Every parent dreams about their kid’s future and watching it unfold.

Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.

Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.

Help save children.
VIDEO: One Family’s Sanfilippo Story
And the reality for every family living with Sanfilippo Syndrome.
Cure Sanfilippo Foundation logo
We are writing the next chapter for Sanfilippo Syndrome. The chapter of the cure for this childhood dementia. Every project we architect or fund gets families closer to a cure in this lifetime.

Green arrow bullet $20 million raised since 2013

Green arrow bullet 15,000 children globally

Green arrow bullet 50+ research projects funded

Green arrow bullet 120+ partner families globally

Green arrow bullet 3 clinical trials funded
Green arrow bullet Medical & scientific expertise
WHAT IS
SANFILIPPO

MEET THE
FAMILIES

DONATE

Accelerating research to find a cure for children with Sanfilippo Syndrome

Give children with Sanfilippo a chance at life. Let parents watch their children grow up.
A cure can’t wait.

Every parent dreams about their child’s future and watching it unfold.

Sanfilippo Syndrome
takes that all away.

Sanfilippo Syndrome is a rare, terminal, neurodegenerative disease. It causes children to lose all the skills they’ve gained, to suffer seizures and dementia, to experience pain and suffering, and then die. All before their parents eyes.

Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome, so parents can dream of their children’s futures again.

Help save children

VIDEO: One family’s story.
Every Sanfilippo family’s reality.
Has your child been diagnosed with Sanfilippo?
We are here to help.

With your support, we are writing the next chapter on Sanfilippo Syndrome.

The chapter of the cure for this childhood dementia.

Every project we architect or fund gets families closer to a cure in this lifetime.

-> $20 million raised since 2013

-> Medical & scientific expertise

-> 50+ research projects funded

-> Multiple clinical trials funded

HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

YOUR SUPPORT HELPS FIND A CURE
HOW YOU CAN HELP

DONATE

Find the
donation option
that fits you

FUNDRAISE

Easily create
and host your own
online fundraiser

TELL OTHERS

Make a difference
by telling others
about Sanfilippo

MEET THE
FAMILIES
    OUR MISSION
    The name says it all:
    To cure Sanfilippo.

    By advocating for and funding research directed towards a cure and treatment options.

    FUNDRAISING GOAL

    The Foundation’s focus in 2023: funding the most-promising research and elevating the voices of caregivers in pursuit of a cure for Sanfilippo Syndrome.

    Fundraising is critical fuel for these goals. Our goal is to raise $2,500,000 in 2023. We need your help to get there. Every single donation makes a difference.

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    LATEST NEWS

    ADVANCE 2023 recordings; watch at your convenience

    Recorded Sessions Available for On-Demand Replay The virtual ADVANCE 2023, a Sanfilippo Community Conference, held August 29-30, 2023, is a forum for education, scientific presentations, networking, and community building that brought together families and caregivers,...

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    Family Friday 2023: The Hooks Family

    Hear directly from the Hooks family – Parents Cory and Jamie, Trenton (age 17, Type A), and siblings Treyven and Tyson!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for...

    read more

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