Simon's family is using a viral video to fundraise for research that could lead to the first-ever approved therapy for Sanfilippo Columbia, SC (Nov. 16, 2021) - Simon Croke from Austin, TX, has been sinking baskets on his Little Tykes hoop like a pint-sized pro since...
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Family Friday Blog: The Howard Family
Get to know the Howard family – Chris, Amanda, Abby, Grace, and Blake!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Howard family's honest and insightful...
Family Friday Blog: The Means Family
Get to know the Means family – Mike, Jen, Abigail and Sadie!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Means family's honest and insightful perspective. The...
Family Friday Blog: The Bergh-Hansen Family
Get to know the Bergh-Hansen family – Rasmus, Katrine, Molly, and Pelle!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Bergh-Hansen family's honest and insightful...
Family Friday Blog: The Pearson Family
Get to know the Pearson family – Bruce, Cybill, Simone, Joana, and Solomon! Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Pearson family's honest and insightful...
Family Friday Blog: The Sink Family
Get to know the Sink family – John, Katharine, Declan, and Zane!Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Sink family's honest and insightful perspective. The...
Family Friday Blog: The Koch Family
Get to know the Koch family – Matt, Julie, Alex, and Jaxson! Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Koch family's honest and insightful perspective. The...
Family Friday Blog: The McKenzie Family
Get to know the McKenzie family – Kirk, Erica, Garrett, Reagan, and baby Ava on the way! Find out what the past year has been like in their lives with this week’s Family Friday. Get a glimpse into living with Sanfilippo Syndrome through the McKenzies family's honest...
Family Friday Blog: The Merrick Family
Get to know the Merrick family – John, Lindsay, Caroline, and Georgia Kate! Find out what the past year has been like in their lives with this week’s Family Friday.Get a glimpse into living with Sanfilippo Syndrome through the Merrick family's honest and insightful...