The family of Simon Croke is hosting the inaugural Super Simon Says “Cure Sanfilippo Syndrome” Silent Auction starting March 23, 2023, and ending with a Live Auction on April 2, 2023, benefiting Cure Sanfilippo Foundation at
Orange Theory Fitness at the Triangle in Austin, TX.

“Cure Sanfilippo Foundation is so important to us because our son, Simon, has been diagnosed with this horrible condition,” says Simon’s mom and dad, Alina and Jeremy. 

Sanfilippo Syndrome is a terminal, neurodegenerative, and rare disease. Imagine Alzheimer’s, but in children. It causes children to lose all the skills they have gained. Simon and other children diagnosed with Sanfilippo Syndrome, will lose the ability to walk and speak. He will suffer seizures and movement disorders, endure pain and suffering for years until Sanfilippo robs him of his life. There is currently no cure, but Cure Sanfilippo Foundation’s mission is to advocate for patients and fund life-saving research to develop treatment options.