15, 2023 – Athens, GA

Beef O'Brady's 1860 Barnett Shoals Rd 101, Athens, GA, United States

Knock out two birds with one stone: Take care of dinner and help an urgent cause! Stop by Beef O'Brady's in Athens, Georgia, on November 15, 2023, for a 2023 "Honor Eli" Night at Beef O'Brady's that benefits Cure Sanfilippo Foundation’s mission to accelerate research to cure Sanfilippo Syndrome. Fifteen percent of your meal at […]

World Sanfilippo Awareness Day – Nov. 16, 2023 | Worldwide

World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The […]

2023 “Cure Sanfilippo For Oliver’s Tomorrow” Progressive Euchre Tournament | Nov. 17, 2023 – Columbus, OH

Germania Columbus 543 S Front Street, Columbus, OH, United States

An evening of cards that gives back. The 2023 "Cure Sanfilippo For Oliver's Tomorrow" Progressive Euchre Tournament on Friday, Nov. 17. Enjoy a progressive euchre tournament at the lively Germania Columbus, while also helping a local family and others who have children with Sanfilippo Syndrome. Doors open at 6:30 p.m. and play is from 7:00-10:00 […]

2023 Crue’s Christmas “Shop For A Cure” | Nov. 18, 2023 – Clear Lake, SD

Save the date and bring your people on Saturday, November 18, 2023, for the first annual Crue's Christmas - Shop for a Cure. The 2023 Crue's Christmas will take place in Clear Lake, South Dakota. Be ready to shop from: Baby Toddler Boys Girls Books Puzzles Toys Games Women's Clothing Jewelry Accessories and much more […]

Giving Tuesday 2023 | Nov. 28, 2023 – Global

Everyone is vying to be the organization you might support on Giving Tuesday 2023, this global “day of giving.” We’ll be honest; we aren’t any different. And because we're rare, every donor and dollar matters. We’re hoping you’ll donate to Cure Sanfilippo Foundation tomorrow on Giving Tuesday. Why should you choose curing Sanfilippo Syndrome among […]

2023 “Do It For Declan” 5K and Fun Run | Dec. 9, 2023 – Wylie, TX

Founders Park 851 Hensley Lane, Wylie, TX, United States

Help find a cure for Sanfilippo Syndrome by participating in the 2023 "Do It For Declan" 5K and Fun Run on December 9 at Founders Park in Wylie, Texas. In addition to the runs, there will be food, games, vendors, music, and more! Each December, friends, family, and community members of Declan Sink come together […]

Maine Diner’s 2024 Blueberry Pancake Fundraiser | Jan. 28, 2024 – Wells, ME

Maine Diner 2265 POST ROAD, Wells, ME, United States

The Maine Diner is again hosting its annual Blueberry Pancake Fundraiser to cure Sanfilippo Syndrome! 100% of all blueberry pancake sales on Jan. 28 (National Blueberry Pancake Day) will benefit Cure Sanfilippo Foundation. The Maine Diner has been hosting its annual Blueberry Pancake Fundraiser since 2019 to help children with Sanfilippo Syndrome, like Spencer Smith. […]

2024 Save Connor Drag Bingo | March 11, 2024 – Downingtown, PA

Estrella Tacos y Mas 202 E. Lancaster Ave, Downingtown, PA, United States

Don’t miss a special and unique event on Monday, March 11, 2024, at Estrella Tacos y Mas: Save Connor Designer Bag Drag Bingo! The third annual edition of this much-loved and riotously-fun evening. The night’s fun is sure to knock your socks off, all while supporting a great cause! **The event was originally planned for […]

2024 Saving Veda Jeep Parade | March 23, 2024 – Palm Coast, FL

On Saturday, March 23rd in Palm Coast, Florida, Jeep owners (and anyone else who is interested) are invited to participate in a "Jeep Parade" dedicated to "Saving Veda." Veda a local little girl with Sanfilippo Syndrome. Staging for the 2024 Saving Veda Jeep Parade will begin at 9:30 a.m. at 1290 Belle Terre Parkway.