HIGH 5K Run/Walk for Connor | April 18, 2021 – Downington, PA
April 18 @ 9:00 am - 11:30 am
The event is being host by HIGH 5 Soccer. Connor has been playing soccer with High 5 for more than 5 years—always with a smile on his face that brings joy to everyone he meets.
“We were shocked to learn that he was recently diagnosed with Sanfilippo Syndrome, a degenerative, terminal disease with no known cure. We knew we had to help,” said event coordinator Jenn Wagner.
All proceeds from the 2021 HIGH 5K Run/Walk for Connor will help fund the first-ever clinical trial for his specific type of Sanfilippo (Type C). The sooner funds are raised, the sooner the trial can begin. Connor and the other children with Sanfilippo don’t have time to wait because of the disease’s rapid progression. Please visit Connor’s site to learn more about him, his family and the disease they are fighting.
Location: Marsh Creek State Park, 675 Park Rd., Downingtown PA 19335
Registration and details on the event’s personal safety protocols are available at the link.