Upcoming Events

50/50 Raffle at Steel Hands Pint Night, Nov. 10

Steel Hands Brewery 2350 Foreman Street, Cayce, SC, United States

Enjoy live music and tasty craft brews at the trendy micro-brewer Steel Hands Brewery while helping cure Sanfilippo Syndrome. An event ticket get you into this family (and pup)-friendly evening, plus one 50/50 raffle ticket and one beer token. Admission is $15, and free for children 18 and under.Not able to make it, but want […]

$10 – $15

50/50 Raffle at Steel Hands Pint Night, Nov. 10

Steel Hands Brewery 2350 Foreman Street, Cayce, SC, United States

Enjoy live music and tasty craft brews at the trendy micro-brewer Steel Hands Brewery while helping cure Sanfilippo Syndrome. An event ticket get you into this family (and pup)-friendly evening, plus one 50/50 raffle ticket and one beer token. Admission is $15, and free for children 18 and under.Not able to make it, but want […]

$10 – $15

5th Annual Midlands Gives (Columbia, SC)

The Midlands Gives 2020 is an annual online giving challenge hosted by the Central Carolina Community Foundation that brings the region together as one community, raising money and awareness for local nonprofits.Cure Sanfilippo Foundation is among the many Columbia-based organizations participating in Midlands Gives 2020. Additionally, several families with children that have Sanfilippo live or […]

#GivingTuesdayNow 2020 | May 5, 2020 – Worldwide

Supporters around the world will answer the call of “A Cure Can’t Wait” by donating to Cure Sanfilippo Foundation on #GivingTuesdayNow, May 5, 2020. Families of children with Sanfilippo Syndrome will participate in the Foundation-led “A Cure Can’t Wait” campaign the culminated on GivingTuesdayNow. See the families’ campaigns. Sanfilippo Syndrome doesn’t take a day off, so […]

The Big Give | Central Ohio – June 10-11, 2020

Cure Sanfilippo Foundation is proud to join 1,100 other non-profits participating in The Big Give 2020, a 25-hour online giving event hosted by The Columbus Foundation to provide essential funds for non-profits that benefit the Central Ohio area. The Foundation participates in honor of several children with Sanfilippo Syndrome in the 10-county Central Ohio area, […]

Face Our Fear Skydiving Challenge | Aug. 1, 2020 – Cedartown, GA

Skydive Georgia 493 Airport Rd #5049, Cedartown, GA, United States

Haidyn Fowler's mom is facing her greatest fear - heights - to help save her youngest child. On August 1, Carrie Fowler and Haidyn's dad Caleb will skydive to raise awareness of Sanfilippo Syndrome and donations for Cure Sanfilippo Foundation. Some of Carrie and Caleb's close family are joining them to skydive to help fundraise. […]

Step Up to Cure Sanfilippo Syndrome | Oct. 11, 2020 – Everywhere

You take thousands of steps every day. Chasing the kids. Walking the dog. Going up and down the stairs. Running into the store. Hustling around the kitchen making dinner. What if every step helped cure a disease that causes children to suffer and die? To save children like Connor, Eliza, Solomon, and Haidyn? They can […]

#GivingTuesday | Dec. 1, 2020 – Nationwide

Support the fight to cure Sanfilippo Syndrome on #GivingTuesday 2020, a global day of giving fueled by the power of social media and collaboration. Cure Sanfilippo Foundation is grateful for its many devoted supporters who help fund the research that will lead to a cure. Support the Foundation on Tuesday, Dec. 1.

Cycling Fundraiser on Kilter | Dec. 1-31, 2020 – Virtual

Help Save Connor by joining a month-long Ride & Raise cycling fundraiser on Kilter throughout December. Complete wellness activities throughout the month with Ride & Raise to climb the leaderboard.Donations benefit Cure Sanfilippo Foundation, specifically the clinical trial for the first-ever gene therapy for Sanfilippo Syndrome Type C. Connor Dobbyn is among the children with […]

Merry & Bright Trivia Gala Night | Dec. 18, 2020 – Virtual

Be a part of a fun night of virtual trivia that helps children with Sanfilippo Syndrome! Join us for the first Merry & Bright Trivia Gala Night on Dec. 18, 2020, at 8:30 p.m. EST. Show off your knowledge of all things in this fun night of trivia, right from the comfort of your home! […]

$34

The Woodlands Marathon Charity Challenge | March 7, 2021 – Nationwide

The Woodlands The Woodlands, CA, United States

Friends, family, and supporters of Will Byers are again running The Woodlands Marathon 2021 on March 7 in Texas to raise awareness of and funds to cure Sanfilippo Syndrome. And the top fundraisers in the Charity Challenge earn EXTRA funds for their charities!And this year, even if you aren't in Texas, you can run for […]

The Amazing Give 2021 | April 22, 2021 – Northern Florida

Over the past five years, the Northern Florida region has come together to give more than $3 million dollars to nonprofits that benefit the area through The Amazing Give. The Amazing Give 2021 will continue that tradition.The Amazing Give is a great opportunity to show your dedication to making the world a better place, including […]

giveBIG St. Croix Valley 2021 | April 27, 2021 – Wisconsin

giveBIG St. Croix Valley 2021 is an extraordinary opportunity designed to bring Wisconsin's communities together to raise money and awareness for nonprofits, including Cure Sanfilippo Foundation and its mission to accelerate discovery or a treatment or cure for children with Sanfilippo Syndrome. To help children like Levi who lives in Wisconsin.Every donation, big or small, […]

Midlands Gives 2021 | May 5, 2021 – Columbia, SC

Midlands Gives 2021 is an annual online giving challenge hosted by the Central Carolina Community Foundation that brings the region together as one community, raising money and awareness for local nonprofits.Cure Sanfilippo Foundation is among the many Columbia-based organizations participating in Midlands Gives 2021. Additionally, several families with children that have Sanfilippo live or used to […]

5th Annual Midlands Gives | May 4, 2021 – Online

The Midlands Gives 2021 is an annual online giving challenge hosted by the Central Carolina Community Foundation that brings the region together as one community, raising money and awareness for local nonprofits. Cure Sanfilippo Foundation is among the many Columbia-based organizations participating in Midlands Gives 2021. Additionally, several families with children that have Sanfilippo live […]

Lemonade For A Cure | Aug. 7, 2021 – Bexley, OH

Bexley, OH Bexley, OH, United States

Family and friends of Oliver Kelly are hosting a lemonade stand on Saturday, Aug. 7, from 10:00 a.m. to 4:00 p.m. to help fund research to cure Sanfilippo Syndrome.They welcome everyone in the area to stop by, wearing your finest purple, for lemonade and sweet treats to help support research to cure Sanfilippo Syndrome, a […]

Tee Off For A Cure | Aug. 7, 2021 – New Berlin, WI

Enjoy a day of fun at the sixth annual Levi's Life, Love & Laughter "Tee Of For A Cure" golf tournament on Aug. 7 at the New Berlin Hills Golf Course. The day's format is a foursome scramble where each team plays the best ball of the foursome for a total team score. Registration opens at 12:00 […]

Haidyn’s Hope Annual Skydiving Challenge | Oct. 2, 2021 – Cedartown, GA

Skydive Georgia 493 Airport Rd #5049, Cedartown, GA, United States

Haidyn Fowler's parents and supporters are facing her greatest fear - heights - to help save this wonderful little girl. On October 2, Carrie Fowler and Haidyn's dad Caleb will skydive to raise awareness of Sanfilippo Syndrome and donations for Cure Sanfilippo Foundation. Some of Carrie and Caleb's close family are joining them to skydive […]

Spencer’s Sprinters take on 2021 Genesis Battlegreen Run | Nov. 7, 2021 – Lexington, MA

Lexington, MA Lexington, MA, United States

Each year, Spencer's Sprinters raise tens of thousands to help children with Sanfilippo Syndrome and Cure Sanfilippo Foundation!  Even during a pandemic, the run team raised more than $15,000 last year.Team Spencer's Sprinters will take on the 2021 Genesis Battlegreen Run on Nov. 7, 2021, in Lexington, MA. People can participate in-person or virtually as […]

$15 – $35

Purple Week 2021 | Nov. 14-20 – The Woodlands, TX

Save the dates for the annual WILLPower Purple Week 2021 to celebrate World Sanfilippo Awareness Day! Join in with the following events: WILLPower Spirit Night at Chipotle 2021 | Nov. 16 More information: https://fb.me/e/1mAaW7fZ0 Do Good With Burritos! | Nov. 16 from 5:00-9:00 p.m. Join us for a WILLPower Spirit Night on Tuesday, November 16 […]

World Sanfilippo Awareness Day – Nov. 16, 2021 | Worldwide

World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The […]

Maine Diner’s 2022 Blueberry Pancake Fundraiser | Jan. 18-Feb. 28, 2022, Nationwide

Maine Diner 2265 POST ROAD, Wells, ME, United States

The Maine Diner is again making its annual Blueberry Pancake Fundraiser to cure Sanfilippo Syndrome available nationwide! In addition to all dine-in and takeout pancake sales on Jan. 28 (National Blueberry Pancake Day), every online shipping order of their frozen blueberry pancake batter placed through Feb. 28 will benefit Cure Sanfilippo Foundation.So no matter where you […]

6th Annual Midlands Gives | May 3, 2022 – Online

The Midlands Gives 2022 is an annual online giving challenge hosted by the Central Carolina Community Foundation that brings the region together as one community, raising money and awareness for local nonprofits. Cure Sanfilippo Foundation is among the many Columbia-based organizations participating in Midlands Gives 2022. Additionally, several families with children that have Sanfilippo live […]

Designer Bag Bingo for #SaveConnor | June 6, 2022 – Virtual

Monday, June 6, at 7:00 p.m., play along with the GEYA Soccer's Designer Bag Bingo for #SaveConnor! This event is virtual so get in your pjs, grab a glass of wine or a cocktail, and get your bingo on for a great cause!Proceeds from Designer Bag Bingo for #SaveConnor will honor Connor Dobbyn and benefit […]

Sale2Save 2022 | June 18, 2022 – Nationwide

Nationwide , United States

Every year, families, friends, and supporters of Sanfilippo children host Sale2Save garage, lawn, lemonade, and bake sales around the country to support research to cure Sanfilippo Syndrome, a rare terminal children’s illness. Join us for the Sale2Save 2022 on Saturday, June 18.Nationwide events like these are powerful because of their scale. Think of it like […]

ADVANCE 2022 | Sanfilippo Community Conference | July 7-8, 2022 – Virtual

UPDATE: Replays of ADVANCE 2022's two days of sessions are available. Access the conference replays.-------------------------------------------------------------Set your calendar for ADVANCE 2022: Sanfilippo Community Conference! A virtual conference on July 7-8, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo […]

Free

Purple Week 2022 | Nov. 2-16 – The Woodlands, TX

Save the dates for the annual WILLPower Purple Week 2022 to celebrate World Sanfilippo Awareness Day! This year's events take place over an extended period, for maximum fun and impact.  Join us at one of our events this year to celebrate our annual (extended) Purple Week, including wearing PURPLE on World Sanfilippo Awareness Day on […]

World Sanfilippo Awareness Day – Nov. 16, 2022 | Worldwide

World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The […]

2023 Save Connor ‘Dine & Donate’ Night | July 13, 2023 – Lionville, PA

MAGERKS Pub & Grill 174 Eagleview Blvd, Exton, PA, United States

Want to take a night off cooking, while also helping fund research to help children with Sanfilippo Syndrome? Stop by Magerks Pub & Grill in Lionville, PA, on Thursday, July 13, for the 2023 Save Connor 'Dine & Donate' to grab lunch and/or dinner. When you stop by between 11:30 a.m. and 11:00 p.m., 15% […]

ADVANCE 2023 | Sanfilippo Community Conference | Aug. 29-30, 2023 – Virtual

Set your calendar for ADVANCE 2023: Sanfilippo Community Conference! A virtual conference on Aug. 29-30, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo Syndrome. Registration is at no-cost. REGISTER AT: https://curesanfilippofoundation.org/advance/ Parents and caregivers don’t often […]

FREE

2023 Cure for Carson Night @ St. Dominic Volleyball | Oct. 4, 2023 – O’Fallon, MO

St. Dominic High School 31 St. Dominic Drive, O'Fallon, MO, United States

The St. Dominic Volleyball team (O'Fallon, Missouri) is once again rallying to support a local family and the fight to cure Sanfilippo Syndrome with its 2023 Cure For Carson Night on Oct. 4. The varsity and junior varsity teams from St. Dominic are taking on St. Joseph's, starting at 5:00 p.m. The local family being […]

World Sanfilippo Awareness Day – Nov. 16, 2023 | Worldwide

World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honors the families of these precious children.The […]

Giving Tuesday 2023 | Nov. 28, 2023 – Global

Everyone is vying to be the organization you might support on Giving Tuesday 2023, this global “day of giving.” We’ll be honest; we aren’t any different. And because we're rare, every donor and dollar matters. We’re hoping you’ll donate to Cure Sanfilippo Foundation tomorrow on Giving Tuesday. Why should you choose curing Sanfilippo Syndrome among […]