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2022 Haidyn’s Hope Motorcycle Ride & Car Show | Oct. 22, 2022 – Lithos Spring, GA

October 22 @ 11:00 am - 2:00 pm

Haidyn Fowler, living with Sanfilippo SyndromeHelp fund research to help children with Sanfilippo Syndrome at the 2022 Haidyn’s Hope Motorcycle Ride & Car Show on Oct. 22 in Cartersville, GA. The event will run from 11:00 a.m. to 2:00 p.m. at Atlanta Harley-Davidson, 501 Thornton Road
Lithos Spring, GA 30122.

You can join in the fun. Join the ride, show off, donate, meet & greet, advocate and raise awareness for Haidyn and Sanfilippo Syndrome.

Sanfilippo Syndrome — also known as Mucopolysaccharidosis type III or MPS III — is a terminal, neurodegenerative rare disease. It causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die, often before the second decade of life.

Because of its neurodegenerative nature and multi-system impact, Sanfilippo Syndrome is often called “childhood Alzheimer’s” or “childhood dementia.”

Currently there is no FDA-approved treatment or cure. But there is research happening and there is hope.

*Note: This event was originally planned to take place in Cedarville, GA, so please note the new location.

Details

Date:
October 22
Time:
11:00 am - 2:00 pm
Event Category:
Website:
https://www.facebook.com/events/5363793093711450/

Organizer

Haidyn’s Hope – A Cure For Sanfilippo Syndrome
Website:
https://www.facebook.com/HaidynsHope/

Venue

Atlanta Harley-Davidson
501 Thornton Road
Lithos Spring, 30122
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