receipt-logo.png
Header-Donate-e1579794194299.png

Save Connor

Parents’ first viewing of a video they hope will save dying son

Connor Dobbyn is 12-years-old and has a degenerative and fatal disease called Sanfilippo syndrome. But there is hope in a clinical trial that lacks funding. Connor's parents, Marisa DiChiacchio and Mike Dobbyn, have set out to fund the clinical trial and give Connor a...

What We Thought Was Autism Became an Inconceivable Diagnosis

Connor Dobbyn was diagnosed with Autism at age 5. "We thought we hit the nail on the head with this diagnosis," said Connor's mom Marissa. "However, it wasn't until an annual IEP at school that they found it to be something much worse." Connor went from having an IQ...

Connor Beats Sanfilippo online campaign crosses $150,000 for Type C

In spring 2019, Connor Dobbyn's parents were told their son had Sanfilippo Syndrome, Type C (one of the rarest types), and that it will take his life. Like Alzheimer's in children, Sanfilippo will cause Connor to lose all the skills he’s gained, stop speaking and...

Cure Sanfilippo funds $380,000 for first MPS IIIC gene therapy

Cure Sanfilippo Foundation funds $380,000 to Phoenix Nest Inc. to support path to first-ever MPS IIIC Gene Therapy COLUMBIA, SC (May 15, 2020) — Cure Sanfilippo Foundation is thrilled to announce funding of $380,000 to the New York-based biotechnology company Phoenix...