Mark your calendars for the 2021 Dodgeball Tournament for Rare Diseases. Family fun that helps find a cure to save children like Carson from Sanfilippo Syndrome and Louie from PCDH19.Proceeds from the 2021 Dodgeball Tournament for Rare Diseases will benefit Cure Sanfilippo Foundation in honor of Carson Burroughs and PCDH19 Alliance in honor of Louie. Event […]

Friends, family, and supporters of Will Byers are again running The Woodlands Marathon 2022 on March 5 in Texas to raise awareness of and funds to cure Sanfilippo Syndrome. And the top fundraisers in the Charity Challenge earn EXTRA funds for their charities!For the past several years, Team WILLPower has placed at the top of […]

The South Carolina College of Pharmacy PPAG group is hosting the rescheduled 7th annual Super Eliza 5K Walk/Run to benefit Cure Sanfilippo Foundation and in honor of Eliza O'Neill.Sanfilippo Syndrome is a rapidly degenerative and fatal disease in children, much like a childhood Alzheimer's. Cure Sanfilippo Foundation, a 501c3 nonprofit, funds research to bring life-saving […]

The NHL's Columbus Blue Jackets are dedicating their Friday, April 22, against the Ottawa Senators to Oliver Kelly and the fight to cure Sanfilippo Syndrome. By buying tickets through this special link, a portion of every game ticket benefits Cure Sanfilippo Foundation and research for a cure. Each upper-bowl ticket donates $10. Each lower-bowl ticket […]

Help Maria and other children with Sanfilippo Syndrome by participating in the May 15, 2022, Run for Maria. Proceeds benefit Cure Sanfilippo Foundation and its mission to accelerate discovery of a treatment or cure for Sanfilippo Syndrome. May 15 is also MPS Awareness Day.The event starts at 10:00 a.m. and is being held at the Lake […]

Make dinner a selfless act by joining us for a fundraiser to support Cure Sanfilippo Foundation and Help Simon. Come in to the "Help Simon" Chipotle fundraiser at 1920 East Riverside Drive location in Austin, Texas, on May 18th between 4:00 pm and 8:00 pm. Bring in the flyer below, show it on your smartphone, […]

Gianna, was diagnosed with Sanfilippo Syndrome in June 2021. Her family is heartbroken, but is "fighting the big fight."The family's 2022 "Believe in G" Golf Tournament, the inaugural one, will be held on Friday, May 20, 2022, at Pevely Farms Golf Club in Eureka, MO. In a message her family posted to Facebook: one of the […]

Come enjoy a four-person scramble at the 2022 Believe In G Golf Tournament on May 20 at the Pevely Farms Golf Club and Crescent Farms Golf Club in Eureka, MO. Yes, this event is so large it needs TWO courses! What amazing support for Gianna, her family, and the fight to cure Sanfilippo Syndrome.Registration begins […]

The family of Will Byers is hosting its annual lemonade stand to raise funds for research to cure Sanfilippo Syndrome on June 11, 2022. The lemonade fundraiser will be at Market Street in The Woodlands, TX. Come and enjoy cool drinks and sweet treats to help cure Sanfilippo.The lemonade stand annually raises money and awareness […]

Peace Lutheran Church is teaming with businesses across the Manhattan, KS, to raise money for those affected by Sanfilippo Syndrome with a citywide scavenger hunt, Manhattan Madness Scavenger Hunt 2022, on Saturday, July 9. Participants have a chance to win shirts, ice cream, gift cards, and of course have a blast and a half. A […]

Support research to cure Sanfilippo Syndrome by joining the 7th annual Saving Rylan Golf Tournament on Sunday, Aug. 21, 2022, at Bear Trace Golf Course. The 2022 Saving Rylan Golf Tournament honors Rylan Hyder, who lives in Crossville and has Sanfilippo Syndrome. Enjoy a day of golf, door prizes, and lunch. Registration is $65/person or […]

Enjoy a day of fun at the seventh annual Levi's Life, Love & Laughter "Tee Of For A Cure" golf tournament on Aug. 27, 2022, at the New Berlin Hills Golf Course. The day's format is a foursome scramble where each team plays the best ball of the foursome for a total team score. Registration opens at […]

Enjoy a day of golf that also does good at the 2022 "Drive to Cure Carson" Charity Golf Tournament benefiting Cure Sanfilippo Foundation on Sept. 9, 2022. All proceeds of this 5th annual charity tournament will go to the Foundation to help find a cure for Carson and all the children affected by Sanfilippo! $600/foursome […]

Join the Shamaly family in honoring their daughter Ellie at their lemonade stand fundraiser on Saturday, Sept. 17. Come enjoy refreshments, each just $1, from 1:00-3:00 p.m. and benefiting research to discover a treatment for Sanfilippo Syndrome. All proceeds benefit Cure Sanfilippo Foundation.Sanfilippo Syndrome (estimated at 15,000-20,000 children) is a rare, terminal, neurodegenerative disease like […]

A Day on the Greens that Gives BackEnjoy a day of golf that also does good at the 2022 Houston Oilfield Golf Association (HOGA) Golf Tournament benefiting Cure Sanfilippo Foundation.  The second annual tournament will be Monday, Oct. 17, at the The Club at Carlton Woods in The Woodlands, TX. Your participation in the 2022 HOGA […]

Help fund research to help children with Sanfilippo Syndrome at the 2022 Haidyn's Hope Motorcycle Ride & Car Show on Oct. 22 in Cartersville, GA. The event will run from 11:00 a.m. to 2:00 p.m. at Atlanta Harley-Davidson, 501 Thornton RoadLithos Spring, GA 30122.You can join in the fun. Join the ride, show off, donate, […]

An evening of cards that gives back. The 2022 "Cure Sanfilippo For Oliver's Tomorrow" Progressive Euchre Tournament on Saturday, Nov. 5.Enjoy a progressive euchre tournament at the lively Germania Columbus, while also helping a local family and others who have children with Sanfilippo Syndrome. Doors open at 6:00 p.m. and play is from 7:00-10:00 p.m.Sanfilippo […]

Knock out two birds with one stone: Dinner and doing good! Stop by Chili's Hollywood on November 16 for a Give Back Night that benefits Cure Sanfilippo Foundation's mission to accelerate research to cure Sanfilippo Syndrome.Twenty percent of your meal will be donated to help children like Victoria, who lives in Hollywood, FL, with Sanfilippo […]

Don't miss a special and unique event on Monday, Dec. 5, 2022 at Estrella Tacos y Mas: Drag bingo to Save Connor! The second annual edition of this much-loved and riotously-fun evening.The event will be hosted by the great Andie Summers (of 92.5 XTU) and world-renowned drag queen OPHELIABAWDY. The night's fun is sure to […]

Come join the inaugural "Do it For Declan 5K and 1-mile Fun Run," benefiting Cure Sanfilippo Foundation, on Dec. 10, 2022. The 2022 Do it For Declan 5K and 1-mile Fun Run will be held in Founders Park, right near Wylie High School in Wylie, TX. The 1-mile walk/run will precede the 5K. The 5K […]

The Maine Diner is again hosting its annual Blueberry Pancake Fundraiser to cure Sanfilippo Syndrome! 100% of all blueberry pancake sales on Jan. 28 (National Blueberry Pancake Day) will benefit Cure Sanfilippo Foundation.The Maine Diner has been hosting its annual Blueberry Pancake Fundraiser since 2019 to help children with Sanfilippo Syndrome, like Spencer Smith.Spencer is 8-years-old, […]

Friends, family, and supporters of Will Byers are again running The Woodlands Marathon 2023 on March 4 in Texas to raise awareness of and funds to cure Sanfilippo Syndrome. And the top fundraisers in the Charity Challenge earn EXTRA funds for their charities!For the past several years, Team WILLPower has placed at the top of […]

2023 Dance for Life Take advantage of every moment. Together, we make a difference. Karlstad dansförening presents a charity performance, 2023 Dance for Life, in honor of Krama Era Barn and research to treat Sanfilippo Syndrome on March 19 at the Carlstad Conference Center in Karlstad, Sweden."Dance for Life" is a performance filled with emotion […]

The South Carolina College of Pharmacy PPAG group is hosting the 9th annual Super Eliza 5K Walk/Run to benefit Cure Sanfilippo Foundation and in honor of Eliza O'Neill on April 1, 2023.Sanfilippo Syndrome is a rapidly degenerative and fatal disease in children, much like a childhood Alzheimer's. Cure Sanfilippo Foundation, a 501c3 nonprofit, funds research […]

The Mad Apple Burger & Billiard Co. in Appleton, Wisconsin, is hosting "2023 Scotch Doubles Tournament: A Fundraiser for Olivia" on April 15, 2023. This fundraiser benefits the fight to help Olivia Stoop, who lives in the community and has Sanfilippo Syndrome. Doors open at 7:00 a.m. with breakfast available. Play starts after Calcutta at […]

The Crown Point, IN, community is invited to come together in support for local boy Cannon and the fight to cure Sanfilippo Syndrome at the 2023 "Team Cannon CAN" Night at Public Bar & Rec. Cannon is a strong 5 year old and was diagnosed with Sanfilippo Syndrome, a rare disease that is without a […]

The owner of Sweet Zen Bakery in West Chester, PA, knows the mother of Connor Dobbyn and has decided to help fund Connor's chance at life by donating a portion of proceeds of sales leading up to and including Mother's Day 2023. Posting to social media, Sweet Zen Bakery shared that Sanfilippo Syndrome, which Connor […]

Last year, the inaugural Believe in G Golf Tournament raised just over $𝟖𝟎,𝟎𝟎𝟎, benefiting the family and Cure Sanfilippo Foundation.Generous sponsors, donors, friends, family, volunteers, and our community made that $80,000 possible. The Wackers were overwhelmed by the amazing support from family, friends, and the community and are hoping to do it again this year. […]