On Saturday, you helped make cherished memories and build lifelong bonds of friendships.
You’re probably wondering: What on earth are you talking about?!
These special moments weren’t something you experienced, personally. Instead, it was something you made happen. For several families of children with Sanfilippo.
Saturday was the Foundation’s latest “Sanfilippo family gathering,” which took place at a wonderful Minneapolis-area community play space. All thanks to your generous support.
What did it mean to the families who came? We’ll let them tell you themselves …
Even just those smiles say everything.
Life with Sanfilippo can be isolating and many parents feel alone in their experience without access to a support network. And travel to national and international conferences is extraordinarily difficult for families of children with Sanfilippo.
So the Foundation is hosting these regional Sanfilippo family gatherings around the country to give the families a chance to gather socially, exchange information, and be a part of a wider Sanfilippo community in a more-convenient way. At no cost to them.
