The parents of Connor Dobbyn have shared a heartfelt message to supporters, announcing that the Save Connor campaign to fund the first-ever gene therapy clincial trial for Sanfilippo Syndrome Type C has reached $1 million. The announcement comes days after Connor...
Save Connor
Foundation raises nearly $4 million with three GoFundMe campaigns to cure Sanfilippo Syndrome
Current campaign is nearing the $1 million mark to fund a first-ever clinical trial Cure Sanfilippo Foundation is on track to raise another $1 million via a GoFundMe fundraiser for research and clinical trials to cure Sanfilippo Syndrome. This is the third...
Connor’s Crew: Children racing against time to save their best friend’s life
Most 12-year-olds are dreaming of what they want to be when they grow up, navigating school cliques, and still enjoying the waning days of childhood innocence. This group of 12-year-olds have known Connor Dobbyn since kindergarten. Long before he was diagnosed with...
Parents’ first viewing of a video they hope will save dying son
Connor Dobbyn is 12-years-old and has a degenerative and fatal disease called Sanfilippo syndrome. But there is hope in a clinical trial that lacks funding. Connor's parents, Marisa DiChiacchio and Mike Dobbyn, have set out to fund the clinical trial and give Connor a...
What We Thought Was Autism Became an Inconceivable Diagnosis
Connor Dobbyn was diagnosed with Autism at age 5. "We thought we hit the nail on the head with this diagnosis," said Connor's mom Marissa. "However, it wasn't until an annual IEP at school that they found it to be something much worse." Connor went from having an IQ...
‘Save Connor’ viral video raises $100,000 in 27 hours for Sanfilippo clinical trail
FOR IMMEDIATE RELEASE MEDIA CONTACT: Glenn O’NeillPresident & Co-FounderCure Sanfilippo FoundationGlenn@CureSanfilippoFoundation.org(803) 413-0525 Columbia, SC (Oct. 17, 2020) – More than 1,600 people have been moved by the "Save Connor" viral video and...
‘Save Connor’: Parents using viral video to overcome the single obstacle in the way of saving their son’s life: $3 million
FOR IMMEDIATE RELEASE MEDIA CONTACT: Glenn O’NeillPresident & Co-FounderCure Sanfilippo FoundationGlenn@CureSanfilippoFoundation.org(803) 413-0525 Columbia, SC (Oct. 16, 2020) - The parents of Connor Dobbyn, Marisa DiChiacchio and Mike Dobbyn, are using a viral...
Connor Beats Sanfilippo online campaign crosses $150,000 for Type C
In spring 2019, Connor Dobbyn's parents were told their son had Sanfilippo Syndrome, Type C (one of the rarest types), and that it will take his life. Like Alzheimer's in children, Sanfilippo will cause Connor to lose all the skills he’s gained, stop speaking and...
Cure Sanfilippo funds $380,000 for first MPS IIIC gene therapy
Cure Sanfilippo Foundation funds $380,000 to Phoenix Nest Inc. to support path to first-ever MPS IIIC Gene Therapy COLUMBIA, SC (May 15, 2020) — Cure Sanfilippo Foundation is thrilled to announce funding of $380,000 to the New York-based biotechnology company Phoenix...